Old Lives Matter

First of all, let me express the simple fact that the golden years are shiny and free yet also tarnished. Didn’t know gold would tarnish? Guess that’s where the old expression fails us all. I’ve learned over and over again it is a question of this flesh and blood we move around in, also known as our bodies. Being one of the older folk does provide a certain freedom thus the shiny and honest remark.

I have found more looseness of expression as I grow old and see a glowing light around many aspects of life I never noticed previously. That is a polite way of saying I have a big mouth and the light of awareness shines in my life more than it ever did before. When one is driving in the country, the slower you go, the more you are able to see. Funny how that works.

I remember my mother used to say she felt the same inside and didn’t think about aging until she looked in a mirror. I understand now. That mirror is no friend of mine, but I haven’t cracked it yet. If I ever do, I guess I’ll have to learn how to cackle. My mother was always a very proud woman and always dressed as nicely as she could afford for church every Sunday, always had her hair “fixed” even as it became more and more blue. I don’t have blue hair thanks to Clairol but I do try to look my best. Thank God my pride is still intact. I believe that keeps many of us going when we are tempted to give up. I do have to add I am getting awfully tired of all the comebacks I’ve had to make in the last two years but life still consists of placing one foot in front of the other.

A few weeks ago when I was seeing my physician here in town she had to look at my feet. When I took off my socks, she got a huge smile on her face. I’m not certain but I think it’s because I still paint my toenails. I know that’s not a large ticket item, especially when I always do it myself, but it keeps me feeling feminine. Just because I’m old doesn’t mean I’m grubby, although I am a bit used and worn. As far as reaching antique status; not sure if I qualify or not. I think that decorating word “distressed” would fit me pretty well. I don’t stand as tall as I once did. I’m three inches shorter thanks to osteoporosis and bend a bit forward for the same reason. I personally believe that any elderly person with a smile on their face is forever beautiful.

As all of you know, who have been reading this blog over the years, I have many health issues and each of them is a pain in the arse. I won’t pretend any fondness for any of my four diseases because like naughty children, they each cause a great deal of trouble. It’s really all I can do to keep up with them without throwing in any wildcards like the recent pneumonia I am recuperating from at this time. I do insist in not constantly talking about all or any one of my problems. Is there anyone more boring or tiresome than one who drones on like a machine about their health problems? It quickly becomes that pesky gnat that circles around one’s head; irritating, quarrelsome and annoying. I talk about my illnesses on here because that’s the purpose I originally intended for this blog. This is the place to share for me and for you. It’s my hope that strength and hope comes from all the sharing we do. I know there is much understanding on here.

As we age, good health or bad, we learn many things along the way. We learn which foods we can tolerate. We learn that Metamucil is a food group and we become more winded when walking upstairs; well, I mean the breathing kind of winded but what the heck, the other kind of wind, too. I’ve also learned, after receiving many IV’s for osteoporosis that your fingernails and toenails become very hardened and if you’re not careful, you can begin to look much like Howard Hughes. Remember him? No, he was before my time and I did not know him except through books, films and the news. If we’re fairly smart, as we age, we also learn that liver spots have nothing to do with the liver, being overweight doesn’t mean you’re stupid, being thin or lean doesn’t mean you’re anorexic and all fuzzy thinking is not dementia. I should also add that the famous old wives tale of yore can sometimes be true.

I take surcease in knowing I am and always will be younger than Carol Burnett and Julie Andrews, two of my favorite performers. I believe each of those ladies can teach us a great deal about loving, smiling and having a good time as well as caring for others. One of my favorite, dog-eared paperbacks is the autobiography of the actress Rosalind Russell. I’ve always loved her attitude about aging. In her book she speaks about many of the Hollywood actresses who were always having cosmetic surgery. In one instance she spoke of one actress, once a famous beauty who always had bands placed under her hairline to draw back her skin and get rid of wrinkles. Rosalind said she tried it once and she couldn’t turn her head or breathe and told them to “get this crap off of me.” She never tried it again. She was always a lovely woman and remained so until her death due to breast cancer many years ago. She doesn’t talk about it in her book because she said one disease was enough for any one book. She suffered for years with rheumatoid arthritis and although a generation or two behind me has always been a favorite of mine due to her wonderful sense of humor. You might remember her best for her role in AUNTIE MAME or as Mama Rose in GYPSY.

Old age is not something to fear. I asked my sweet yet salty man how he felt about getting old as he is preparing to retire and his reply was so him. “What choice do I have?” Yep, that’s him and his practical approach. All that was missing was some remark about the alternative not being too appealing.

I do think the pain many of us live with gives us wisdom and yes, sorrow. I have always attempted to find some light in the midst of the darkest days and some joy amidst the tears. Laughter after sorrow has always been a good strategy to seek, a goal worth envisioning. Reflection in old age and knowing that old lives matter is important for each of us, young or old because if you’re not old now, you will be. I’ve learned to prune the unnecessary out of my life and that can often mean an acquaintance or two. I’ve sought to make these years matter in small ways if not large ones. Please my dear friends don’t throw rock salt in the well of life by being bitter or angry. It will only make life sour and give you a thirst you will never quench. Remember it is the small acts of courtesy and kindness that leave the impression; it is the things of the spirit which give true joy and remember to always look for the light. No, not the famous light at the end of the tunnel but the one on the face of your spouse, your grandchildren’s eyes or the loyalty of a grown child. Life is good. If you doubt that as you age, just watch an old dog as they wag their tale in an act of pure joy. I can’t wag my tale any longer but the thought still puts a smile on my face.

127 thoughts on “Old Lives Matter

  1. Hope it is all showing up good. I will have to recycle the old photos til I upload more. Chris and Suzanne, try to shut down your computer and then post. Sometimes I have had to do that.
    Love to all
    To ie

  2. Great read Sue. I’ve begun to work on being grateful and do small acts of kindness when possible Having dealt with the side effects of methotrexate and orencia, I have a tiny knowledge of what friends that must take chemotherapy for cancer may experience. I’ve begun to make a care package specific to the person before their first treatment. I put things to help with nausea that will not act against what the providers prescribed such as ginger candy, aromatherapy inhalers, a tea with greenthread and peppermint which I find very helpful (also known as Hopi or Navajo tea). I put Sea bands, buffs and very soft bandanas in as well. I add a few things that are meaningful between myself and my friend for emotional support as well. I was talking to my infusion nurse yesterday and she said that although she had all the best medical care when she had her mastectomy and chemo, how grateful she would have been to receive something like that. She said it would have helped her know someone really cared about what others may think are little things but we’re big to her. I wished I knew her at that point and had given her one. I also find found out that the hospital has incorporated aromatherapy such as a small inhaler I added (against nausea) to my care pack (and my purse). I can’t do a lot of things I used. To do but being able to help someone at a difficult time is good for me too. (I should have made and sent one to you Sue)

    • Hi all, isn’t it great to be on the air so to speak. I am forever grateful to Tonie for helping us all, me in particular. Just remember everybody that because we know her she can’t handle all the computer glitches each of us may have. Sometimes they just happen. She has worked so hard to bring this about after Natalie had to leave the job. I can’t guarantee they’ll always be good blogs but I will try to be as consistent with them as my health allows.

      Laura, so good to get such a nice long entry from you. I have no doubt you are always going to find ways to be of service to others. You’re a born nurse whether you are practicing or not. I know how hard life can be for you at times and know you have much to share. We had a very long day in Portland yesterday after the trip, an IV infusion and two more of those horrid injections into the tushie. 5cc of solution suspended in castor oil of all things. The nursing staff in there are absolutely fabulous and so kind. We stopped on the way home at our favorite burger joint and kinda wish we hadn’t as I was sick all the two hours home but okay today. Hope you’re hanging in with your usual flare.

      Robin, so good to see you on here. Hey, everyone, she is the gal who is teaching me how to run this infernal computer and set it up for me. Love her.

      Jo thanks for your kind remarks and hope life is better for you after resting up from the trip. I finally got my date to have the SI joints both injected next Friday, June 10. I’m looking forward to it and getting it behind me, so to speak. I would like to feel better able to do more with Jim now that he’s retired.

      Chris dear, hope you just follow the path the doctors have laid out for you. Guess they wanted a better look at the hip before injecting and you have to always be grateful for caution. Hope the problems with the computer…is it DH’s IPad? work out so we can hear more from you. Miss the updates.

      Jennie dear Jennie, sweet lady, I know Nikki is yours but right now, well, just don’t take her crap. Hang up on her. I know as her Mother you don’t want to but you have reached your limit and it isn’t doing either of you any good to allow her to spill all that crap all over you. I know you don’t know all the facts with her but there is something I learned years ago as a drug and alcohol treatment nurse and that is they are out of control when on the poison and even they don’t know what they’re saying. She is different when altered. You learn to never trust a druggie or a drunk. That’s not her! Your Nikki is in there somewhere and of course, you love her. I worry so much about you and how hard this all is on you. Know that I love you, okay?

      Each of you are so dear to me, it’s good to be back. Love, Sue

  3. HELLO……CAN’T SEE ANY POSTS, SO HOPING YOU CAN SEE THIS….CHRIS MAILED ME TO TELL TONIE SHE COULDN’T MAKE A COMMENT ON WHAT YOU SAID TO HER……THOUGHT TODAY WAS GOING TO BE A GOOD ONE, DH’S BIRTHDAY AND HAD A NICE MEAL OUT…..YESTERDAY SENT A QUICK “HOW ARE YOU” MESSAGE TO NIKKI, THE VITRIOL THAT POURED OUT OF HER MOUTH TO ME WAS DREADFUL, SO MUCH SO TAT IF I HAPPENS AGAIN I WILL FORWARDIT BACK TO HER…NOT SAYING I AM GIVING UP ON HER, BUT I CAN’T TAKE MUCH MORE OF THIS. HOPE YOU ARE ALL OK, I CANNOT SEE WHAT YOU HAVE WRITTEN, SO WON’T SEE IF I HAVE GOT ON HERE EITHER, SURE IT WILL SORT ITSELF OUT IN TIME. HAVE A GOOD DAY ALL…..MUCH LOVE JENNIE X

    • Jen…I don’t what to say either except you know in your heart that you’ve done all you can to keep communication and support open. She has to work on herself and I belive she will realize that you love her and are there for her in due time. X

  4. Hya
    All weird stuff going on
    Jen
    Dont know what to say about your DD .there seems no answer so it seems the answer must come from herself..
    Tonie hope all well with your lady you look after hope it’s not any bug going you can catch..how nice to come back to your fM and a meal to boot?
    Donna
    Yea I feel confident now with having it done with all that’s been said here ..just he has refered me to hospital,to do it now and had an X-ray . So be some time I guess now Got some capsicum cream from him ..no good so far and you gotta be so careful with it
    Yea wish you were closer but I feel that you are
    Sue hope all ok
    Keep,it not too long incase it doesn’t post
    Chris

  5. Great and positive blog , Sue, and happy you and Tonie could make it happen. I’m just doing a test run to see if I have problems posting. If not, I’ll be back. …Jo

  6. Yeaaaa
    Tonie a big Thankyou you deserve it for getting this up and running ..you’re one clever diamond
    Sue
    What a summer to look forward to ,hubby home so different from last year
    I had to stop that cream…I put it on with a glove and covered it all up..but the pepper dust or something got in my eyes up my nose and my respiratory problem started again I woke up gasping for breath had to use the inhaler
    As soon as I took my jeans off up it all came..it doesn’t smell it just is irritating burning face as well
    Had to wash it off and that’s difficult as you have to use detergent and several times and washed all clothes and bedding
    All good fun….
    So hope this goes ok
    Chris

    • Oh Chris, that sounds like such a bad thing to experience. This darned Sjogren’s makes everything complicated. I am so sorry you had to go through that. I had a problem yesterday because I can’t eat or drink much on a trip like into Portland because I have to go to the BR and then my nose kept dripping. I was in an oncology office where they are very cautious about colds and I have to explain it isn’t a cold. I wouldn’t expose cancer patients but it looks bad to always be wiping one’s nose. Do you have to do that, too? I also understand about having to get rid of irritants with washing, etc. I hope you get that injection soon. My SI injection is finally ready to go next Friday, June 11. I am so excited that it help I don’t even care if it hurts. The last glitch I had to traverse was that the rheumy called it into the wrong hospital and I had to get it transferred today. Done.
      Well dear, it looks like you’re back to heat or ice for the hip. Do take care, regards to DH. Love, Sue

  7. Sue
    Well not long till next Friday it’ll soon be here for you
    Had to go to Drs this morning managed to get a cancellation on their web site…same dr who gave me that cream….I was gasping for breath when I woke and had to use that inhaler.so he said stop it ..like I hadnt!…and it will calm down he said he’s never had a patient do that before…but even dH was coughing.i hope mine clears up and doesn’t hang around like it did before with my dads flats menthol
    Yes I do have a runny nose it just drips like water no substance to it .always wiping it .there all the time.its like I got an affliction wiping it all the time……if it’s sjogrens why the fluid??
    Anyway my X-ray for hips was back..no fracture but arthritis.he said the bursa has just upset that as well
    I don’t know why he’s cautious about this injection…he reminded me that the hosp still mite not do it
    Well done some Vacuuming with DH following me around with the wire..all good fun
    Back later Chris

    • Chris, Good there is no fracture in the hip. You know the more I learn about Sjogren’s the more I realize and read how it affects the joints. I am confused why they are hesitating about your injection unless they are concerned about introducing bacteria into the joint. That’s one of the reasons I am always so particular about who and where for injections into joints. I wish you could get some relief and of course can imagine how your daily life is faring with the pain. As far as the creme, well, there you go…breaking the traditional thinking about what the body is capable of. I hope it begins to go away. I am often reminded of what the medical community doesn’t know as compared to what they do. I know there are many fine physicians but there is so much to be known about rheumatoid disease that is still a mystery.
      I don’t know why the nose drips but it is the same with me, just clear fluid. I always have a tissue on me, up a sleeve or in a pocket. I’d recommend, very strongly, a robot vacuum. I’ve used them for ten years and in fact, we just bought two new ones a couple of months ago. Jim bought one at the discount warehouse the same day I bought one online. I bought a Neato brand and love it. It’s great for corners whereas the Roomba, I Robot is round and a bit faster. Both save the back. THey read the room with a little computer and just buzz around cleaning and you empty out their basket at the end of the run. Hope today brings you more relief. Much love, Sue

      • I didn’t ask why he is not happy to do it…I think it’s becos I didn’t want to know what could go wrong..I been quite happy about it till he impressed that they mite not do it either
        Breathing a bit better and dH has stopped coughing with it too..well much less than he was
        I’ll have to think about a vacuum like that
        Went for a ride out to the coast about 6 pm just stayed in car then hotel for coffee and watched sunset…couldn’t walk so that was good to that
        There is a nice conservatory that is on the shore and you see the sunset ,almost in it
        House move still the same waiting for this couple to get a shift on
        Taking an amytripaline tonight..well half a one to see if it helps the pain at all and rubbed some voltarol gel on
        So I mite sleep all nite it’s 23.35 here so gonna read and hopefully sleep
        Love chris

  8. Think I might be on now, seen todays post, but not yesterday’s……so a big thank you to Tonie and Sue, for going to so much trouble to sort everything out….what a pair of diamonds you are.
    Chris…………..I hope there will be a solution for you regarding the cream, what a horrible experience poor love. I am pleased there was no fracture with hips and back, arthritis…yuk!!
    Maybe you could invest in a cordless vacuum cleaner, its the best thing I ever did, if you get the one which includes the attachments and not the one that you just shove round…….have a good weekend….

    Sue………I hope you got on ok at the oncology clinic, so pleased you are getting you SI injection on Friday, will that be local, or do you have to travel again?

    Sorry I can’t see anymore posts, hope all the others are managing to post ok…….nothing changed with the Nikki situation, I am leaving her alone for a time, see how it pans out, but its a bit think when I am supposed to apologise for her bad behaviour, how does that work??

    Have a good weekend, and love to all………………Jennie

    • Jennie, good to hear from you. I hope I didn’t come across to unkind about Nikki but I just know how tragic it can be for you to be hurt over and over when she is the only one who can change things in her life. You know you have my concern and love. Good you are staying to yourself for awhile. My concern is for you
      Yes, I will have the injections done here. That is what I fought for when the jerk at the pain clinic wouldn’t help me get them out here. I didn’t want him near me with a needle anyway. The radiologist that is going to do it injected my shoulder a few months ago and mentioned he had never had in infection with anyone. He is also extremely kind. I hope your computer issues with the blog open up soon. Do take care, regards to DH. Love, Sue

  9. Hey all. No thanks are necessary for the blog, it is a necessity for me as well. Busy day around here with yard work, but got some break time with a big rain shower. FM is creating a sign for Judys fence. I did the outline and he is painting it all up, really pretty. He likes my sister very much.
    Well, prayers for you all. Now I must go back out and finish the trimming.
    Love
    Tonie

  10. Hi everyone, I had my bone scan yesterday but don’t know anything yet. I could see some spots lit up but they were all the areas I hurt with the Rheumatoid Arthritis. She told me it would pick up the RA. So I hope that is what it is. On Monday I will get the Pet Scan. It is a lot shorter than the bone scan. It was 30 minutes of laying there very still. My left shoulder was starting to hurt after about 10 minutes. So I was miserable the rest of the test. Today it is very painful. I put some of the cream I was telling you about on it and it does help.
    On Thursday night 2 of my daughters were bitten trying to break up a fight between my daughters lab and one of her renters dog and both had to get stitches and IV antibiotics. It was bad. They didn’t close them up tight as they need to heal from the inside out. Both dogs are ok. Both are pets. Both are males who haven’t been fixed so they think that was the problem. My daughter is getting Milo fixed. Then this morning I saw on Facebook where one of my grandson went to the mailbox barefoot and stepped on a piece of glass and spit his big toe open from the top of toe all the way down the side of hidden foot. He ended up with 16 stiches!. I would really like prayers for all 3 of them. They are all in pain and having a hard time getting the bleeding to stop. I will write more later .
    Thanks Tonie and Sue for getting the blog back up and running! Love Donna

    • Oh heavens Donna what a lot going on
      Of course prayers for all this to go right and heal for your family also for yourself right now with all this waiting
      I forgot what is the cream..I wonder if it will be any good for me
      I hope your pain heals up now with it for the weekend
      Love chris

    • Oh Donna, your poor family. It’s the old when it rains it pours thing. I am so sorry and know how painful dog bites can be and for the little guy to have a cut on the bottom of the foot…painful. Be sure to watch those bites for infection and hope everybody concerned, all three, had recent tetanus injections. Prayers. Glad they are on antibiotics.
      I do know what you mean about the bone scan table. You get sort of locked in place and then you move, ouch. Pleased it’s over. I hate the stuff you have to drink for the CT scan. Interestingly enough, my CT scan showed the tiny bones mets when the bone scan did not. Therefore, I guess I’m saying both are a good idea.
      It is good to be back on the blog. Hang in there as everyone heals and you get your next scan. Remember, God has this. Love you, Sue

  11. Hello, all. Sue, Tonie, great work! My heavens, I’ve had so much to catch up on. I am afraid I will certainly miss someone, certainly not on purpose. My apologies in advance.
    Laura, my dear, I am not one bit surprised by your latest thoughtful, kind endeavor. It is so like you. 🙂
    Jennie, I am so sorry. I can only imagine how difficult this is for you. Know that you have our support and prayers.
    Donna, Jo, Chris, so much going on, health news, housing, packing. Everyone taking it a day at a time. Hang in there, keep us up to date, so many things changing, sometimes daily. Wish I could manage a lengthier response to all.
    Quick catch up before I have to log off. Some good days and not so good days here. Not surprising. It’s been hot and humid, now tomorrow we are to possibly get some severe weather. DD is driving back from NC – she is at the Outer Banks with a couple of friends – tomorrow. Praying she will not have too much severe weather to contend with. I saw the dermatologist Thursday, had my lowest recorded blood pressure (not sure why, I felt fine so not worried but will have DD check for a while to be sure) then found 2 spots needing biopsy. One was along the scar line of a basal cancer I had removed 2 years ago, the other was new on my chest. Love that my guy is thorough and takes no chances. Back and hands giving me some grief lately. To be expected, I guess. SB is ready for another round of ablations and must call the doc Monday to set an appointment to be seen so his procedures can be set up. Tonie, I hope your second is starting to feel better by now. I agree with your FM. Let him help you with the improvements.
    Time I must log off. Will have to try to get back on sooner so I can properly address everyone. Take care, all, wishing you well.

  12. Morning all
    My, so much going on with us all. I still haven’t gotten the hang of getting my name to show instead of chronic sue, so bear with me.
    Donna prayers for you. Lyn, I thought of you yesterday. We went for a walk on the trail and took the dogs. Beautiful. Took a lot of good pictures.
    Today I go and swim, then I must mop the floors where Ceasar made a late night jaunt in the mud.
    Prayers for you all
    Love
    Tonie

  13. Hi
    Lyn
    Prayers for a clean Bill of health for you.just the waiting but good that he is so on the ball with it.dh has to go in a few weeks
    Hope your DD had a good trip home
    Well exchange of contracts looks like next week..that’s when no one can back out. Can set a date to move then up to 28 days ,we would like that time .as we will only start to pack when it’s all secure.
    Lovely weather here
    I’m resting on the bed and dh as well
    May go out early evening,just both hips so sore .cant walk just sit in car .
    Ok gonna read now
    Chris

  14. HELLO……
    SUE………I NEVER SAW YOUR POST REGARDING NIKKI, BUT WHATEVER YOU WROTE REGARDING HER, TRUST ME I WILL NOT BE OFFENDED, SHE HAS A LOG ON HER SHOULDER INSTEAD OF A CHIP……I HAVE WASTED ENOUGH TEARS ON HER FOR THE TIME BEING, AND I HAVE TO STAND BACK FROM IT NOW, AND JUST WAIT AND SEE.
    I AM VERY PLEASED TO HEAR YOU CAN GET YOUR SHOTS CLOSER TO HOME, BET YOU MUST BE SO RELIEVED NOT TO HAVE TO DO THAT ROTTEN JOURNEY, THERE ARE BLESSING TO BE HAD HUH MY FRIEND?

    TONIE……ITS LOVELY FM IS GETTING ON WELL WITH YOUR SISTER, MAKES LIFE EASIER, YOU ARE SOUNDING VERY CONTENTED LOVE, AND I AM HAPPY FOR YOU. I HOPE YOU ARE POSTING YOUR PHOTO’S YOU TOOK, CAN’T WAIT TO SEE THEM, LIFE IS GOOD NOW, AND ITS WHAT YOU HAVE ALWAYS DESERVED……

    DONNA……I AM SO SORRY YOU HAD SUCH A MISERABLE TIME WITH YOUR SCAN, ITS A NIGHTMARE TRYING TO KEEP STILL WHEN YOU ARE IN PAIN, AND YOU NEED TO MOVE AND CAN’T, I HOPE ALL WILL BE WELL FOR YOU, AND SENDING LOVE AND PRAYERS FOR YOU AND FAMILY.

    LYN…….THANK YOU FOR YOUR SUPPORT AND PRAYERS, IT MEANS A LOT. YES THINGS ARE DIFFICULT WITH NIKKI, SHE REFUSES TO TALK TO ME, THIS ALL CAME ABOUT BECAUSE AN EMAIL SHE SENT JUST WENT MISSING, AS IS KNOWN TO HAPPEN FROM TIME TO TIME…..I MEAN WHO THE HECK CARES, JUST WRITE IT AGAIN….OH NO! SHE SAID I HAD LIED, THEN ACCUSED ME OF SAYING SHE LIED, AND SO IT GOES ON, UNREASONABLE BEHAVIOUR, AND THIS IS WHY I FEEL SHE MAY BE BACK OF DRUGS OF SOME SORT…..ITS ALL A BIT HOPELESS AT THE MOMENT, AND WE WERE DOING SO WELL………I HOPE THE SEVERE WEATHER DOESN’T AFFECT YOU, AND YOUR DD GOT HOME SAFE. I HOPE THE NEW SPOTS TURN OUT TO BE NOTHING AND THE PAIN IN YOUR BACK AND HANDS SETTLES DOWN.

    CHRIS….WRITTEN TO YOU.

    HAVE A GOOD DAY EVERYONE….GOD BLESS…..JENNIE X

    • Well both scans out of the way so back to waiting. I have never been fearful of the PET scan until today. I found out that it was a different machine than before. More like an MRI but tube not quite as long. When you first get there, they make sure you have only been drinking water and no sugar and no food since 8:30 that morning. Then they start an IV. They check your blood sugar to make sure it isn’t high. Then they inject the nuclear medicine through the IV. They remove the IV and you get to relax for an hour. Read or watch TV. I did take a half of an ativan with their permission. Glad I did because when I walked in that room, I panicked! She had to let me sit on the side of the table for 10 minutes. I was about to cry and couldn’t stop shaking. I felt like a fool! I thought this is ridiculous to act like this at 64 years old! I finally told her let’s do this and get it over. My head had to stay in the tube about 6 to 8 minutes. Then it was outside of the tube and they scanned the rest of my body. I was so glad to get out of there. I was so hungry and thirsty for something besides water. I was meeting one of my friends for a late lunch. It was 2:00 by then! I will say everyone was nice and tried to ease my mind knowing I was scared! Thanks for all your prayers! I will let all of you know as soon as I know! I came home and slept for a few hours so now it is midnight and I will be up now for a while. I will write more to each of you later! Love you all, Donna

  15. SEEMS LIKE WE ARE ALL BACK ON. SO HAPPY. THANK YOU TONIE AND SUE FOR BEING ABLE TO PULL THIS OFF. WOW, I AM REALYIMPRESSED BY BOTH OF YOU. MT COMPUTER IS NOT REICING MAIL THESE DAYS SO I M ON MY IPAD. WOULD HAVE TO BRING IT TO AN APPLE STORE BUT NEED SOMEONE TO GET ME THERE. PLANTS ARE NOW IN THE GARDEN SUE. GEORGE DID ALL THAT WORK WHILE I TOOK CARE OF MY FLOWER GARDENS. I NOW HAVE 3 WHICH I NOW THINK IT S TOO MUCH WORK FOR ME. SUE HOPE YOU ARE FEELING OK SINCE YOUR LAST VISIT TO THE DOCS. TONIE I AM SO HAPPY YOUR FRIEND IS WITH YOU TO SHARE THE CHORES AND JUST TO HAVE SOMEONE YOU CAN COUNT ON. SORRY TOHEAR MISS ALICE WAS SO SICK. HOPE ALL IS BETTER NOW.
    JENNIE POO DON T BEAT YOURSELF UP ABOUT YOUR DAUGHTER, DRUGS DO FUNNY THINGS TO PEOPLE WHICH AREN T QUITE NICE. YOU TAKE GOOD CARE OF YOURSELF PETAL. YOU HAVE A WONDERFUL DH WITH YOU.
    CHRIS, HOPE YOU ARE RESTING AFTER THAT INJECTION. PRAYING FOR YOUR HOUSE TO WORK OUT SOONER THAN LATER.
    LYN, HOPE THAT WEEKEND OF CHOIR DIDN T BURN YOU OUT TOO MUCH. SOUNDS LIKE YOU ARE HAVING GREAT WALKS WITH YOUR PUP. GOOD FOR YOU.
    DONNA PRAYING FOR YOU ALL THE TIME. HOPE THINGS WORK OUT FOR YOU SWEETHEART.
    LOVE TO ALL ONTHE BLOG. TIME TO GO SLEEPY, SLEEPY.

    GOD BLES YOU ALL AND KEEP YOU SAFE. XXX

  16. Hello……..dog and house sitting all day for a friend, so will not be able to post now till tomorrow, not looking forward to this as there is nowhere to sit that is comfortable, its a tiny house and Sacha never settles there, hope it doesn’t rain and the dogs can go in their garden, why do I sign up for these things knowing how hard it is?? I guess I know the answer, you have to give when you can……long journey ahead, so better get my “skates on”……..try to catch up tomorrow.
    Donna….glad that is all over for you, no shame in being scared love.
    Suzanne….will try not to beat myself up, thanks for caring.

    Have a good day…..Lord knows what time we will get home, going to be a long one…..dear me reading this back I sound a right whinger, but those who have to travel and sit for hours, know what I mean…..Jennie xx

  17. Donna, my that new PET scanner sounds interesting. I’m sorry you had a time of it. Thank goodness they were all so kind and understanding. Now the waiting.
    Suzanne, it does sound a bit like you have perhaps a bit of a stretch with the gardens. I survived the weekend of choir duties.
    Everyone, DD made it home ok in the weather. Thankfully it didn’t get as bad as it could have. She only had to pull over once on the way.
    Jennie, I hear you on the “nowhere comfortable to sit”. Been dealing with that a bit lately myself. Hope all goes well with the pups.
    Tonie, glad you had a good Trail walk. I’ve been taking Sadie over there daily now. More shade on the hot days and a nice change of pace. She loves it. Sorry about the mud. 😦
    Chris, here’s hoping all goes well with the paperwork!

    • A quick note to let you know about my scans! Thank you for all the Prayers! Praise the Lord! Both scans showed no metastatic cancer! However, there was a concern on my left arm upper area where I have been hurting so badly. They think I might have a stress fracture or hairline fracture in that area. It could also be from the Rheumatoid Arthritis! So in the morning I have to go get a regular set of X-rays to check it out. I don’t know what they could do if it is fractured. That is the side I had the mastectomy and lymph nodes removed and have the lymphedema. I am not supposed to cut that arm, no shots, no blood pressure taken and no heavy lifting. That is the same area that I fell back into the wall in March when my daughter put something in my way and I tripped and fell! My oncologists nurse said, now isn’t that a coincidence. That is about the time it started hurting too! We will see tomorrow. Hopefully we can find out what it is! My youngest daughter, Racheal , is running a fever. If it doesn’t go down she will go back to hospital and get her arm looked at. Kim, my oldest daughter, said hers is still a little swollen but not too bad. I haven’t talked to my grandson about his toe and foot. He said on Sunday it was hurting really badly! I will let you know about my x-rays tomorrow. My phone is losing its battery. Love , Donna

      • Donna, great news about no mets. They may immobilize your arm. Let us know. Prayers for all of you, Love, Sue

      • Such good news and relief Donna .
        Hope all goes well today and everything is better for your family
        Love Chris

      • Such good news, Donna, and a great Relief. Hope the rest of the family will feel better soon. ….Jo

      • DONNA SO PLEASED FOR YOU. I JUST KNEW ALL OUR RAYERS WOULD WORK OUT. STILL PRAYING FOR YOUR 2 DAUGHTERS AND GRADSON. LOVE YOU LOTS MY FRIEND. HOPE THE CHILDREN ARE STARTING TO FEEL A LITTLE BETTER. GOD BLESS. XXX

  18. Good morning all
    Donna, such glad tidings on your scans ! Hope your family is feeling better soon. Chris, moving day is arriving huh ? That is the one thing I keep thinking of if we buy a property somewhere else….MOVING ! But…we will see. That is the future and we all know things can change.
    Jenny, hope your day was better than expected. Ms Alice oldest daughter is here until the weekend and the stressful atmosphere that she brings is awful for me, and Ms Alice. She is talking about putting her in a home, which will kill Ms Alice. She would die and I almost know it. People!
    So.. Another day. Things are well with me.
    Love to all
    Tonie

    • Tonie…..I would like to tell you it was better, but it was worse, there is not one sofa/chair that is fit to sit on, same wih the outdoors…….also my friend is a bit mucky, I had to clean the sink before I dare wash my hands, everywhere was dirty, I am a bit house proud, so found it all a bit much. We cannot help the way we are, and I know how grateful she was to have the worry of the dog taken care of……..problem is, she will now need surgery, and I think we will be asked to do it again, this time for longer, don’t know what to do, as I feel its my Christian duty to give her ease of mind, but at what cost?…….just have to see how it pans out. Are you enjoying your time with FM my friend, what else have you both been doing? I pray Miss Alice won’t have to go into a home………..xxx

  19. Dear Friends, ever since our trip to Portland last week been having severe SI joint pain. Very difficult to find a position, even lying down, to type to all of you. I have been reading all your entries and thinking and praying for each.
    Lyn, good to get the word you all made it through bad weather. Hope your latest PT is helping you to find stronger and better bodily movements. Love your pics of the animals in your household.

    CHris, getting excited for you to move although know it will be a tiring experience but hoping you will be spurred on by the shear joy of getting your lovely new home. It’s so bright and cheerful and a warm, sunny garden, too. Hope all family is well.

    Jennie, Sounds like a horrendous few days for you without any comfort. Hope you don’t have to do it again or feel too obligated to suffer for your friend. Can’t the dog go to your house or did I miss something? Think of you so often dear girl. Loved the pics of Sacha and DH.

    Tonie, Still thinking about moving, huh? I know you’ll find direction a the time comes. I also know you’re having a wonderful and productive time with your friend. How’s the garden growing? Hope the chicks are all safe and sound. Good to have him be so handy with the porches, etc. How’s the back behaving? Better?

    Donna, wrote you last night. Good news.

    Thinking of so many of you and all you cope with; Jo, Laura, Janet, and others. Love you all, Sue

    • HI SUE…..THE DOG COULD COME HERE TO US, BUT IT IS NOT CLEAN, AND I AM NOT PREPARED TO CLEAN UP MESS FROM SOMEONE ELSE’S DOG, AND THE DOG ITSELF IS SMELL ANYWAY…..ITS A DEAR LITTLE SOUL APART FROM THAT…..LOL.
      BY THE WAY, I HAVE TRIED TUMERIC TABLETS FOR O/A, GOT SOME RELIEF, I ALWAYS LIKE TO TRY NATURAL PAIN RELIEF IF I CAN.
      SO SORRY YOU ARE SO MUCH PAIN SUE, WISH THERE WAS A SOLUTION FOR YOU.
      LOVE YOU…JEN X

      • Jen, I’m sorry you’re in such a spot with your friend and know you’re just trying to help someone. My dear, can you explain your situation and just let her mull it over for awhile? Perhaps, she can come up with something when she knows how hard it is for you. Hope so.
        I agree some of the natural solutions are best. We’ll see how the deep injections under scan go tomorrow then our son will be here for the weekend…not the best timing but since he is family we’ll make it work It’s always great to see him and visit. I’m trying to clean the house a bit but know it’s silly because he won’t care one way or the other.
        How’s the foot doing? Always worry about your back and sitter also.
        I’ve been having a lot of numbness in both feet due to my ankle problems and am afraid of falling so a bit depressed about that. Gabapentin helps a bit but can’t take much of it. Each of us deal with so very much I think that’s why we understand so well. Hope you’re able to enjoy that beautiful garden and Sacha and your DH who keeps that garden blooming so wonderfully. Love you lots, Sue

      • Oh JENNIE POO JUST READ AN ARTICLE ABOUT TUMERIC. SOUNDED REALLY INTERESTING TO TRY. DID YOU TAKE CAPSULES? SORRYABOUT. THE DOG SITTING, COULD YOU NOT JUST GO IN AND OUT TO TAKE CARE OF THE DOG OR DOES SHE LIVE TOO FAR? PRAYING FOR YOU PETAL. HOPE YOU CAN HAVE A LOW PAIN DAY. GOD BLESS. XXX

    • Sue, I am sorry to hear you’re having such severe s.I. joint pain. It’s so horribly uncomfortable. I have been really bad since my trip to Chicago to the point where there is no comfortable position, not even in lying down which would normally give me Relief. I bet you’re ready for the injections and I know they will give you some much needed Relief. Good luck tomorrow. I’m trying to get set up with a new pain dr now. I’ve been putting it off because of the house and then my mom’s stroke. I had to “run” around the house cleaning today for some prospective buyers who just left. All that work and in 15 minutes they’re gone😂 and im in bed on ice packs! I will be thinking of you tomorrow. Love, Jo

      Lynn, I am glad you found the skin cancers early and are so proactive. Hope it all goes well for you….Jo

      Chris, good news on getting the exchange of contracts for your new home. Very exciting. Now it will seem all real and the work will begin. I hope you can find Relief for your hip pain. I’m dealing with the same thing and looking to get an injection too….Jo

      Tonie…sounds like you’re having a good time. I bet you don’t miss the 110° temps in AZ this time of year😁 how have the ablations worked for you? Do you see an improvement in pain?

      Have a good restful evening one and all!

      • Jo, I am sorry to hear about your sitter pain. Our hips and pelvis are so closely connected it is small wonder they hurt as well. I once heard a rheumatologist lecture in which he said sacroiliitis is the most painful of all rheumatoid conditions. I believe it having had many of the other types; it would get my vote. Perhaps I’ve shared this with you before but will share again: Do you ever feel like an elephant is standing on your frontal pelvic bone or pubis? Classic sign, unfortunately.
        I’ve never been a big advocate of too many injections because I’ve seen some cases of osteomyelitis which started from bad ones but now that radiologists are giving more of them, I feel better about them. Of course, some joints are more simple to reach then others. So sorry about the lookie loos today but one never knows, right? Thanks for the good wishes for the morrow. Love ya, Sue

  20. Sue
    When do you get the injections for your back? Be good to get them done and out of the way
    Yes fingers crossed all will be well with the house ..daren’t hope too much but it will be great when it’s all firmed up
    I’m Iceing my hip and am back on anti imflams..it’s easier than it was..but it would be back if I stopped meds. I’m wondering his long I can take them for tho
    Trying to fill up time without thinking about the house move..went for a drive tonight to a nice setting .lovely sunny evening
    I hope the pain eases soon Sue
    Love Chris

    • Chris dear, if the NSAID’s help the pain why not stay on them? Are you having a bad side effect?Did the doctor definitely decide not to inject it after the X-rays? I’ll definitely cross fingers, toes or whatever will help Weather there sounds perfect. It’s always good to use distraction. Love ya, Sue

  21. Sue
    I can only take for so long as they burn my stomach ..I’ve had bleeding from anti inflams before and also they give me ibs
    The dr won’t do it so he’s refered me to the hospital to do it..but he said they mite not for safety issues either …I don’t understand….I didn’t ask why as at the time I didn’t want to really know any problems to it
    Loads have it done
    Anyway he’s refered me to the musculoskeletal ..but I see the rheumy in a few weeks maybe she will do it.im sure it’s a similar problem they mite deal with….what u think Sue ?
    It still throbs away even on the anti inflams but is easier ..do they need any scan to see to do it at all ?
    Well awake warm nite got fan on….but dries my eyes further …so drops in now and hopefully sleep!

    Jen
    I should certainly put some thought into a revisit to your friends….
    Maybe she could get a professional dog sitter to come for part of the day….or could you take a garden chair there..does sacha get on ok with her dog to have at yours…. Could she not have left him home for that day you went there…..and you don’t need any further cleaning to be done….there must be an answer.what sort of surgery does she need…..will it affect her looking after her dog afterwards ..it sounds like she has a bit of sorting out to do really ..she must be worried
    However.you can’t make yourself worse ..maybe she will sort it out herself and then no worries
    Well gonna try and sleep
    Chris
    Oh tonie ..noooooo, we don’t want miss Alice in a home…
    Chris

    • Chris, I’ve had my hip injected a couple of times just in a doctor’s office…no X-ray. Not sure if a rheumy will do it. Mine wouldn’t. When I had it one it was an orthopedic surgeon. I think you should have it done but do know it isn’t a permanent fix, unfortunately. One of my FB friends swears by the herb Turmeric for inflammation. SHe also has IBS so I might try it. I have read it is good, natural fix for inflammation. Question…Will your new bedroom be on a cooler side of the house? Hope so. Love, Sue

    • HI CHRIS…….I AM CERTAINLY PUTTING A LOT OF THOUGHT INTO LOOKING AFTER THE DOG AGAIN, WE TOOK A GARDEN CHAIR LAST TIME, BUT I CAN’T SIT FOR MORE THAN HALF AN HOUR IN IT. THEY WILL NEVER GET A DOG SITTER BECAUSE WE ARE THEY!!!! ANYWAY HE IS TOO BLOODY MEAN TO PAY OUT.
      SACHA DOES GET ON WITH MAX BUT AFTER A WHILE HE GETS FED UP WITH HIM AND JUST WANTS A BIT OF PEACE, WE HAD TO PUT SACA IN THE CAR FOR AN HOUR WITH ALL THE DOORS AND BOOT OPEN, JUST SO HE COULD HAVE SOME QUIET TIME……..IVY HAS TO HAE HER CATARACTS DONE ON TWO SEPERATE APPTS, IN JULY, THEN A FOLLOW-UP IN AUGUST……THE SIX MONTHLY VISITS TO THE CLINIC TO KEEP AN EYE (PARDON THE PUN) ON HER CORNEA’S.
      HAVE YOU MADE YOUR MIND UP YET ABOUT HAVING THE INJECTION??
      XXX

  22. Good morning all
    We had a cool front come through, felt like Sept yesterday and this morning, well,mint is just cold ! But 89′ by Sat!
    Jen, just pop in and out, not stay all the time. Surely the dog can be alone for most of the time ? We have been busy FM and I . Today after work, we have to drive a bit into NC and meet a guy who will be buying his car. That will be done . Friday we are going to the Rodeo, but mostly we have been working around here. Much to do. Saturday’s we get buffed up a bitandgoout to eat some where.
    Chris, they can do the injection without the scan, if they will. But never by my rheumy. You just ask though, may be different over there.
    Sue, poor lamb. Prayers for your back. Mine is feeling some better, and not. The pinched nerve is very much there, so next…..
    Lyn, Jo, Suzanne, all of you. Love and prayers for a good day
    Tonie

    • TONIE…..WE CAN’T POP IN AND OUT…..IF ONLY, ITS A ONE AND A HALF HOUR DRIVE TO THEIR PLACE, SO ONCE WE ARE THERE WE HAVE TO STAY, AND HE IS ONLY A BABY, EVEN WHEN THEY LEAVE HIM FOR TWO HOURS IN HIS CAGE, HE MESSES IN IT…….ITS A PROBLEM, BUT THEY WILL HAVE TO SORT IT OUT, I CAN’T DO THIS ANYMORE, MY DH WILL TRY AND GO ON HIS OWN……
      HAVE FUN AT THE RODEO TOMORROW, AND ON SATURDAY…..BUFFED UP !! HAVEN’T HEARD THAT IN AWHILE……XXX

    • Tonie, life continues to sound good. So special to have someone special to do the little and big things in life alongside. Bet you both are still eating healthy and know you’re seeing some of the area. Good to hear the car has sold. Enjoy the sunny weather. SHould be good for the garden. How are the horses? Thinking of the two of you, Love, Sue

    • THANK YOU TONIE. BUT ACTUALLY HAVING A BAD DAY TODAY. KNEES SCREAMING FOR ATTENTION AND ALSO MY BACK. DID GO FOR A SHORT WALK BUT JUST COULD NOT TAKE THE PAIN SO CAME HOME AND WENT TO BED. SEEM TO BE GETTING WORSE ALL THE TIME. NOT SURE WHAT TO DO NEXT. I STILL HAVE NO DOC AS HE IS ON. SICK LEAVE AND HOPEFULLY WILL BE BACK IN AUGUST. ANYWAYS ENOUGH ABOUT THAT. YOU SEEM TO BE VERY HAPPY AND GETTING LOTS DONE WITH YOUR FRIEND BACK ON THE SCENE. I M SO HAPPY FOR BOTH OF YOU. LOVE YOU SWEET PEA. GOD BLRSS. XXX

      • Suzanne, prayers for your pain. I know how it goes, sometimes I have to stop myself doing things when pain is too much. Be good to you, try some heat on them

  23. Hello, everyone, quick pop on to say hi and share for those who may be interested. I just had a call from my Dermy’s office. Both biopsies were basal cell melanomas. So… I’m looking at 6 weeks of interesting times. Not a big deal, really, I just recall the 2 on my back being more of a pain than I had originally thought they would be. This is front (on my chest) and back (near left shoulder blade, close to where my bra hits) this time. They will do one removal, 2 weeks later the other and remove stitches from first, 2 weeks later the 2nd stitch removal. Of course, they were scheduling for around my week of singing I do each summer. We decided it may be best to schedule after that since singing requires expansion of chest and back 😦 . DH was concerned that I get it taken care of ASAP. I had to reassure him that this small delay is perfectly ok. I think he forgets I’ve had this kind of removal before as well as squamous and precancerous cells. Not my first rodeo, as they say.
    Jennie, I do hope you can come up with a better compromise if you need to help out your friend with the pup again.
    Chris, I do hope a palatable solution can be found for your hip.
    Tonie, I’m enjoying hearing of your activities with FM. So glad all is going so well there for you. Just wish your back would cooperate.
    Sue, while no stranger to SI pain, I sure wish you weren’t enduring such a severe bout yet again. Honestly, I wish you didn’t have to endure any at all. You remain in my thoughts and prayers. How is Jim enjoying retirement so far? It may be a big adjustment for him.

    • LYN…….WE WILL THINK OF SOMETHING, GOT TO BE CAREFUL NOT TO HURT MY FIRENDS FEELINGS THOUGH. SORRY TO HEAR ABOT THE MOLES, I WAS HOPING THEY WOULD BE BENIGN, BUT YOU HAVE BEEN UP AGAINST THIS BEFORE WITH GOOD RESULTS, SO PRAYING THIS WILL BE THE SAME…..KEEP US INFORMED OF YOUR PROGRESS LOVE.
      JENNIE X

    • Lyn, Sorry for the inconvenience of the two new basal cells. Thank the Lord they don’t metastasize unless ignored then they only spread on the skin. Hard to imagine someone ignoring them but I have seen patients who do. Hope neither will cause you the inconvenience of rubbing on clothing and sounds like you’re wise to think about your singing schedule. Also hope you’ll consider plastic surgery if you ever have one in an inconvenient place or it is very large, I know Jim did once with one on a lip.
      Jim seems to be enjoying his retirement as we take it one day at a time because it is a change. Take care and let us know how it is going with the skin cancers. Love, Sue

      • Sue, I’m curious, did Jim have the cancer removed by the plastic surgeon, or have the plastic surgery after the cancer was removed? So far mine have all been on my back and leg (the leg didn’t require stitches, so looks like any old type of scar). The ones on my back are only seen if I have a swimsuit on that reveals one of those spots. They are not attractive, but not seen enough for me to worry about. One of these is next to one of those scars, the other on my chest, however could be seen if I wore a deep neckline.

  24. Hi all
    Sue..with the bungalow as its only on ground level we think the heat won’t rise as it does here..also the bedrooms are facing the other way where we get the morning sun..so hopefully it’ll be ok
    Thinking of you tomorrow and all will be well..as you say your son is coming to see you both and won’t even see the house ..and I bet it’s ok as well
    Lyn
    Basal cell is ok as you know..just get them out. Awkward timing as always but you will cope with it I know
    Good job he noticed it for you so it’s not so much to get out if left.
    Oh tonie…….why can’t a rheumy do that inj..the dr said she mite not either…am I missing something
    And I fancied getting ..buffed up..
    Jen
    Gotta put your thinking hat on with this one….I’m sure you will get there with a decision
    Hope things are better with your back
    Well heard that we will be signing and exchange contracts next week and and be moved by July 7. Not packing till exchange when the sale is assured and no one can back out
    Going to make a cup of tea
    Chris

    • Chris, wonderful to hear. So glad you’ll sleep cooler, also. Good news after your long wait. I’m anxious to have tomorrow behind me…ha, ha.Love, Sue

    • Chris…..delighted for you that you got a moving date, you must feel over the moon despite all there is to do…..very wise to wait till all is legal…..keep well love and conserve your energy for the day. xx

      Donna ….a relief, so pleased for you love.xx

      Jo……got pain in that area too, wakes me in the night, all the bones running right underneath and down inner thighs, can hardly put a “Tens” there can I……..ouch!!! xx

  25. Lyn, Jim had the plastic surgeon remove the basal cell. You only want one surgery if you can help it, right? It was very expensive but worth it on a place that was visible and tight. Insurance should cover it for a skin cancer. Are you concerned about the one on the chest? Love, Sue

    • To my wonderful prayer believing friends! No fractures or lesions or anything that looks like something trying to turn into cancer on my x-rays! Possibility that it was lit up do to the lymphedema and the Rheumatoid Arthritis! Will go every 6 weeks for tumor marker blood work for a while to keep a close watch on my numbers! I will be going to stay with my 3 daughters at the beach until the first week in August. Of course I will be on Facebook and the blog while I am away from home!
      I drove a friend of mine, who is also a breast cancer survivor, to the hospital today for surgery and had to sit and walk so much that I am hurting so bad right now! I actually fell asleep writing this note and couldn’t believe all the strange stuff I had written! I had to start over. I have been so worried about all the scans and my daughters and grandson lately and not sleeping good I guess I was more tired than I realized. I have been wanting to write something to each of you so badly and then I am so tired and don’t. Please forgive me and I’ll respond to each of you in a day or two. I know all of you have a lot going on too! I feel pretty selfish talking about all my problems lately. I love all of you and I do pray for you! Thank you so much for all your prayers and support. Love, Donna

    • Sue, I haven’t really been concerned about scars anywhere up to now, really. However, they have been in places mostly unseen or not real noticeable. The chest? I’m not sure. Mostly it wouldn’t be seen, but would in a deeper neckline. And much as I love my Dermy, a Plastic Surgeon he is not. 😛 I just don’t know.

      • Lyn, I didn’t mean to worry you. I was only thinking of all the occasions you dress in formal wear for concerts, etc. A lot of it depends on the size of the lesion and how you feel about it. I have scars on my chest from radiation therapy but they don’t bother me because I’m considerably older than you are and rarely dress up. You might ask your insurance if they would cover plastic repair or just talk openly with your dermy. Hope this helps a bit. Love, Sue

      • Yes, the formal dressing is really the only reason that gave me a bit of pause. I can always use scar reducing meds and maybe make up would help… or just choose not to care as I have so far.

  26. YES, Sue, I do feel like something heavy is sitting on the pubis symphisis!! I never knew that it was related to the sacroilitis . It certainly does affect the whole pelvic ring. I haven’t had many injections either and haven’t wanted to get them because of the osteoporosis. But sometimes a little relief goes a long way. Here’s hoping you get that Relief from yours….Jo x

  27. Hi
    Ive a question
    Some of you having injections…….is that why they are hesitant in giving me one for this busitis an infection..or osteomyelitis? Also why would it Be better for a rheumy not to do it….it’s got me wondering
    Sue
    Thinking if you today
    Jo
    You have your house back on the market? Hope the rest eased the back pain for you.have you heard how the carer and your mother are going together?
    Donna
    You relax now at your DDs at the beach..you deserve it after all that worry.i hope the family pick up now and healing from all .
    Chris

    • Chris, I don’t know why they are hesitating to give you an injection. Maybe they don’t think it would help that much, or perhaps there is not someone who feels confident in giving them. Over here in the States, the rheumies are usually internal medicine people, not surgeons. These injections are considered a form of surgery as they require precision. Infections are very rare but naturally the chances increase with each injection when one is introducing the bacteria on the skin deep within a joint. With all the pain you are having, if they think you should have one, why not get some relief? I also have often hesitated to get them because they an last a very short time and are not a permanent answer. You must judge for yourself with the honest advice of your doctors. Love, Sue

      • Thankyou Sue…certainly food for thought there..the rheumy wants to do one in my shoulder……are they different to the hip?
        at the moment I’m packing ice on my hip rubbing in gel and taking meds
        How did your injections go..it’s nearly midnite here .about 4 pm with you
        Our buyer playing up now not getting in contact with agents and soliciters ..be so glad with this is over..
        Anyway hope all went good
        Chris

    • Chris…my house is still on the market. We’ve had it “by owner ” but we haven’t been really trying very hard lately to sell with all the other things going on with my mom , etc. Chris, I don’t understand why you can’t get the injections done. Like Sue, my hip was done by an orthopedic surgeon a few years ago. It wasn’t guided under flouroscopy. But when I had a spinal epidural injection, that was performed under flouroscopy by a pain specialist because it’s more risky. I sure hope you will be able to get it done so you can feel better for your move!!
      Jo

    • Chris..I forgot to answer about my mom’s caregiver. It all seemed good in the beginning but now it’s coming out she has a bit of an anger problem. I did see one incident of her getting angry with my mom when I was visiting. Such a worry now. I think we’ll be looking for someone new.

      • Jo
        Oh no people seem to cover up how they are…we had one of those with my dad…what a worry for you..and so far away
        Back to the start again now. I do hope there is something you can do easily .
        Prayers that it comes good
        Chris

  28. Hello….
    Jo is right Chris, you should be able to get it done, and it would be a help for when you move……hope that gets settled for you soon, Tim and Claire had your problem before the relocated to Cornwall, these people seem to have no concept of what the waiting around does to your nerves, and if you are not feeling too great, it just adds fuel to the fire…….good luck and God bless….x

    • I don’t think I will get it done before we move now jen the date for the rheumy is the day before the date that could be set for the move..so I wouldn’t be able to rest it at all
      And the house sale is going ok now I’m happier with it
      Went to coast early evening it was nice ..had an icecream !
      Chris

  29. Mornin all
    Sitting on the porch in my pjs , and need to get dressed and on to the days needs. We decided to go to the barrel races tonight instead of going last night to see the bull rides. More horses.
    Donna PTL no bad things, Jennie, just explain to her about your health, or bring the dog to you ? Chris, hang in there. Sue, we are enjoying all our days together. The horses are fine, in the lower pasture hanging out under the apple tree. FM is watering the garden as we speak. We must get the AC units in the windows as it will heat up soon. No more leaving the doors and wi does open. Ugh. I enjoy the cool breezes at night. Yes, eating lots of veggies with the occasional sweets. Glad Jim is liking retirement. FM is so stressed about his, still no answers. He has to call his lawyer on Monday to see what progress is made. New president in May next year, afraid he will up the age and he will not go for this. So… Only know next year in the fall, we will be married. Something we both said we wouldn’t do again !
    Well, must get dressed and to work.
    Love to all
    Tonie

    • Well all sounds idyllic with you….and a wedding in the next year fall..brilliant !
      Maybe something will turn out unexpectedly for the retirement for you both..life has a funny way of turning out
      You maybe both Atlantic hopping together…who knows
      Tired now gonna try and sleep…used to be do easy once
      Chris

  30. Tonie, what a way to end your post!! God is so good! Congratulations!! So happy for you! You deserve to have someone by your side to take care of you and be there for you! Looks like a perfect match the two of you! God Bless you both! Love, Donna

  31. HELLO,
    CHRIS……………..SO GLAD YOU ARE HAVING BETTER VIBES ABOUT THE MOVE, SORRY YOU CAN’T GET FIXED UP WITH THE INJECTION IN TIME, BUT MAYBE LATER IF YOU STILL THINK YOU SHOULD. DID YOU HAVE ONE SCOOP OR TWO AT THE ICE CREAM SHOP……LOL

    TONIE….AN AUTUMN WEDDING, WOW!! GOT YOUR OUTFIT ALREADY SORTED IN MY HEAD….OH YES!!!
    THINGS WILL TURN OUT OK, SO DON’T EITHER OF YOU BE WORRYING, JUST CONCENTRATE ON GETTING SPLICED.

    SUE….GREAT TO HEAR YOUR JIM IS SETTLING IN TO RETIREMENT, IT MUST BE GREAT FOR YOU TO HAVE COMPANY NOW, AND I HOPE YOU BOTH MANAGE TO GET SOME OUTINGS UNDER YOUR BELT EVENTUALLY DURING THE WARM WEATHER.

    DH HAS HIS FIRST KNEE INJECTION ON TUESDAY, MRI FOR ME THE FOLLOWING TUESDAY, BEEN TRYING TO CUT DOWN OF THE ANTI INFLAMS, FOOT ON FIRE MOST OF THE TIME, WONDER WHAT I WILL BE OFFERED AT TREATMENT, NOT GOING TO LET THEM CUT MY FOOT OPEN THAT’S FOR SURE.
    HAPPY SUNDAY ALL
    JENNIE X

  32. Morning all
    Jo I just saw your post on the ablations. Yes, it is helping a lot. Slowly but surely. No, I don’t miss that heat. Here, we are only just starting to require the AC a bit during the day. Then at night, the cool air is all that is needed. Hope you sort things out with your moms caregiver. Not a good thing.
    Well, taking to truck to get new brakes. Hate that scraping sound you get at the end of their life. Best to do it now and get off cheaper. Waiting on the FM to finish his morning ablutions ! Takes him forever.
    My garden is coming on great, little zuchinnis on the vine, beans blooming, lettuce in, tomatoes blooming ! Can’t wait for them to be full of fruit. I love fresh tomatoes. I picked a bowl of raspberries yesterday ( sorry Jennie).
    Well, must be off. Sue, prayers for you my friend.
    Love to all
    Ps Lyn, prayers for you as well. And Suzanne.

  33. HI EVERYONE…….WELL OFF TO HE CLINIC FOR DH’S JAB THIS AFTERNOON, BEEN RAINING HERE ON AND OFF FOR FIVE WEEKS NOW, SO WON’T BE SURPRISED TO SEE A FEW SWOLLEN RIVER BANKS ON THE WAY……..GARDEN IS LOOMING, JUST A SHAME ITS NOT WARM ENOUGH TO SIT AND ENJOY IT AFTER THE WORK MY DH HAS PUT INTO IT…..BEEN THINKING AND PRAYING FOR THE VICTIMS AND THEIR FAMILIES FROM THE ORLANDO SHOOTINGS, HOW FRIGHTENING THIS IS, HOW CAN IT HAPPEN THAT SOME RANDOM GUY CAN OBTAIN WEAPONS LIKE THESE???
    TONIE……STOP GLOATING ABOUT YOUR RED PRODUCE, YOU KNOW HOW HARD IT IS FOR ME NOT TO SUCCUMB….LOL.
    THINKING OF EVERYONE, HOPING YOU ARE ALL OK……..JENNIE XX

  34. Dear Friends, trying to keep up with everyone. Have had several busy days of late with doctor’s appts., injections into the SI joints, adjusting to the new computer and now eye trouble. Our DD had a birthday last week and our son was here from Dallas for the weekend on his way to WA state on business. Wonderful to have some time with him.Jim is enjoying his retirement and so am I.!!! It seems to always be something but wanted to check in and tell you all I’m reading your entries. I had a rough day with the injections into the SI’s because I had to lie on my stomach and my chest is incredibly tender on the left side from the mastectomy and it looks like it always will be. I have two very bad knees which I was advised to have replaced several years ago but could not. You know it’s impossible to get onto your stomach on a hard metal table without going onto your knees? All in all a miserable experience I’m afraid. I hope it turns out to be worth the whole experience. I had to leave the hospital in a wheelchair so it can hopefully get better.

    Jo, I am disconcerted to see your Mom’s caregiver has a temper. That, I’m sure raises some fears for you because you thought she was more patient previously. Hope you can replace her soon and put your feaposss and your Mom’s safety in a better place. I know things will work out for you eventually with the house when the timing is right and you’re up to it. I hope your painful sitter is manageable at this time and the heat in AZ is not overwhelming. We’re having quite a rain and thunderstorm today with hail thrown in. Scared George. Do take care…

    Jen, I am sorry you can’t seem to get a break in the weather and hope you get to enjoy it very soon. Is it just plain cold and damp? I know, that Tonie, eating berries with seeds in them and bragging to those of us who can’t!!
    I pray the situation with your friend works out for her health and the dog situation. You’re such a sweet and kind friend to worry about her. How is the situation with your feet these days? Let’s pray for sunshine for you and for the garden. Indeed, our whole country is in mourning over the horror in Orlando. Very complicated malignancy that is facing both of our countries and so many others. We all must find some answers.

    Tonie, sounds like farming at your place is going quite well. How’s the construction? Must be so nice to go out and pick enough for a salad and have your personal chef prepare it. Oh my…I hope your back is getting better each and every day dear friend. Think of you so often and know this is a happy time in your life.

    Chris, glad you’re getting out and about a bit in spite of the hip. Let’s hope the person selling their house will get on the stick and get things in order for the tumblers to fall on the whole transaction and you can end the waiting. Know you got my email. Thanks for remembering and asking about the injections on Friday.

    Lyn, see you’ve been getting in some fine, leisurely walks with Sadie. Your area looks very beautiful. Hope your body is cooperating these days.

    Donna, you’ve had so much going on in your family I can’t keep up but pray all is going well and healing for your family. Hope you’re enjoying the coast and your visit with your daughter. Aren’t daughters wonderful?

    • SUE…….SO NICE TO HEAR FROM YOU, BEEN PRAYING FOR YOU AND CAN WELL IMAGINE THE PAIN OF TRYING TO LAY ON YOUR TUMMY, I CAN’T DO IT EITHER, WHICH IS WH I AVE STOPPED GOING TO THE OSTEOPATH, ITS NOT JUST THE KNEES ETC, BUT MY NECK, JUST CAN’T DO IT. I AM GLAD YOU ARE BOTH ENJOYING JIM’S RETIREMEMNT, SOMEONE TO TALK TO WHEN YOU FEEL LOW IS WORTH EVERYTHING.
      WEATHER IS HARDLY WORTH DISCUSSING, JUST WHEN YOU THINK THAT YELLOW THING IN THE SKY IS ON YOUR SIDE, DARK CLOUDS COME AND BUGGER IT ALL UP AGAIN, AND DOWN IT POURS. AN OLD GUY ON TV THE OTHER DAY, SAID DON’T BOTHER LOOKING AT FORECASTS, THE ONL WAY TO PREDICT IS TO WATCH THE BIRDS AND ANIMAL BEHAVIOUR, IT WILL TELL YOU ALL YOU NEED TO KNOW….AT THE MOMENT THE BIRDS ARE FLYING HIGH HERE, WHICH MEANS NOT ENOUGH IN THE GROUND FOR THEM SO THEY ARE CATCHING STUFF IN THE AIR…………..
      DH HAD HIS FIRST SHOT YESTERDAY, AND HE WAS OK, AND THERE IS A LOT OF RELIEF TODAY, ANOTHER NEXT WEEK AND THE ONE AFTER, THEN HE IS DONE, I DON’T HAVE THE HEART TO TELL HIM IT WON’T LAST AND WILL COME BACK, AND FEEL WORSE BECAUSE OF THE RELIEF HE JUST GOT USED TO.
      MY FEET ARE TROUBLESOME, I CAN GO MOST OF A DAY, AND BARELY FEEL THE TUMOURS, BUT THE NEXT DAY CAN BE UNBEARABLE……..ITS JUST THE WAY IT GOES, BUT NOT HAVING SURGERY…NO WAY.
      BET YOU WERE OVER THE MOON TO SEE YOUR SON, AND WISH IT WERE MORE OFTEN LIKE ME AND MINE, BUT TIM AND CLAIRE ARE DOING WELL, HALFWAY TO FINISHING THE LITTLE HOUSE THEY BOUGHT, WORKING WEEKENDS AND STILL TRYING TO LOOK AFTER THE BIG HOUSE AND GO TO WORK EACH DAY, BUT THEY ARE STILL YOUNG, SO HAVE THAT KIND OF ENERGY……NO WORD FROM NIKKI, I FRET ABOUT IT DAY AFTER DAY, BUT SHE REFUSES TO TALK AND THERE IS NOTHING I CAN DO ABOUT THAT….WELL I HAVE BLETHERED ON LONG ENOUGH TO THE POINT OF BORING EVERYONE TO DEATH.
      MUCH LOVE TO YOU SUE…….AND TO ALL…..JENNIE X

      • Jen, it’s good to chat with you like this and I love such a long comment. I do wish for better weather for you and the birds. Pleased DH is feeling better after his shots and hope it lasts, also. It seems so many of us are just going from day to day and perhaps that’s the way it is for everyone, sick or not. Does it help your foot pain at all to wear soft or padded socks. I know I just have the one little growth on the bottom of my left foot and I feel it so much less with a padded sandal or sock than barefoot.I hope they are checking them for any growth in size.
        Sounds like Tim and his sweet girl are doing well. I know you worry about him. As far as Nikki, well, a mother like you who has so much caring will always worry about a trouble child, no matter their age. I am sorry. Yes, we had a great visit with our son and he asked if there was something he could do while here and took about an hour to clean out some of my pots of flowers or trees in the front of the house. It was a big help. He definitely got the farmer gene from my Dad.
        As far as the hard table in radiology, I am so tender on the left side of my chest where I had surgery and apparently always will be. I can’t even stand to have Georgie walk on my chest when I lie down. Nobody told me about that part of having a breast removed…that it would always be that way but part of it is because I am so thin right now. So good to get an upate from you. Love, Sue

        NOTE: For any and all of you who are on Plaquenil, the anti-malarial for rheumatoid disease, be sure to have your semi-annual eye check. I am now having toxicity in my eyes and early signs of damage so have to go off the drug. Those checks are important. Mine was fine the last check but after twenty years, well…

    • SUE, SO GOOD TO HEAR FROM YOU. I WAS THINKING ABOUT YOU AND HOW YOU’RE INJECTIONS WENT. I HAVE THE SAME DIFFICULTY LAYING ON MY STOMACH BECAUSE OF MY NECK AND LOW BACK. I HOPE IN TIME THE INJECTIONS TAKE EFFECT . I REMEMBER WHEN I WOULD GET INJECTIONS, I ALWAYS FELT A LITTLE WORSE BEFORE RELIEF CAME. I AM GLAD DH IS ADJUSTING TO HIS RETIREMENT AND I KNEW YOU WOULD ,BE HAPPY TO HAVE HIM AROUND TO TALK WITH AND GET OUT A LITTLE TO DO SOME THINGS. IT IS A BIG ADJUSTMENT TO BRING HOME AFTER WORKING MANY YEARS AND EVEN FOR YOU WHEN YOU GOT USED TO BEING ON YOUR OWN.
      THIS PROBLEM WITH THE CAREGIVER IS QUITE DISTRESSFUL. MY MOM HAS JUST TOLD ME SHE’S “ROUGH” WITH HER WHILE HELPING HER DRESS . I DON’T KNOW WHAT TO THINK. IS IT BECAUSE SHE’S FRAIL AND EVERYTHING HURTS HER ? I TOLD MY BROTHER THERE AND HE KNEW ALREADY AND TALKED WITH THE CAREGIVER. HE ALSO ADDRESSED THE ANGER OUTBURSTS. WELL SEE NOW….IT’S A RED FLAG TO ME TO FIND SOMEONE NEW.
      STILL HAVING SITTER ISSUES AND RESIGNED TO ALWAYS HAVING THEM. I’M WAITING FOR MY HEALTH INSURANCE TO GET STRAIGHTENED OUT SO I CAN PURSUE TREATMENT AGAIN.
      HOPE YOU AND YOUR NEW COMPUTER ARE FRIENDS NOW😁. HAVE,A GOOD DAY SUE…LOVE, JO

      • Jo, I can see why you are so concerned about your Mom’s caregiver. That is such a worry. Do you have an agency looking for someone new? Even if your Mom is exaggerating a bit it still should not be that way and the outbursts, well that is just not to be tolerated. Gosh, it’s so hard to grow old in this life. I pray for a resolution for you very soon.
        I know, constant sitter issues is a bitter life to deal with at times. It is just so invasive into all areas we face each day. Thanks for the encouragement of telling me the injections can get worse before they get better. I have usually had immediate relief but this is different this time and with these joints. It feels more like I’ve been kicked back there.
        I know it will be a relief for you to get your health insurance straightened out and pray that happens very soon for you. So important when one lives with these kind of problems. I’ll be praying you find someone soon for your Mom. Love, Sue

  35. Hello, everyone, quick pop on for a prayer request for those who are so inclined. A HS classmate of mine’s daughter had complications at the end of her pregnancy causing them to induce. Baby had the cord wrapped around his neck, abdomen and foot but is now fine. My classmate’s daughter is not. She’s had 3 surgeries and a hysterectomy to try to stop hemorrhages. They found she has a rare blood disorder, DIC, which is causing the hemorrhages and she’s fighting for her life. I can’t imagine…

  36. Sue……..just checked the weather it is looking good, but the French weather forecast is crazy, I can check it tomorrow, and it will be different…….lol.
    I wear special slippers for arch of foot indoors, and any shoe/sandal with comfort souls outside, I get by, there are worst things at sea.
    Nikki is a law unto herself, I now know nothing about what she is doing, neither does Tim, when he calls her, she dodges his questions with such skill, that he gives up in the end………
    That was nice of your boy to do those things for you, I bet he was glad to help his lovely Mom.
    Look after yourself my friend…….much love….Jen x

    • Jen, my heart aches for you and for Nikki. I think that’s the hardest part of being a mother. You give the wings and they can fly into a wall. She will have to wise up eventually. I am sorry to hear she won’t talk honestly with Tim but at least she is talking to him. Your slippers sound good and comfy. I saw the foot doctor this AM and my fibroma on the bottom of the foot has grown very little. He said he could inject it with steroids and I said, “No thanks.” Compared to all my other problems it’s nothing. Your’s sound much more troublesome but I don’t blame you for avoiding surgery. Crazy whacky weather for both you and Chris sounds like. Love you, Sue

  37. Hello everyone. I’m just getting caught up on everyone’s posts. You are all in my prayers even though i don’t post as much. I (for the first time) had my biologic approved first try and there won’t be a break in my treatment. I’ve had more VI issues again and have considered adding turmeric to my meds. It also helps the liver and I know all the meds all this time has been stressing it. I’m having more fatigue than I used to as well as far less endurance as far as my spine issues and pain doing basic things. That is bringing me down a little.I hate having to as for help but living alone without much support in the day to day things like cleaning and grocery shopping. A friend did take me to the store Saturday, I got my basic things. Having help getting the bags in the house made a difference. I’ve quit both the dog training club as well as the Kennel club (separate groups). They aren’t like the group’s I’d joined so no need to stay. Remi is turning into a very good service dog, alerting, bracing, and can pull the wheelchair when needed. Nessie is having chronic medical issues as a result of what was likely a wolf spider bite. She’s no spring chicken as 12.5 but I can see that we will likely have to treat it the rest of her life with steroid. She still tries to be my service dog and pouts when I take Remi with me.

    • Laura, watch the dogs on FB and hope Nessie will improve. Good news about your biologic. I know you’re feeling relieved. Indeed, living with pain and disability is challenging…to say the least. Hang in there, one day and one challenge at a time. Love you, Sue

  38. Hi all
    Sue I hope they can give you something else now you have to come off those meds..always something
    Also that your back starts to get better. With the injection .
    So good to have your son to do the garden for you it must feel,better to look at now
    Lyn
    Prayers for your daughters friend and little one
    Jen
    The weather is appalling here too thunder rain etc and cold but then it goes muggy
    Tonie
    I’m not good with any seeds even cucumbers and tomatoes ..does your FM eat those ?
    Jo
    It’s a worry .roughness…but my dad said that as well..I was always unsure that any lifting would have felt like roughness..and then that my dad was just saying it..but I still had to believe it as that was as he saw it

    Well been so busy cleaning pots to take and cleaning the stains they leave behind them ,cleaning garden furniture up etc
    Looks like exchange taking place soon fingers crossed just getting all of us to agree a completion date
    So got July 7 potentially booked for removals
    Hip bad ..ugh
    Love Chris

    • Chris, Move sounding more and more hopeful. So good. It’s got to be a good feeling of accomplishment to get the garden pots and furniture cleaned up. I felt that same feeling when Jim cleaned up our front porch from the winters dirt and grime. Fun to put out a few plants and to revive the old ones that are coming back from last year. Yes dear it was kind and sweet of our son to pull some weeds. I have two potted Japanese maple trees, one green and one red and they needed weeds pulled around the trunks. I love our tiny garden and should do some furniture cleaning myself. I think spring is here although it did rain again today. Store today with Jim and the foot doctor. All is well so far. Don’t know about back yet. Yes, with the antimalarial changed I am going to try Turmeric. Bought some today. Late here but didn’t want the day to pass without getting back to you. Grands all day tomorrow. New blog this weekend, finished it today. Love to you and DH, Sue

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