THE PRACTICAL SIDE OF LIFE WITH CHRONIC PAIN

THE PRACTICAL SIDE OF LIFE WITH CHRONIC PAIN…

                          or please, somebody change that tune.

I’ve lived with chronic pain every day of my life for over 25 years. I must say you never get used to it, but you do learn to accept it. Because this miserable condition has affected my entire life, sneaking and crawling like a coward into every corner of my existence, there are many things I have learned along this troubled way.

The first and most important of those lessons was the ability to accept what I cannot change, to change what I can through medical help, attitude and my spiritual life and to always keep an open mind. Change entered my life as a companion to daily pain and for that reason; I learned to embrace change as being invaluable, because a static condition could be my enemy. I had to change everything. Daily habits, personal hygiene, house cleaning, laundry and cooking; all changed.

The mornings are often the hardest, seconded closely by the restless nights. I have learned over the years to keep yogurt or Ensure, along with tiny cans of juice in a little, inexpensive refrigerator we keep upstairs in a small room off of our bedroom. I call it the train room because I papered it years ago with a scenic wide wallpaper border of an old-fashioned village on a river, much like our town. Along the top I papered an old fashioned train chugging around the room…wish it was a real model train, but alas.

In the morning I take my medications, which are plentiful with a glass of seltzer water and a small yogurt. None of us should take any pills on an empty stomach unless specifically told to do so. I learned years ago to fill those weekly pill containers with my daily pills, for two reasons: it’s simpler than opening bottle after bottle in the morning when I am at my worse and secondly because it’s a good reminder in case I’m wondering later in the day, “Did I remember to take my pills this morning?” I simplify life by filling the weekly containers once each month. I do the same thing for Jim’s vitamins and daily aspirin. For all of my prn medications, which simply put is “as needed.” I keep them together in a shoebox sized plastic container with a snap lid and write an initial of the drug on the top so I can find them more easily. Aren’t they printing the med labels smaller than usual these days, or is that just my problem?

Once the day is off and limping, I make myself get dressed and wash my face or take a shower. I personally find it helps my attitude to be dressed and I feel prepared if the mailman or someone else knocks on the door. After my morning pills have kicked in with their effects, I carefully walk downstairs to get a cup of latte which is my one cup of caffeine for the day. When you live with IBS you have to watch the intake of caffeine and that includes non-herbal teas and worst of all, chocolate. I still eat an occasional bit of chocolate but usually pay the price of it later. Hey, we can’t give up all the good stuff in this life, right?

Then my day is off and if not running, at least moving forward. I’ve found, as I know many of you have, that a list of daily activities is helpful. Calls to doctors, friends, shopping lists, cleaning chores and laundry, etc. all go on the list. As I’ve mentioned so often in the past, my chores are planned to be interspersed with rest times. A movie, a good book, the computer and chatting with all of you are a few of the activities that appeal to me. I do try to get out of the house at least two or three times a week to see others, to shop or just to walk.

I pick up my youngest grandkids from their school buses which stop out front twice a week. Those are, of course, my favorite days. We watch Disney movies, play games, eat popcorn or sandwiches, depending on their lunch consumption and during the summer, they will be here for the entire day, twice weekly. I need to rest on those days and they understand. During the summer we visit our wonderful Maritime museum, go fishing, or just go out to the bakery and choose cookies and goodies. The children and I also love to feed breadcrumbs to the seagulls and have discovered our Yorkie, George thinks he can fly. We also do a fair share of cooking which they both enjoy. The beaches around here are wonderful but I’m limited a bit by my sun sensitivity but still have to slap on the sunscreen and enjoy it on occasion. I wear long sleeves and a hat 365 days a year. When I add wrap around dark glasses I become a very mysterious woman, indeed.

I love digging holes in the sand and building tiny inlets, sand castles, or just enjoying the marvelous scenery, such as the rough waters here where the Pacific Ocean meets the Columbia River. The area is inhabited by ducks, cormorants, seagulls, and all sort of God’s creatures. The grandkids are getting a new pup this summer and she will probably have fun getting acquainted with our Yorkie, George.

This summer, the month of June will be a change of venue for me as I am scheduled for radiation therapy but when it’s over, we hope life will go back to normal…whatever that is. It is always a surprise, have you noticed? I hope I will have enough energy to see a bit of Portland, Oregon which is a beautiful city with thousands of trees, sided by two rivers with plenty of shopping.

One of the valuable lessons I have learned is to ask and accept help when I need it. That was a hard lesson for this independent woman. I had to realize by accepting help, we are allowing someone to be useful and to have a reward for that kind of caring. It’s also important to see our own limits and to stay within them. I’ve learned that the hard way also with the enduring of long nights of pain in my ankles, knees or sitter due to my own stubborn determination to do something myself. I’m trying to educate the clerks at the market what “Please, keep that bag light” means, but believe it’s a difficult lesson for them. I try to use my own cloth bags because they’re easier on the hands and since we live on a hill, a hole in a plastic grocery bag can send a cantaloupe careening down the street. They roll much faster than I can scurry. Sometimes I have to ask Jim to get away from work and come home for ten minutes to help me, but it’s not always possible for him. We do what we can do, don’t we?

Shopping has changed drastically for me. I often have to decide if I’m better off doing several per week or one huge shopping about every 10 days. For two folks and two dogs, we do seem to use a lot of groceries and sundries. We buy in bulk at Costco to save money and effort. We mostly purchase paper goods and medical supplies because their food is just too much quantity for us. The freezer can only hold so many items to grow frosty and freezer burnt. I often shop through Amazon.com so I don’t have to lift it and it is delivered to the front door. I’m afraid the UPS delivery man is developing a hernia from our dog food shipments. It’s also a great source for those hard to find items when you don’t feel like driving all over town searching.

My housecleaning habits have changed and as I’ve mentioned so often on here, I couldn’t exist without a Scooba and a Roomba, both made by IRobot. They are computerized vacuums and scrubbers which don’t need my help except to clean and empty them. They are both such back savers. I’m waiting for someone to invent an automatic vacuum for stairs. Let me know if you hear of one. I also like the Swiffer products for dust, dog hair, etc. This includes the Swiffer squirt mop which is great for quick clean-ups. Just in case you’re wondering, no, you can’t eat off the floor at our house and yes, I have become more slipshod in my battle with dirt, dust and dogs. It used to bother me but I’ve made many choices which are better for me because my husband and I, and our critters, come first. I’m not the personality type to have a housekeeper. I’m just too private and don’t care for the idea of strangers in my home. That’s just me.

As far as laundry, it has always been in the basement of our three stories home. Two years ago we bought a stackable washer/dryer set to put in the corner of the kitchen and that has been great for me; although a bit noisier. I recently found a light weight laundry carrier online which I like very much to tote laundry up and down the stairs. It has a handle and can leave one hand free to hold the railing when going up and down. The few times I have tripped and fell, I had both hands full. It’s now a motto of mine I try not to forget.

For safety at home we have rubber treads on all of the outside stairs and carpeted the entire indoor stairs. There are also rubber pads beneath each throw rug to keep us from that careless and dangerous indoor skiing that always ends so badly. Don’t we have enough challenges? I know I do without being careless.

No, I’m not Mary Poppins and my life is not “spit-spot” but it is doable and most importantly, my dear man and I are facing these challenges one at a time, one day at a time and looking for the joy to be found under the most difficult of circumstances. It’s a gorgeous time of year here in the Northwest. Rain every few days means that God does most of the outside watering for me and I have an abundance of indoor plants blooming. The dogs are always acting up and causing mayhem in a comical manner as we tread this road we’ve been directed onto. Happy traveling to each of you, my fellow trekkers. Hang on, hang in but don’t get hung up on the little things and instead, search for the meaning, the joy and the lessons which will enrich your life.

79 thoughts on “THE PRACTICAL SIDE OF LIFE WITH CHRONIC PAIN

  1. Sounds like you’ve got your life pretty well planned out. We can make our plans but the outcome is in Gods hands. As we all know. You are an encouragement to me. I had nose catherization yesterday, and today a full blown flare with my back, shoulder, and knee in a lot of pain. So, I have learned to stop and take easy for today. I have company coming for dinner tomorrow, so I need to be ok to do that. It’s fun and I enjoy it.

  2. Sue, you hit a nerve when you mentioned asking for help. This has always been extremely difficult for me and I am rapidly coming to a time when I will have no choice. I have added diabetic neuropathy to my essential tremors and it looks like my driving days are about over. I live by myself 10 miles from the nearest town, so big changes are coming. Right now I plan on staying here until September, after that I will be with my son and his wife in Houston. That means a whole new batch of doctors, leaving friends and all that other stuff. I’m going to use Tonie as a role model here. I will keep telling myself that if she could do, I can do it. At almost 84 change is difficult, but that is just an excuse. Anyway thanks for the blog, good luck to you and Jim. My prayers and positive thoughts. Janet

    • Janet:
      Yes, you can !! Change is GOOD ! So sorry about the neurapthy, my sister has that. Her shoe selection has been changed a lot. Houston ! Wow great city ! I have a friend there, guy I used to deal with in the industry I worked in. I know you will have a lot to get used to, especially having people with you all the time and giving in to having them do for you, BUT…it will be better ! You are in my prayers love. Enjoy your life and enjoy your son ! You are a strong woman and I know you will be blessed !
      Love
      TOnie

      • Thank you Tonie. I appreciate you so much. So many times what you describe in your day to day life hits home with me. I have had chickens, adore horses, love the country, am very independent. My thoughts and prayers are always with you. Love, Janet

    • Janet, I will keep you in prayers. You can, you can, you can! Think of it as a new adventure! You’ll be trying lots of new things, meeting new people, and adding to their joy. 🙂 Remember, God will be with you, and so will we. 🙂

    • Janet dear, I’m certain this is hard for you but equally certain it’s coming toward each of us as we age. I’m not all that far behind you. Our independence is so valued, isn’t it? I pray you have kids who are kind and loving and will treat you as you deserve to be treated. Prayers and hugs, Sue

      • Dear Sue, Thank you for understanding. Everyone on the blog has been so kind and helpful. I’m so glad to see you writing, Know that you are always in my thoughts and prayers. I may be leaving some dear friends in Weatherford, but I can take all of you with me.

        Love, Janet

  3. First of all Thankyou lyn,Janet and Brenda for your welcome thoughts
    Sue
    Such Brilliant writing and it was an enthralling story that kept me racing thru it
    Like a good book
    I recognise all the feelings and most of us must have a similar day .i am thinking about you and hope you may be reading this even if not up to writing. Love you sue
    Brenda
    The sale of those items must have been bitter sweet.it must feel good to have those family items with you ,but sad you had to pay for them
    But how wonderful that it was that that got your family united again,like a fairy story that always comes out right in the end

    Janet
    Yea I do that too ,use the folks here as role models, it sure does help!
    September will have something to look forward to tho for you. Your family round you and to have someone close by. With Christmas then round the corner it will be a warming feeling to have family close by
    Nah 84 an excuse , no it’s got reason there ,and I think any of us would feel the same
    Well I’m just waiting to hear my DD has landed safely from Greece and her holiday.so I’m gonna switch off now to check that site
    Lyn hope you get that car fixed pretty dam quick to get out and about in it
    Chris

    • Chris dear, you are always so complimentary to this old writer. I read ahead to see your DD had a wonderful time in Greece..wow. What a sunny, blue place with such beauty, at least I’ve read and seen pics. I know you have so much to be concerned about with DH and your Dad. They both have my prayers as do you. Life isn’t for the feint hearted but somehow we make it, don’t we? Just know dear girl that we understand as close as we can to how you feel and what you are feeling. I hope all of this gets cleared up soon for your DH regarding his photography program on the comp. What a pain and how frustrating it is. Jim claims no worry about his upcoming surgery…men! I had to see our skin doctor the other day who also diagnosed and did the first surgery on Jim’s melanoma and he told me he thought it would be alright, also. He said it was shallow enough not to worry, but deep enough it needed to be surgically examined. He also commented to me about having yet another problem, breast cancer. Hey, I said, it wasn’t my idea. Very nice man. Hang in there sweet friend. Try to find the joy. Love, Sue

  4. HELLO…….THANK YOU SUE FOR ANOTHER THOUGHT PROVOKING BLOG. I DON’T KNOW HOW YOU MANAGE TO DO IT IN THE MIDST OF ALL YOUR PROBLEMS THINKING OF US IS SO UNSELFISH. I LIKED THE BIT ABOUT YOUR PREPARATION FOR THE DAY, SOMETHING MY MOM ALWAYS INSTILLED IN ME, “GET UP. DO YOUR HAIR AND FACE” NO MATTER HOW YOU FEEL, I TRY TO HEED THAT LESSON. IT MIGHT BE DIFFICULT TODAY THOUGH, WOKE UP WITH AN EYE LIKE A FOOTBALL, DON’T KNOW WHAT HAPPENED IN THE NIGHT, MUST HAVE BEEN FIGHTING IN MY SLEEP.
    SUCH GOOD NEWS WITH CHRIS, SO RELIEVED ABOUT HER . I HOPE EVERYONE HAS A LOVELY DAY, WE ARE TAKING LIZ OUT TO LUNCH AS A THANK YOU FOR HAVING THE DOG WHILST WE WERE IN THE UK, THEN ON TUESDAY IT WILL BE DH’S BIRTHDAY, A LOT OF COOKING TO DO THAT DAY….LIFE GOES ON HUH!!! WELL HAVE A GOOD FRIDAY MY DEAR FRIENDS, AND PLEASE GOD HE TAKES CARE OF ALL OF US……SUE , THINKING OF YO, AS YOU KNOW I AM…….LOVE JENNIE XXXXXXX

    • Jennie, what they hey is going on with your eye. My goodness. Pray it is better today. It could be anything from an allergic reaction to an insect bite. Cold compresses should help. I’ve been using a sleep mask and it does keep the moisture in the eye. Let us all pray it is short lived.
      I’m facing a weekend of rest, laundry, some mild cooking, a bit of shopping, etc. Lovely day here today after a light shower last night. Have a few porch plants to water but mostly planning for a long week next week. George did very well. We just have to watch leaving him in the car in his kennel. He yips a lot now. Think he’s spoiled? As long as keep him full of Dramamine which we sneak into cheese for the long trips to and from home. He has admirers wherever we go.
      Please take care dear lady. Much love, Sue

  5. Jen watcha been up to there…perhaps laying on it ..but does sound peculiar
    How’s Sacha ? Have a good lunch out

    DD rang me and she landed ok at heathrow .had a great time.apartment by the sea in a bay on an island ,and on and on! Also she rang me at 4.30 am ,but I was awake thinking she mite ring that she landed ok
    Too blimmin hot for me! No point bragging to me about that! It’s been not tooo warm here,just right.like goldilocks
    Ok folks done a few jobs in the garden and now resting before some shopping
    Back later Chris

  6. Good am all !
    Sue it was an excellent blog !! Like Chris I was racing thu it like a novella ! So many things we do alike. It is Friday and I am exhausted from working all week, yet I am going to go and get in the pool and relax this old tired body in the soothing waters. I have an appt with the trainer this am to set me up a weight routine. She also has RA so she can commiserate how I should do.

    You know you are in my prayers this am. I am praying that the after effects of the radiation are minimal. God bless you sweet Sue and your dh Jim. He is also in my thoughts and prayers as you both go thru this journey. Has it already been 2 years since you bought your washer and dryer ?? Lord how the time does fly !! GOd bless you dear friend, I love you and want you to be well and happy again. Take care and let us know how you are doing when you feel up to it.
    Love
    Tonie

    • Tonie, I think your quest for better physical stamina and strength is wonderful and admirable. The pool does sound wonderful and I am envious of you. Hope your garden is growing beautifully and dear new Rufus is getting his voice.
      The treatment is going fine thus far but it is early for the whole burn routine with radiation. The hardest parts thus far is lying on that hard metal table and having to have my arms up over my head for twenty mins. My left one is so stiff and just doesn’t want to stretch that far. They’ve ordered PT with a couple of young women who are experts on breast post op PT. I’m looking forward to it. Do take care and keep filling out those blasted forms for your disability..keep reminding yourself you paid it in for years and it is yours!! Love you, Sue

      • Oh my, Sue, arms overhead for 20 mins? That would really bother me. I had to do it for an MRI once and thought I wasn’t going to make it. It really hurt. I pray it doesn’t bother you as much.

      • Lyn, Yep it does hurt and they have to put my arms back down for me…no feeling. I have bad shoulders, a bad cervical spine and now the surgical side doesn’t stretch. Hope PT helps. Thanks for understanding. Love you, Sue

  7. HELLO……HAD A LOVELY LUNCH WITH LIZ….ATE TOO MUCH, BUT WHAT THE HECK……BEEN SITTING AWHILE BEFORE I NOTICE I HAD A STICKY LABEL STUCK ON MY T-SHIRT RIGHT DOWN THE FRONT OF MY CHEST….FREAKIN’ HECK, IT HAD MY SIZE AND EVERYTHING ON IT, COZ THE SHIRT WAS BLACK AND WHITE IT DIDN’T SHOW, BUT THE BLOOMIN’ WAITER KEPT GAWPING AT ME, I WAS JUST ABOUT READY TO LAY HIM OUT, TILL I SAW IT………WHOOPS.
    HOPE YOU ARE GOING TO HAVE A NICE WEEKEND, WITH ENOUGH SUNSHINE TO LIFT YOUR SPIRITS……LOVE YOU ALL…JENNIE XXXX

  8. Hi All, Just got home about an hour ago and am exhausted. I’m fine from the radiation, keeping some great vit. E cream on it, two treatments down, 26 to go. Must rest and will be back to chat with all in an hour or two. Chris, saw that you don’t have Breast C, so relieved for you as I know you are. Janet, it will be alright. So much depends on the personalities involved in moving in with family, don’t you think? Back later, love you all, very windy outside. George already asleep. Jim pooped. Love you, Sue

    • SUe:
      SOO glad to hear from you and know you are making it alright !! You rest up and just jump in when you get a chance. Spoke with Millie a while ago and she sends her prayers for you and Jim as well. They are both feeling poorly, so some prayers for them as well ! Give Georgie a little hug from me as well !
      Love
      Tonie

      • DEAR SUE, I’M ALSO SO HAPPY TO HEAR FROM YOU. SOUNDS LIKE YOU HAVE EVERYTHING UNDER CONTROL OVER THERE. I’M SURE GEORGE WILL GET USE TO BEING THERE VERY SOON. PRAYERS FOR YOU EVERYDAY AND ALSO FOR DH.
        LOVED THE BLOG AGAIN THIS WEEK. PRINTED IT OUT ONCE MORE – FOOD FOR THOUGHT! IT WAS SO INTERESTING TO SEE WHAT YOU DO AND HOW YOU DO IT AND THEN I REALIZED I DO MANY THINGS THE SAME WAY NOW. THE ONE BIG PROBLEM I HAVE IS ASKING FOR HELP. THAT IS VERY DIFFICULT FOR ME, BUT WHEN I DON’T LIKE YESTERDAY MORNING I PAY THE PRICE FOR BEING IMPATIENT. YOU WOULD THINK BY NOW I WOULD BE USE TO WAITING……
        JANET I’M TOTALLY WITH YOU ABOUT ASKING FOR HELP. BIG CHANGES COMING YOUR WAY. HOPE IT ALL GOES SMOOTHLY.I’LL BE PRAYING FOR YOU DEAR LADY.
        BRENDA SO HAPPY YOUR GS WILL BE GOING TO THAT SPECIAL SCHOOL, IT WILL BE WONDERFUL FOR HIM TO FEEL THE LOVE HE WILL GET ALONG WITH ALL HIS NEEDS BEING MET.
        PRAYING THAT THE INFUSION GOES WELL WITH LITTLE SIDE EFFECTS. ALWAYS IN MY PRAYERS
        DO TAKE GOOD CARE BRENDA YOU ARE AN AMAZING WOMAN.

        LOVE TO ALL, HAPPY JUNE 1ST – IN 11 DAYS I GET TO SEE THE INTERNIST. A LITTLE NERVOUS BUT SO VERY HAPPY.

        GOD BLESS XXX

  9. Sue, so happy to hear that your first two treatments went well, but I never expected another great blog with so much food for thought! How is your hotel room and did George settle right in like it was home? Both you and Jim have been in my thoughts the last two days! We have been very busy getting grandson from his regular kindergarten to his new school for lunch and the afternoon, then picking him back up at three to spend a few hours at daycare before his Dad picked him up, as we were just too exhausted to bring him home with us, but we will do that in the next school year. His hours at the Children’s Hospital school will slowly increase as he settles in, and eventually will be with his regular class one day a week, and at his special school four days a week, but since he is doing so well, I think he will be making the transition quite quickly. His parents’ don’t understand why he appears to enjoy the new school so much more than his regular class, but he gets so excited when we arrive.

    Chris, none of the cousins minded paying for the family keep sakes at the auction because in past generations, a son would take over the farm and the older generation would remain and be taken care of, and often there would be three generations living and helping out together. When my mother was young, as well as her grandparents, there was a blind uncle living with them, and later when I was young, a widow who had been a neighbour, spent the winter with my grandparents and my uncle and his family, and she made the greatest ginger snap cookies … but times have changed! There is no one to take over the farm (my uncle had a son but that is another sad story) and my uncle is now in a nursing home with Parkinson’s and other medical problems, so the farm is really his pension plan. Also, how could we possibly decide who would get what, and there was FAR too much for family to share! A sale was definitely the answer, although it was sad! My uncle’s wife is in poor mental health and had recently moved into a small bungalow “in town” so their daughter, my cousin, was left with all the preparation for the auction, but cousins appeared from near and far for weekends, to tune up tractors and haul furniture out of the loft and shine silver … I only wish I could have done more, but I know they all understood and were glad I made it to the sale, because there were days I doubted that I would. One thing I forgot to tell you that my uncle was present at the auction and made sure that each niece and nephew got a cow bell with its’ leather strap that had once been around the neck of one of the farm’s cows … we haven’t decided how to display ours yet, but I’m sure it will be at the cottage! The wish of the three deceased sisters of this family was that we would all stay close, and I think we have fulfilled their wish … and we also, one weekend each summer, all that are able get together at someone’s home or cottage.
    I didn’t mean to ramble on again, but I have my first Actemra infusion on Wednesday morning so please keep me in your prayers. As with all these drugs there are risks and side effects, and this particular drug must be given with a MD available, and I am receiving it at an RA Research Centre. My rheumatologist’s nurse called me today to go over some precautions and to wish me well and said that they are hoping I will experience positive results quite quickly, which I thought was so nice, especially since I am new to their practice.
    Sue, hope next week goes well also, and I am with you in spirit and I hope you can feel all our positive energy surrounding you!
    Love and prayers for everyone. PM Brenda

    • Nana B !
      Such a nice long post from you ! I so enjoyed hearing your family history ! I too , love those things. I think I missed a couple of posts on the last blog, so I must go back and read them. The cowbell sounds so sweet ! I would love to have one of those ! Maybe you could put it in a shadowbox of sorts. I bet your ever loving hubby could design one. So sad that no one does want to stay and farm these days. There are quite a few family farms that were here and now have been sold due to lack of interest by the family. Now there are homes on the land or people own it that I have no idea who they are. I am so glad you are getting your new meds and will be praying that they work for you with NO side effects. Sounds like your new RA Dr is a good one ??? Grandson’s new school sounds great. He is excited about it because they cater to him and his needs ! I am excited for him as well. Such good things can be done for him and with him. I can see his little curls a bouncing as he runs into school ! 🙂 Give my Teddi a squeeze for me and his brother as well. They are so sweet. You take care and let us know how the infusion does okay ??
      Love
      Tonie

    • Brenda dear, how wonderful your family sounds. The congruity of the generations is wonderful. I’m sure like all of us there are sad stories to be told but the tolerance and love are amazing. You had me drooling talking about the antiques. We paid my Mom for some of her antiques because she had to go into convalescent cottage and eventually a home but we figured we had more money than she did and I didn’t mind paying for them at all. My sister was furious with me but so what. Your cowbell sounds like great fun as does the gorgeous furniture. Strange how those objects live on past us and if only they could tell stories about families…sometimes they do.
      I’m excited for you to be getting some new medication, albeit in the experimental line but you are an unusual case and we’ve all known that, right dear girl? Sounds like you have made arrangements as have your medical caregivers to keep you safe. Prayers on Wed. dear heart.
      Yes, George pretty much made himself at home but didn’t eat well. Think as the weeks pass he will grow more accustomed to it up there. We’ll have the same room. It’s a bit dull but I feel they probably leave the fancier rooms for the non-dog owners which I understand. It’s clean and very quiet up against a Bern of trees and berry vines so it’s quiet. My appts are in the morning so we will have the days to watch movies, rest or do a bit of sight seeing. We’re fairly close to some Chinese gardens, the Portland zoo, etc. I just find it a bit disconcerting getting around in a city. Our Astoria is more like a village and the traffic doesn’t exist except occasionally when tourists are here on weekends. So much traffic in Portland as the hospital and med facilities are huge but lovely and they are near a nursing school and the university of Portland. There is a wonderfully refreshing feeling of “young people” in the air and makes me feel old and used but that’s life. Much love and thoughts for you in the coming weeks dear friend, Sue

  10. Brenda
    What a wonderful post.idid enjoy it.it was great to hear about your family history. You must know I am so interested in all things like that. Don’t times change and people with them.but ultimately family is family.
    How good to be given that cowbell and to have in your cottage.
    Your uncle who has Parkinson’s ,that must gave been a sadness for him to see it all go,but in a way comforting to know that All the family were there together I’ll be thinking of you Wednesday am,
    Jen
    You made me laugh with you advertising you size!
    Tonie
    I think you are busy of late,go easy eh! I don’t remember if I thanked you for your prayers I think I did on the other blog,but if I didn’t I’d be mortified,so Thankyou again
    Sue
    So good to hear from you.such a long trip for you both
    You go at your own rate this w.end
    Be thinking of you thru out all the next weeks. A prayer for you both and be thinking of Jim Tuesday
    Those puppies (on email)all look great but I think Beth’s one stands out and the one I would have chosen,but a difficult choice to make. What fun you will all have
    Well it’s Saturday morning so gonna get up go buy a newspaper and off for our usual b.fast
    DH not good again on new bp tabs.had to increase them ,bp too high,so he is so tired and balance no good, mite wait to see how he is before I plan anything
    Back later. Chris

    • Chris, just to explain the pups to all.. Our daughter and SIL and kids will be getting an adorable large English chocolate lab. She is related to their dear Herb who they lost a few months ago which makes her even more special. Sue

  11. Morning all:
    Please welcome DENISE JACKSON. She posted on the other blog and I guess it didn’t show up until this one was up ! Glad to see you on Denise ! Please post more on this blog.
    Tonie

  12. HI DENISE….WELCOME, DELETED THE OLD POST SO DIDN’T GET TO READ YOUR POST ON IT…..HOWEVER AS TONIE SAYS, KEEP POSTING SO WE CAN GET TO KNOW YOU, AND YOU US, THOUGH YOU MIGHT CHANGE YOUR MIND WHEN YOU READ SOME OF MINE…..ONLY KIDDING.

    SUE….SO THANKFULL YOU GOT THROUGH ROUND ONE…..YOU ARE ON YOUR WAY NOW, GOOD LUCK AND MANY PRAYER FOR JIM ON TUESDAY, AND LOTS OF HUGS FOR GEORGE FOR BEING A GOOD BOY, I BET JAKE WAS GLAD TO SEE HIM BACK…….I LOVE YOU……JEN X

    BRENDA….I TOO ENJOYED YOUR POST, WRITTEN TO YOU……TAKE CARE DEAR FRIEND…..JENNIE X

    TONIE…….HOPE THE WATERS HELPED EASE YOUR ACHES AND PAINS, HOW WONDERFUL FOR YOU TO HAVE YOUR OWN TRAINER, YOU LUCKY GIRL, I AM IMAGINING YOU EMERGED IN WARM WATER…..OH MAN! I COULD USE SOME OF THAT…..ENJOY…LOVE YA ……JENNIE POO XX

    LOVE AND PRAYERS FOR EVERYONE…….JENNIE XXXXXXXXXXXXXXXXXX

  13. Hya Denise
    Can’t find your post on the older blogs , but hi anyway and hope to hear from you again
    Suzanne
    Well the dreams settled down now,but they will set off again worse when I come off them,even if I do it slowly .i think the answer us to stay awake!
    The computer is ok again but just can’t seen to download the updates for part of Photoshop .it may be to do with the internet speed at the moment,so DH will try again when up to the frustration of it!
    But hesitating to do it as it us all working at moment( huh fingers crossed)
    Jen
    just sent you an email,about neoprene fingerless gloves

    Ok folks gonna rest a bit been cleaning etc
    Chris

  14. Hello, everyone! Sue, this blog post read so smoothly, no wonder we all breezed through it! I’m so glad your first treatments have gone well. Rest, rest, now. Prayers for both you and Jim.

    I was busy yesterday and didn’t get on here until today. I started replying above, but then realized there were so many ahead.

    Denise, welcome! I’m looking forward to getting to know you!

    Chris, et al, my little car is finally home! It felt so good to be driving it again. Yesterday was lovely here, so we went to Deck Night at my Mom’s last evening with top down! What fun.

    Jennie, what are doing in that bed, girl?!! I do hope that eye is better today.

    Brenda, what good news – your GS loves his new school! Always a relief and a great sign. It sounds like you are in good hands with your new Rheumy. Fingers crossed…

    As Sue said, we should take our meds with food so I need to get some in me. Have a wonderful weekend, everyone!

  15. Hey Donna !! I didn’t see your post, I will have to go back and look ! Please post and let us know more about you !
    Tonie

    • I GUESS DENISE AND DONNA WANT TO KNOW A BIT MORE ABOUT US BEFORE VENTURING FORWARD, BUT WON’T IT BE GREAT WHEN THEY DO? WE ARE ALL A BIT SHY AT FIRST, EVEN THOUGH WE WILL NEVER MEET……BUT TO SHARE OUR TROUBLES IS TO HALVE THEM….EXCUSE THE CLICHE’ HOPE ALL IS WELL WITH EVERYONE……EXTRA PRAYERS FOR SUE FOR TOMORROW, AND FOR JIM TOO……IT WILL BE A RELIEF WHEN THEY ARE BACK HOME SAFE AND RESTING……JENNIE X
      PS. LYN, FORGOT TO SAY, THE SWOLLEN EYE IS OK THANKS…..IT HAPPENS FROM TIME TO TIME, AND I DON’T KNOW WHY, FEELS LIKE A STYE IS ABOUT TO COME, IT WEEPS FOR 2/3 HOURS, I BATHE IT AND IT SETTLES DOWN….BEEN DOING THAT SINCE HAVING THE SHINGLES 16 MONTHS AGO………XX

  16. Pingback: Week (4) My Saving Ways: Prepping | lovelyseasonscomeandgo

  17. Good morning my Peeps !
    The one morning I could sleep away, I must get up and go be thankful for all ! 🙂 Oh well, He gives me the strength to keep going. Don’t He ?
    Did I tell you I went by to see my friend Micheal ? Yeah, had a nice chat to catch up, he had let his phone go due to lack of funds. Well, he applied for disability in Oct of 2013, and got approved in MARCH ! He has the same back probs as I do, that is all. Oh well, I was happy for him, but it really put me in a funk !! I know it is in God’s timing all things come about, but it is hard not to get depressed about it all, and I am loosing the battle.
    But on the brighter side, the neighbor of Ms Alice is a guy my brother and sister grew up with. He has a home in Hawaii where he and his wife winter, one in Fla and one in New York (he is a Dalton too ) Anywho, he brought me a bag of Kona coffee, vanilla macadamian. I thought oh yuk, flavored , but it is so awesome, just a hint of flavor, not overpowering like most of them are. And just in time as I ran out of coffee !! God is good huh ?
    I see Rufus is out of the pen again, I must have left the neting off the gate, he flies over it 🙂 He is coming right along with his crows. SO funny !Well one more cup of awesome coffee and I must get ready fro church.
    Please have a blessed day all, and know I am thinking of you all. (even those who don’t post)
    Love
    Tonie

    • TONIE…..THAT CAN’T BE RIGHT OR FAIR……DON’T MEAN I AM BEING NASTY ABOUT SOMEONE GETTING WHAT THEY NEED, BUT HECKIE THUMP LOVE, YOU SHOULD HAVE GOT WHATS YOURS A LONG WAY BACK, I THINK YOU NEED TO MAKE A NUISANCE OF YOURSELF SO THEY DON’T FORGET ABOUT YOU, COZ THEY WILL YOU KNOW, ITS THE SAME IN THE UK, YOU HAVE TO FIGHT FOR EVERYTHING….PLEASE GIVE THEM A REMINDER YEAH?? AND SAVE ME SOME OF THAT THERE COFFEE……LOVE YOU MATE….JENNIE POO XX

  18. Tonie, you keep reminding me of my Grandma with all your chicken stores. Once when I was little but old enough to remember, (maybe because it was quite traumatic in my young life at that time) the boy across the road from the farm came over to play, locked me in the chicken coop, and ran away home! There I was until my Grandma came looking for me … which seemed forever at the time, but it was awhile! I never liked to gather the eggs after that experience!

    Someone said they were sure there had been unhappy experiences at the farm, and such is life! My Grandpa was born there and had polio as a young boy. His hip was badly damaged and his right leg ended up shorter than is left, so he wore a built up boot on the right side and had what appeared to be a very painful gait. I can’t imagine him walking behind a plough with a team of horses, but that he did! Something else didn’t know was that when I tried gold shots a number od years ago, my mother informed me that Grandpa had received gold shots too, so apparently he also suffered from RA, but he was so much fun! He loves He would play the mouth organ and when was little I would step dance! There was another very sad event in the family. My Grandpa’s brother, my great uncle Jack, lived in the farm across the road, and had a daughter the same age as my mother, and they were great friends. She married my uncle, my Dad’s brother, and the two men worked together in the family business, and the cousins once again lived across the road from each other. One Sunday afternoon my uncle was in a company truck with his wife and infant son and they were hit by a train … there were no survivors! My brother was born the day after the funeral and bears my uncle’s full name. A large wedding picture was on display in my parents bedroom for many years, the aunt and uncle I never got to meet. I can’t imagine the grief they felt. The newspaper clippings said my infant cousin was found on top of the train engine.

    Enough rambling with my stories …..
    Sue, I am having my infusion at the RA Research Centre but the drug is approved, so possibly there is a study going on, so I will ask the nurses. I am a bit apprehensive of course, but I’m sure all will go well.

    Lyn, I looked through the beautiful pictures of you singing and how wonderful to have such talent. In one picture I noticed you were sitting. Is that because you found it too difficult to stand at that time? I hope you can continue to share you talent for many, many years to come.

    I don’t think I have told everyone about my grandson, something until recently I found too difficult to discuss. He is our beautiful boy who until a recent hair cut had a head full of golden curls … and he is autistic. He was diagnosed just after his second birthday and I first I hoped and prayed it was a mistake. They have been told by all who have tested him that he is very bright (his mother is an aerospace engineer) but he doesn’t speak! His parent’s sent him to a private school from the age of two until he started Jr. K this past fall, but saw little improvement although it cost more than sending him to university … but there are no regrets. His new program is run by our Children’s Hospital, so is covered under our provincial health care plan and he loves it! He has been trying hard to communicate recently so we feel his turn with the program may have come at just the right time. He also is having chiropractic treatment and this week he told the doctor that something was red, so the doctor then asked Connor the colour of his shirt and he said black … and it was!!! He got an I Pad for Christmas and it is amazing what he does with it to the point that his parents are wondering if he can read … so we have no idea what he has stored in his little head, but we are praying that soon he will tell us and end all his frustration. On Saturday his Mom took him to the soccer field to play and he yelled NO, so she took him to the splash pad and he again said NO, so she went home and got his life jacket to go the wave pool and he screamed YES and clapped his hands! This attempt at communication is all new so we hope that they can find the key to help him unlock his speech that we know is hiding inside his beautiful head! He has a pretty little sister Neve who is a very bright two year old and perfectly normal. She has her special time with her Mom on Saturday morning at gymnastics, followed by lunch when Neve is allowed all the treats they don’t have at home because of her brother’s special diet. As well as helping with Connor we try to give his parent’s “date time” once a week because they need couple time. During the month of June we will be taking Connor to school and picking him up the four days he goes to the hospital school until regular school is out for the summer and then his father, a teacher, will take over. We don’t know what transportation will be arranged in the fall, but the program runs for nineteen months for each child. All prayers are welcome for this dear little boy we love so very much.

    Jennie, just want to say you crack me up with all your British words.

    Everyone, it is time for bed so I must let Teddi say good night to his Bella, lol.
    My thoughts and prayers are with each one, and especially with you Sue, tomorrow.
    Love and Hugs … Pommum Brenda

    • Brenda in Canada, How wonderful to get such a heartfelt, long entry from you. I know you’ve been busy and dragging it in recent months. I’m so pleased to hear of Connor’s progress. That must bring joy to you and your husband. You two have a great deal of love, effort and time invested in that dear little guy. I remember chatting with you about the Ipad and I understand that there is so much inside that little, very bright mind that will be unlocked. Sweet lady, I know it has been a heart breaking run for you this road as a Nana. Please know you are not alone in your caring and prayers. It sounds like little Neve is getting her time alone, which is great. She needs to have a chance to bloom in her own sunshine out of the shadow of her brother’s special needs and I know you know and feel that, also.
      Thank you for sharing your tales from the family farm. Each of us have such family stories and you know, so often, even our kids don’t know the stories to pass them on. I think it’s important for each of us to know what our ancestors experienced, don’t you? It brings a special congruity to life and helps us to have more compassion for others and for ourselves. Love you very much and know what an effort it was to write so much but it was all wonderful and enlightening sharing. The new drug sounds full of hope. Sometimes it’s only up for us. I told someone the other day that the door I chose for radiation therapy was the only door open to me that made sense. Hang on dear heart. Love, Sue

    • POMMUM….SWEET LORD, THAT STORY MADE ME CRY, WHAT A DREADFUL THING TO HAPPEN, THE PAIN OF THE FAMILY MUST HAVE BEEN AGONY TO BEAR…….THANK YOU FOR SHARING SUCH PERSONAL GRIEF…..GLAD MY BRITISH WORDS BRING SMILES PETAL, ITS ALL JUST NORMAL TO ME, AS YOURS TO YOU………TAKE GOOD CARE OF YOURSELF, YOU ARE VERY SPECIAL…..LOVE JENNIE XX

    • Nana B , Pommum:
      I do so love your stories about your grandmothers’ farm ! 🙂 I am glad I remind you of them but sorry for the traumatic experience of the henhouse. I am about ready to send that rooster BACK to his former home. He is out every morning. I am going to clip his wings tonight as I know he is sailing out somewhere. Your uncle and aunt, what a tragedy ! Where I live, we always keep up with cousins, etc. (I always said it was so there was no incest because of small communities). So brother and sister marrying brothers and sister, their kids are what we call DOuble first cousins. My mother and her brother married brother and sister. My sister and brother (they are my half) are double first cousins to their kids. Confusing huh ?? ANd your grandpa, you know those were strong people, farmers. Especially the men, they may be ailing but you would never know it. He loved you so much he wanted to make you happy !
      Take care my dear and prayers for the infusion.
      ‘Love
      Tonie

    • Pommum Brenda, first I must say I think they are on the right track with your dear grandson. You may or may not know my background is in music education and I have had some training and insight into autism. Even before you said anything I gathered that’s what was going on with the dear little guy. It does seem he is trying to communicate now and I know you all will be patient and supportive. I agree with Sue, the individual time with Neve is also spot on. Please do continue to update us on those dear grands of yours!

      My grandparents had a farm, came from farming family as well. My Mom, of course, grew up on the farm. My grandfather was the toughest, sweet man you’d ever meet. He broke his back at least once, served in WWII and fought in some of the nastiest, and not surprisingly had severe back pain. My grandparents also don’t like taking meds. I think the strongest he took at home for it was Tylenol. Incredible. Amazing the things you find out when family gathers and talks, isn’t it?

      Glad you enjoyed the pics. Yes, I do use a stool and music stand whenever I need to. Sometimes pics are taken before a concert, so I can elect to stand but some are taken during concert, so there is a mix. 🙂 I am very fortunate to sing for a conductor who is very gracious and accommodating. She always as been. When I joined the group we had a gentleman with a lovely tenor voice who was confined to a wheelchair. He even went with us on our first overseas tour in Scotland and England. We all did our part to make it all work for him. Needless to say, many go out of their way to check on those of us who have pain issues still today in the group. I’m not the only one who has to use a stool or chair when necessary. 🙂

  19. POSTED ALREADY, BUT BEING THE SILLY SENTIMENTAL SADDO THAT I AM, I JUST WANTED TO TELL YOU ALL THAT YOU ALL MEAN SUCH A LOT TO ME…….THERE I’VE SAID IT NOW…………………..JENNIE XXXXXXXXXXXXXXXXXXXXXXXXXXXX

  20. AWWW !! Jennie !! WE love you too !!
    Yeah it ain’t fair, but life is not fair is it ?? I have been in touch with my Congressman and he has sent me out a form to give him access to my records. He also said he has passed it on to those who can help me. So keep praying it will come about. I was supposed to sit with Ms ALice today as I got to the Dr tomorrow, but she has a cold and is going ot stay abed today, so ……I guess I will go and work out and then come and help my sister with some things she needs done. I am pretty much caught up on my yard work for a week or so, then it will be back again 🙂 Take care you !
    Love
    Tonie

  21. Hi all
    Well DH got bad muscle pain in nite inback..couldn’t move even his arms it set it off.so called dr out this morning and he said its muscle spasm from what he doesn’t know but cud be the new bp meds.so he has to cut back on them to see…..what a sh.t..it’s still bad but a bit better he can now make it to the loo
    He’s got Valium for his back and he was supposed to go for an INR test today so they are comming here to do it.but it takes him so he can’t move with the pain.he doesn’t have to move at all the pain still comes
    Hope he doesn’t have a spasm when they take blood!

    Brenda what a sad story of your family . I was caught up in it. So very sad,you just wish if you could go back and change time
    Your little Connor sounds a delight,I’m sure there will be a lot of new and exciting things to happen and for him to discover…what a joy for you
    Thinking of you on Wednesday I think it is for the infusion
    Sue
    You be good yea!
    Tonie
    Hope you hear quick from them people for the pension…and don’t be toooooo busy
    Ok later. Chris

    • CHRIS……SORRY I CAUGHT YOU ON THE HOP JUST NOW, DON’T THINK THERE WILL BE TIME TO CALL TONIGHT SO I WILL TRY TOMORROW SOMETIME TO SEE HOW THINGS WENT. I AM WORRIED ABOUT YOU GETTING YOUR DH OUT OF THE BATH ON YOUR OWN…….PLEASE BE CAREFUL WITH YOUR OWN BACK…..WHAT ROTTEN LUCK, WISH I COULD HELP………………….I HOPE YOU BOTH MANAGE TO GET SOME SLEEP, AND THEN SEE WHAT TOMORROW BRINGS, HOPEFULLY SOME IMPROVEMENT……LOVE YOU…JEN X

  22. Jen
    It wasn’t too bad he is a bit better and can move a bit now ,but very painful.usually he cleans the bath but I did it this time as he is so stiff.he will take another Valium tonite so the spams hopefully don’t jolt him awake.it was awful last nite he was contorted with it
    Yea speak tomorrow ,look forward to it
    Love ya Chrisx

  23. HI…JUST TO LET YOU ALL KNOW, CHRIS IS HAVING PROBLEMS POSTING AGAIN….WILL BE TALKING TO HER TOMORROW, SO IF SHE STILL ISN’T ON, I WILL DO IT FOR HER.
    HAD A NICE DAY FOR DH’S BIRTHDAY, COOKED A NICE MEAL, A ROAST, A CHEESE BOARD AND A CHOICE OF TWO DESSERTS, AND OOOO ERRR THREE BOTTLES OF WINE……..I WAS GOOD THIS TIME THOUGH. HOPE YOU ARE ALL OK, WILL WRITE MORE TOMORROW…….HAVE A PEACEFUL DAY…MUCH LOVE…..JENNIE XXX
    THINKING OF YOU SUE……I LOVE YOU….JEN XXXXX

  24. SOUNDS LIKE YOU ALL HAD A GREAT TIME. GOOD FOR YOU JENNIE POO. HAPPY BIRTHDAY TO DH. LOVE TO BOTH OF YOU.
    THINKING OF YOU SUE AND JIM. HOPE ALL IS GOING WELL THERE. PRAYERS FOR JIM AND YOU. PLEASE LET US KNOW IF YOU CAN HOW THE OPERATION WENT TODAY. LOVE YOU SUE.
    XXX

  25. Chris you made it. I just got back from Drs spots . Left at 10 And got home at 7. Long day and I ampooped. Gold you had a good day with dh Jennie. I must have another MRI on rt shoulder and one on my rt knee. Then web will see how it goes. Talk to ya,all later. Off to bed.
    Love
    Tonie

    • TONIE…..HELLO MATE, YES IT WAS A GOOD DAY SPENT WITH MY DH AND FRIENDS, ITS WHAT ITS ALL ABOUT INNIT?? WHAT A LONG DAY YOU HAD, IT HAS REALLY TAKEN IT OUT OF YOU HASN’T IT? A REST DAY TODAY THEN!! HAVE YOU BEEN SCHEDULED FOR YOUR MRI’S YET, LET US KNOW WHEN OK?
      THINKING OF YOU PETAL….HUGS…JENNIE POO XX

      • No rest for the wicked me mate !! Sitting with Ms Alice today, gotta earn my keep !! No schedules as of yet, they will call me when they get them scheduled. Beautiful sunny day here. Enjoy yours
        Love ya
        Tonie

  26. Dear All, It’s 7:15 PM here in Portland OR. good old USA. Jim was scheduled to go into surgery for his more expansive excision and look at lymph nodes. Our surgeon called at 6 and said she got hung up on another surgery and was just taking him in. Beth came out at ten, after my morning radiation therapy and went in with us so it is a comfort but I got so tired at 2 PM had to head home to the hotel to rest. We’re waiting now at the hotel for the doctor to call as she said she would after a 1.5 to 2 hour surgery. Such a sweetheart of a doctor. Then after recovery will go over to pick him up and bring him back.
    I had the worst treatment ever yesterday. The ligament in my left arm is too tight and yet I have to lie there for twenty mins with both arms up over my head. Well, yesterday something broke down in the machine and it took another extra 20 and the nurse said it would be best if I laid there in that position so they wouldn’t have to reposition me. My reply was, “Maybe for you but I’m the one in intense pain and I’d like help taking my arms down.” I put them down with help.

    Update, they just called and Jim is heading to recovery room. They said he’ll be there about an hour then we can help him escape. Love to all, oh yes, my treatment today was better. I didn’t cry. I get so embarrassed when I cry in a frustratingly painful situation like that..Love to all..update later or tomorrow. They said Jim is doing well. Love you all…Sue

  27. THANKS FOR THE UPDATE SUE. SENDING HEALING PRAYERS AND GUIDING ANGELS FOR BOTH OF YOU. HOPE YOUR TREATMENT TOMORROW WILL BE BETTER. LOVE YOU SUE.
    GOD BLESS DD , JIM AND YOU MY SPECIAL FRIEND.
    XXX

  28. HI EVERYONE….CHRIS IS HAVING PROBLEMS AGAIN, SHE WROTE LONG POST TO YOU SUE AND SUZANNE, BUT IT HASN’T SHOWN UP…..WILL BE TALKING TO HER THIS AFTERNOON, SO WILL PASS ON ANY NEWS, IF THATS WHAT SHE WANTS.
    A MISERABLE DAY, POURING WITH RAIN, GIVEN UP HOPE OF SUNSHINE, THINK I WILL JUST SLIDE BACK IN MY SHELL…BUGGER IT……….LOVE TO ALL……..JENNIE XX

  29. Dear Sue:
    I was thinking of you during the night and praying for what I figured was an uncomfortable night for you both ! Now prayers for a good report on Jim and easier time of it for your treatments. I am glad that DD was there with you during this. Makes it better to have some company.
    My Groundhog killers strike again ! Ceasar “trees” em and Brutie kills em. The last cub, they got it on Monday. Now if we can get rid of the mama so there will be no more babies !! I have to leave it with him until he tires of posing ! 🙂 Then bring him in and bathe him cause he smells to high heavens. I hung a fern I was growing in a hanging pot on the porch and a bird is trying to build a nest in it ! I took it out twice and I really feel bad because all the work that goes into it. However, it will draw snakes to my porch with baby birds and we don’t like snakes !! I pray you have a restful day and that Jim has one as well. DO take care and let us know as you can.
    Love to you both
    Tonie

    • Thanks Tonie…we’re just hanging in, it was the only door to choose for each of us and we’re plodding on. Wow, it sounds like wild kingdom back there. Hope the prey don’t carry too many fleas, lice, etc. Those great canine hunters of yours..wow.
      We just have to get through it. Beth will go home after my treatment in the morning. Jeff, our son is flying in on Saturday so someone has to pick him up in Portland. Next week he’s my escort.
      You hang in dear heart. Love, Sue

      • Sue:
        Praying you are having the strength to go day to day. I have faith and hope that it will be given to you ! I know it was the only door open to you and because of that you will get thru it. Do take care and cuddle with sweet little George. Thinking and praying for you often.
        Love
        Tonie

  30. Dear Sue, you made me very upset when you said you were embarrassed to cry … there is nothing to be embarrassed about! You and Jim have been on my mind so much, and I am so sorry you have to go through this!
    Connor loves his new school and his transition is going so well that he will be full time on Friday! He is coming out of his quiet world! He points to the river whenever he can see it on his trip to school and says water and today he saw cows and said “moo” and laughed. He came with me to the first half hour of my infusion and got excited about picture of a retriever on the wall (he has a Golden at home). The receptionist got his I Pad up and running for him just before it was time to leave for school. Our son has inquired and there is no funding available from the School Board for transportation to the autism school as it is under health and not education, so his Papa will be very busy the next eighteen months. I can help drive if my feet and knees improve, but I can’t go alone with him because I am unable to buckle his car seat because of the damage to my hands, but we are thankful that we can be there for him.
    My infusion went well with no side effects at the time but a slight headache, but I am now experiencing some nausea and fatigue, but I wanted to say hi to everyone and check how Sue and Jim were doing.
    The nurse said that if this drug works … it works very well! Be back soon.
    Love and Hugs …. Pommum B.

    • Brenda dear, guess I really was so angry and had to speak up and that was part of crying. I felt the nurse was asking too much of me to stay in that miserable position and that made me lose it and tell her how I felt. It hurt fiercely. I’m sure the PT will help and that starts Friday. I’ve never been comfortable crying about myself with strangers. Family and friends? Totally different. Today I feel like something the cat dragged in after my 13 hour day yesterday. I couldn’t nap while Jim was in surgery…too anxious. He’s doing well today. Hasn’t had anything for pain, either being a guy or…he is heavy set and as nurses we remember heavier folks retain the anesthesia longer than thin people, right?
      I’m glad the infusion for you is over and now we’ll see. You were on my mind and heart today. What glorious news about Connor. I can imagine the thrill you have with each word. All the driving, whee!! Hate that but life can be so inconvenient, can’t it. Right now I want to go home so badly to my bed, my lamps..this place is either dark or too bright, my heater, etc. Four and a half more weeks to go so better stop moaning, huh?
      Here is the hope that your symptoms subside and the news is blessed indeed to hear this med works great if you’re the right patient for it. Hang on sweet girl and I will also. Results hopefully on Jim this Friday. Incision has a JP drain and we’re tending to that. Much love, Sue

      • Sue, continuing to keep you and Jim in my thoughts and prayers. Ironically, I had a regular derma. appt. yesterday and doc found two questionable spots on my back – where I can’t see or feel, really. Last year I had a pre-cancerous spot that I found on my décolletage that was removed. These he said look like what can develop into basal cell cancer, I think. Anyway, he biopsied both and we’ll see what comes of it. Much easier than dear Jim had it this time around. So while you are tending to a drain, my DH is removing band aids. 🙂 Praying for strength and healing for you both. 🙂

      • SUE….PRAYING ALL WILL BE WELL ON FRIDAY FOR JIM, AND THAT YOU ARE FEELING STRONGER AFTER YOUR 13 HOUR ORDEAL, I THINK ABOUT YOU EVERYDAY, AND I WILL BE THANKFUL WHEN ITS OVER FOR BOTH OF YOU….I LOVE YOU….JENNIE XX

    • Chris, I don’t recall if I shared with you how happy I am for you that your Breast lump was a cyst. What a relief. You have so much going on, as I completely understand and pray DH’s back is less painful. What a terrible night he had. I’ve never seen anyone have so many problems as he with his B/P meds. Think the scientists need to do some more research in that field. So sorry. Hang on my dear friend…Love, Sue

    • Thanks, Jennie, but even if not it will be an easy removal since it is caught so early. I’ve had several little moles and spots of various states and kinds of cancer removed. I’m getting quite used to it. 😛 No melanoma so far, thank goodness, and trying to keep it that way!

  31. SORRY FOR THE SHORT POSTS, NOT FEELING TOO GREAT TODAY….DIGESTION NOT RIGHT AND MY HEART IS POUNDING OUT OF MY CHEST…….HEADACHE HASN’T HELPED….NEVER MIND TOMORROW IS ANOTHER DAY……LOVE TO ALL…JENNIE XX

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