THE PARTY IS POSTPONED!

My dear friends and readers, I’m afraid we must sweep up the confetti, deflate the balloons and delay the “Sue’s doing better” party for now. We saw the breast surgeon yesterday and the final, final pathology report is not all roses. Terrible news for spring, I know.

 

In surgery the initial reports were wonderful. The four lymph nodes she removed along with my left breast were clear; on initial viewing. However, the pathologist at the wonderful hospital in Portland, OR, repeated them twice. Within each of the nodes my surgeon removed there were tiny, minute clusters of cells and within those tiny “babies” there were 1-2 cancer cells…at least in some of them, about half of them.

 

The ballgame has changed. I am in a state of being that is difficult to describe. Jim, my dear husband is rocked, exhausted and life has changed for each of us. Where do we go from here? We have examined our options and I don’t want to drag you all through it, not yet. First of all I am waiting right now for phone calls from the hospital here in Astoria to get back to me because we must find out if the cancer has spread. That will mean a bone scan and CAT scans of everything I own…practically. Then we will decide, all of us including the oncologist, my cancer surgeon (still wants to be the guiding force), my rheumatologist and my wonderful cardiologist. I will keep my dear primary doctor in the loop and then, of course, there is my eye doctor regarding the vision issues with Sjogren’s syndrome.

 

I wish I had more reassurance to pass on. I do not. We have much to do over the next week or two and right now I feel like an old boiled, lifeless lasagna noodle, limp, flat and sauceless. Strangely, I am okay in my attitude. I am all cried out. Now we wait to see what is next. Both radiation and chemotherapy have been recommended by the tumor board at my “big” hospital, Good Samaritan in Portland, OR. There is talk of ports for the IV to enter, the possibility of me staying in Portland for the six weeks, six days a week it would take for the radiation and much more. Last night I talked to my daughter, sweet girl, and she was devastated but will be there every inch of the way. I also spoke to my son who is in New Orleans for the medical company he works with, having dinner at Emeril’s restaurant. I tried not to hate him for that…imagine. I spoke with my daughter-in-law. Jim and I are all talked out after our total four hour drive yesterday.

 

I am married to not only a fine nurse, but a man whose feelings run deep. He is hurting. I am hurting emotionally, of course, but my surgery is healing nicely. All drains are out, most bandages are off and now, we follow the bread crumbs to the next step, the next step and again, the next step.

 

C.S. Lewis was so correct, of course, when he wrote our God is too small, because we make him finite. We do that to try to understand, I think. Our dear Lord knew this time would come in my life from the time I was born, and before. He is omniscient, all knowing and loves me more than any human love; and believe me; I am blessed with a lot of that as well. Please pray.

 

I would love to hear from each of you but let’s not chat by phone, please. Not just yet. I must rest, think, read and just rest in the Peace that is past all understanding. Thank you.

69 thoughts on “THE PARTY IS POSTPONED!

  1. My dear sue…this is news none of us wanted to hear
    At a loss what to say
    I’m devastated with this news
    We all will be
    That peace that passes all understanding,I wish it will circle you this weekend along with the family
    All my love Chris

    • SUE……I CAN ONLY REPEAT WHAT CHRIS HAS SAID, THERE IS NOTHING ELSE I CAN SAY EXCEPT I LOVE YOU, AND SEND BLESSINGS AND PRAYERS TO YOU……KEEP FIGHTING SWEETHEART, JUST KEEP FIGHTING……….JENNIE X

  2. Dearest Sue, You, Jim and your family are in my thoughts and prayers. May God wrap his loving arms around each one of you and give you the strength to keep following those bread crumbs. Sending gentle hugs and love. Karen

    • Oh Sue, I too am at a loss, no words are coming too me. I can’t even imagine how you and your dear family are feeling. As Karen said ” May God wrap his loving arms around each one of you and give you the strength to keep following those bread crumbs.” I know you will follow them cause they will be there!
      God is in charge. Love to you and your family. Healing prayers and angels my sweet Sue.
      XXX

  3. Dear Sue:
    Hang in there mama ! You are inching up that long hill. Soon it will level off and you will see into the valley below. (I hear the view is fabulous) In all seriousness, you are in my thoughts and prayers constantly. His hands are over yours and His arms wrapped around you and your family. (I can really see that in my minds eye). Holler if you need me !
    Love you
    Tonie

  4. Sue so sorry at the news. I do wish surgeons wouldn’t tell patients something they really don’t know until the full path report is back. That being said, I hope and pray that a few cells in a few nodes may be all the spread there is to be found. I hate the thought of further treatment in view of your medical challenges but love that your providers are taking a team approach. It is one of the best type of care and found in few places in the world. I also love that they took out the cancer so quickly. Some places (here) they frog around for months from first mammogram to making a treatment plan. I would be making quite a scene if a plan didn’t go as quickly as yours did and my providers didn’t consult each other. (They also don’t do that here) I’m only a phone call away if you need to vent or bounce medical ideas off me (not being related or living with you I’m a safe shoulder) Love you and prayers continue.

  5. Sue I am at a loss for words, as everyone is. My prayers are with you, Jim and your family. May God wrap his protective angels wings around you and give you the mental and physical strength to fight this battle. Love, prayers and gentle hugs, Bev

  6. DIDN’T SLEEP TOO WELL LAST NIGHT, KEPT THINKING HOW OUR SUE WAS COPING, ALONG WITH HER FAMILY, I PRAYED FOR THEM ALL OF COURSE, BUT ALSO FOR THE SKILL OF THE DOCTORS AND NURSES TO HEAL HER…….TAKE CARE OF YOURSELVES EVERYONE….LOVE YOU LOTS….JENNIE XX

  7. Same here. But knowing Sue has a fabulous team of doctors all working together (so fast I might say) is a very good thing.
    God bless everyone on the blog. Healing prayers and angels.
    love you big!
    XXX

  8. Morning all:
    Like you I have been in prayer for Sue and all the goings on. We need to press onwards and let her know that we too, will take this in stride and not get morbid. It is in the Hands of the Potter and no better care and anyone have. So much has “come together” in her care that it is quite evident that things are going a smooth path. It is now a waiting game for the treatments.

    I really named one of chickens (last year) so correctly. Chickie Sue is so like her namesake. Curious and adventuresome, always looking around and going the new direction 🙂 She has decided she is one of my dogs and wants to come in the house all the time ! THis am she has been on the porch for several hours, just waiting. If I go outside, she follows me around. I can now pick her up and hold and pet her. It is so funny ! She even knows her name. WHen I was a kid I had a pet of one of my mothers chickens. It lasted til cold weather. THe widdies are growing by leaps and bounds. Soon they will be big enough to go into the pen with the other girls. Then I will name them 🙂
    It is beautiful here today and I have so much to do. However, it must be a rest day as I am worn out. I worked 4 out of days this week plus a visit to the dentist. Tomorrow I drive the 2 hours to see my son and back and have to work on Monday. SO …..it will all have to wait I guess. I hope you all have a wonderful day and are blessed in it.
    Love to all
    Tonie

  9. Sue, you know you and your family have my prayers and support. Warm fuzzies, gentle hugs, and all the positivity I can muster. 🙂

    Tonie, I can just picture you and your Miss Sue. So funny.

  10. Dear Sue, it is strange how our lives are close to each other.Since Jan. I have been on the medical wheel with the mamo,ultra sound mamo, cat scan and pet scan. Last week I saw the surgeon for a biopsy and the wheels quit turning. There is nothing there but get another cat scan in 3 months? On what? If nothing is there? And my oncologist is retiring next month. So nothing is for sure and I pray that all your tests and surgery have got it all out. It is hard when you have so many other things going on in your body. It is hard to not let your grandkids see you hurting and your dh. That is what I found the hardest was to never let them see me down when you want to curl up with warm blankets and your little dog and let it out. Love you Sue, ^j^ Barb

    • Barb dear, yes it is interesting..all the correlation in our lives. Do I understand correctly that you are in remission? Praise God if that be the case. You are dear to me although over the many years we have never physically met. I’m afraid I have no problem letting it all out, except around the grands. Hold my short closed and my feelings are all smiles for them. Don’t want to frighten them. Little George and Jim as well as daughter and son all understand. Thoughts of you often…love you much..love and treats for Blu. Sue

  11. Sue, as so many others have said, I’m at a loss for words. I look outside at this beautiful day we’re having, and just can’t imagine the upset you, your family (including THIS family) are all sharing. May God bless and keep you. Today the song “you are always there” keeps going through my head. And HE is always there for us. You know you have a praying bunch here, and He’s being bombarded with prayers for you.
    I love you so dearly.
    Linda

  12. Sue, prayers continue in Oklahoma for you during your difficult journey. God is still there during the darkest of times as well as the days when we can rejoice in even a small blessing. You and your family are in my thoughts. Liz

  13. Praying that you keep your chin up, as you always do!! I pray the Good Lord will heal you quickly and you can put this behind you and Praise God for helping you through it! Love and gentle hugs sent your way!

  14. So true Linda. He is being bombarded with prayers for Sue and all the other families on this blog that are going through the same or a different ordeal.
    Thanks be to God!
    Gentle hugs and XXX to all on this blog who are suffering at this moment.
    love you all.
    XXX

  15. Sue, precious one- how I wish I could make this “all better”… Alas my fairy wand and magic bubbles only seem to work for the under 5 crowd.
    I was on a retreat this weekend and one of the things that most impressed me is how God invites us, and longs for us, to bring all of ourself to Him- heart, mind, soul, and body (strength). The same way we are to love Him. Our fear and anger are as welcome in His presence as our joy or praise. Our thoughts, our feelings, and our actions are all a part of our communion with Him. Press in close to His heart, under the shadow if His wing, and rest there. Our prayers are being lifted all around the clock and from around the world. You and your dear family are enveloped in our love. As my very wise mentor used to say: “Never give up- just rest.”
    Much love and fervent prayer, “Princess Crabby Pants”

    • Annie, this is so well said. Your post is an inspiration to me, and I imagine it will be to many others. Much love to you, Princess!

      • Yes Linda you are right. Annie your post is so comforting to me also. Thank you for that! I know that our Sue already feels this way, but it is always nice to be reminded of the greatness of God.
        Prayers, love and angels to all on this blog.
        XXX

  16. Dearest Sue, I didn’t think we could post on this blog but just saw the number 17 and clicked on it! I am at a loss for words, but can’t imagine how many prayers are being said for you my friend! Love, prayers and gentle hugs coming your way for you and your family.
    Much love …. Pommum Brenda

  17. HELLO……THERE IS NOT A LOT I CAN ADD TO ANY OF THE COMMENTS MADE ON HERE NOW, BUT IT DOESN’T STOP ME PRAYING FOR SOME GOOD NEWS IN TIME………………..SO HOPING YOU ARE ALL HAVING A QUIET AND PEACEFUL WEEKEND, ITS WHAT WE ALL NEED…………………LOVE IN HEAPS….JENNIE XX

  18. OH HECK……GOT CARRIED AWAY TODAY AND EATEN TOO MUCH….JUST WHEN I WAS LOSING A BIT BEFORE MY TRIP TO THE UK……MADE A LOVELY FRITATA AT LUNCH, THEN LATER HAD TOASTED CRISPY BACON SANDWICHES WITH KETCHUP, THEN PANCAKES WITH LEMONS….OH MAN IT WAS AWESOME……PAY BACK TIME TOMORROW, GONNA HAVE TO WORK MY BUTT OFF WITH PILATES, AND TRY AND DO A CYCLE IN MY LITTLE TORTURE ROOM…..LOL. BLOOMING FREEZING HERE TODAY, CAN’T COPE WITH THIS STRANGE WEATHER, SUNBATHING YESTERDAY…..ALL THE FIRES ON TODAY, WHATS HAPPENING HERE, IS IT THE SAME FOR EVERYONE ELSE….NEVER KNOW WHAT TO WEAR HALF THE TIME.
    DREADING TOMORROW WHEN I SPEAK TO MY SISTER, THEN I WILL FIND OUT IF HARRY IS STILL WITH US, POOR LITTLE SOUL…….OK LADIES, WISHING YOU ALL A GOOD DAY, MINE IS NEARLY OVER……THINKING ABOUT YOU ALL…..ESPECIALLY SUE……..KEEP SAFE AND GOD BLESS………………JENNIE XX

  19. Jen. Just eat careful for a few days..you just back on it again .you can do it girl
    It’s cold here today..the winds been up.gives it warmer tomorrow and for next few days

    My dad was in hosp over night.fell down again.amb took him in .
    Done all the X-rays and he has cracked some ribs.but he is in less pain today
    His elbow is all swollen

    DH had to increase bp meds and it has come down ,just the side effects?but he had an ear infection which he has meds for as well so some of the balance probs have improved
    Me ..well I’m hanging in there!

    Tonie
    I hope your trip went well and you are back safe

    Sue
    Thinking about you all the time
    Love Chris

    • OH dear Chris, cracked ribs, your poor dad must be feeling pretty sore. Poor soul. Hope your DH will feel better soon. You keep hanging on sweetheart, and don’t forget to tie a knot at the end of that rope.
      Healing prayers for all three of you. With angels to stay by your side.

      Hope everyone else if doing okay. Love to all on the blog.
      XXX

  20. Hi Friends,
    I need some advice from the nurses here, or those who just know because of caretaking. I have got so bad, I can hardly walk. So, I sit a lot. It’s a choice between lying in bed and sitting, so I sit. Trouble is, I’m getting pressure sores on my butt. I don’t think the skin is broken, but they do hurt. Like I needed that, huh? I know since I stopped working, treatment for this has changed. I don’t want to use duodern for I know it “wads ” up and makes more sore places. keith picked me up some balmex at Wal-Mart and that feels good when I first put it on. But, it’s mainly zinc oxide and it comes off easily. And I think that protects my skin from feces and such, but does not really work on the sore areas. So, what’s the treatment of choice now? I can’t get up and do more; my knees are completely gone, both of them, my ankles feel frozen with little rom left in them, and my lower back hurts so much I can’t stand erect. I force myself to get up and walk (with a walker) to the other end of the house. But, I don’t get far without doubling over with pain. I have an electric wheel chair, but my halls and doorways are too small to use it in the house.
    I’ve been back on the Humira for 7 weeks now, and I’m getting another nasal and throat infection, have the staph infection back in both eyes (last time it was only the left one). I love the way the Humira controls the Crohn’s, but I’m not sure the control is worth all these side effects. I have no clue what will happen next. This is my 3rd biologic drug. The first just quit working, I was allergic to the second, and now this. I have thought about asking if I can take it every 3 weeks instead of every 2 weeks, but the last few days before my next injection is due, I start having symptoms. Maybe I can control that 3rd week another way, I just don’t know. I hate to be dumping all this on you guys, you’ve all got your share + with pain and illness.
    Any advice will be appreciated.
    Linda

    • Gee, Linda wish I could help you, but I have no knowledge about this. Hope someone on this blog will be able to sort it out with you. Healing prayers and someone who has knowledge to problem solve. Praying for you sweetpea! Wish I could have been more helpful. Love you big. Please keep us posted on how you are doing.
      God Bless you.
      XXX

    • Linda, I feel for you. So much to juggle and deal with. I, too, wish I had words of wisdom for you. Maybe Bobsled will check in and have some words of wisdom, or Annie. A friend’s daughter is set to start a biologic for her celiac disease. The daughter is young, 20, and she is concerned about side effects. I am encouraged that they did seem to help your Crohn’s. Hopefully it will help her Celiac.

      • Lyn and Suz, it helps just knowing that you care. Lyn, the manufactures of the biologics keep close tabs on patients using their drugs. My reaction to the Cimzia was a rash, itched like the dickens! They all do have some very bad side effects, but having Celiac disease, I’m sure she knows her body very well. That’s something I think all of us with a chronic illness learn quickly. Tell her to never hesitate to call her doctor or the drug company if she has a concern. My greatest problem has always been the opportunistic infections, from lack of an immune system. I was concerned at first, because I have so many environmental allergies. The Remicade scared me the most, it has a mouse protein component, and I’m allergic to so many animals. But, they just gave me a Bendaryl before the infusion and never a problem with an allergic reaction. I’ll keep her in my prayers. I do hate that she has to go to the ‘big guns” so young.
        Linda

      • Thanks, Linda. I know, I was surprised when her mother told me. Well, she actually asked me because she didn’t know if I might be on one for my RA. She got a little nervous when I said I was putting them off as long as I could and just on DMARD for now.

      • Lyn, I’m surprised by your young friend’s physicians because I have NEVER heard of anyone going on biologics for Celiac disease. The approach is always a strict gluten free diet. Confusing situation. Sue

      • I know, Sue, threw me also. I know she is already on gluten free diet. Maybe there’s something else going on I don’t know about?? I surely didn’t see that one coming.

    • Linda, I’ve been wracking my brain trying to think of things to help. Part is nutritional to try to help tissue heal by increasing your zinc and vitamin c levels as you are able with your gut issues. I worry about skin shear as much as pressure, that you are sliding too much getting in and out if bed and chairs. I also wonder if a real sheepskin fleece (very dense but silky) might help with cushioning and sliding with you to get in and out of chairs and bed. A cushion with water or gel to distribute weight better while sitting may help. If the skin is open I remember using honey or MOM on the skin to help healing. I hope any of this helps

    • Linda dear, just saw this…here is what I would do. After our experience with Annie, our Jack Russell…she had a raw ass from one hip to the other with open wounds from the surgery, remember? I would do what we did for her. First get some thick abd. pads. Then get some good honey and cover the area with a tongue depressor or clean wooden spoon. Then cover with an op site or the large soft abd. pad. Don’t tape or us anything that will pull the skin off.
      Do your best to lie on your side whenever possible. Try not to sit. This works great for open wounds, honey is a natural antibacterial and it was like magic. No pressure down there dear heart. Love, Sue

  21. So very tired. Back from my trip down south to see the kids. The boys are SNORING 🙂 they had a ball. AND I just heard from my oldest grandson, ….I am going to be a GREAT-GRANDMOTHER . WOW , all I can think of to say. WHere did the years go ??

    • congrats Toni. That’s so exciting. I’m glad you had such a good time. I saw the pic of India and her brother on FB, they are just beautiful. Now, I hope you’re snoring right along with your guys, I know you said you have to work tomorrow.
      Linda

      • Hey Tonie CONGRATULATIONS!!! WOW indeed, a GREAT-GRANDMOTHER. WOW…..
        Hope you are sleeping tight. Have a good day tomorrow.
        Love ya sweet girl.
        XXX

  22. As a nurse, I pray every day that my family will be free of the terrible diseases that I see every day while working in critical care. I also know that life is normal one day and the next could find you in the hospital fighting a very personal battle. I would hope that my family would stick by me in the event of a devastating illness but I do know that it’s a very lonely journey. God bless and remember to take one day at a time to deal with your pain and may God give you inner peace to make those good choices that are right for you. Bren

  23. I REGRET TO INFORM YOU THAT LITTLE HARRY DIED IN THE ARMS OF HIS MOTHER ON TUESDAY, AGED 6YRS OLD. THE FAMILY WIAH TO THANK YOU ALL FOR YOUR SUPPORT THROUGH ME ON THE BLOG…….TOO CHOKED UP TO PUT ANYTHING ELSE JUST NOW….WILL WRITE TOMORROW………..LOVE YOU ALL………..JENNIE XX

  24. Sue, I’m still thinking about you and keeping you, your family and medical providers in my prayers as well as all of the pain group here.

    Life can be unpredictable at best. I’m trying to stop planning too far ahead yet make some goals to have something to look forward too. It is a bit difficult to do both. I made the plunge and got a generator which will be delivered tomorrow. It won’t run the whole house but it will make it possible to keep the fridge cold and my birds, dogs and I warm (or fans going to prevent overheating) as well as adequate lighting for my needs. It will run 8 hours on regular gas before I need to add and it turns on with a key, not a pull start. I’ve been debating for years and have a very tiny generator that will run one electric hearter for an hour at a time. It’s a pain. The electric infrastructure around here is very old and it doesn’t take much to have an outage. I’m without probably 3-4 times a year at least. Being a sick spinster living alone I just can’t go long before I have to ask for help during outages so…. I just don’t want to be so dependent. We had temps in the 70’s and thunder storms last night and snow is predicted tonight I’ll admit my joints are not happy.

    • Laura, you know how I feel. Ever since when bought our whole house generator in 2008, we’ve slept more peacefully. We have a guy who services it once a year and it’s great. Any generator, I think gives you that feeling of security in this most uncertain world.
      I’m so sorry you are still facing so much winter. What a year, huh? Can you see the ground yet? Whoosh. Love, Sue

  25. OH JENNIE, SO SORRY FOR LITTLE HARRY AND HIS FAMILY. I CAN UNDERSTAND YOU ARE TOO CHOKED UP.
    MAY GOD BLESS YOU ALL. LOVE YA
    XXX

  26. DEAR LAURA, SO HAPPY TO HEAR YOU GOT A GENERATOR. THAT WILL CERTAINLY MAKE YOUR LIFE EASIER. I KNOW IT WOULD MINE WHEN THE ELECTRICITY GOES OUT. WE USE TO USE A WOOD STOVE IN BASEMENT BUT IT BECAME TO MUCH WORK FOR US. NOW THERE IS NO WAY GEO COULD DO IT ALONE.

    SUE SWEETHEART, STILL SEND HEALING PRAYERS AND AGNELS YOUR WAY. YOUR WEEK IS VERY BUSY AND WE WILL ALL BE THINKING AND PRAYING FOR YOU. LOVE YOU TO TH E MOON AND BACK.

    GOD BLESS US ALL.
    XXX

    • Suzanne, Indeedy. Wed. is the day for all the scans and X-rays. Have to go for lab tomorrow and think I’ll stop by the radiology dept. and chat about the effects of my being dry for that long with the Sjogren’s Syndrome. So many folks don’t know how dry one can get and how it can hurt the eyes, throat and whole swallowing set up. I figured out a long time ago if I don’t communicate with others, then it’s really my own fault if they don’t understand.
      So when will you be able to start some new meds for all of your misery? I’ll read back through and see if I’ve missed something..could be. Love you..Sue

      • Haven’t heard back yet from Rheumy cause I still have the MRI to get done. This will happen on Thursday at 10 a.m. my sister will be having her CAT scan at 9:30 same day. They want to make sure the cancer has not spread any further. They do know she has cancer in the lymph nodes so she will be needing chemo or radiation or both. They have not decided yet. My Rheumy said she would call me back once she has all my tests. Hope I will be getting a call soon. All in God’s time as we all say. I’m learning to wait, but very hard. Since this is Easter week, things will be slower than usual. Would be nice if my pain was controlled. All I can do now is lie around, I do make supper most nights for us. I have to pick and choose because if I don’t I find myself in so much pain I’m in tears.
        Hope all went well today and you were able to have a chat about the effects…..
        Healing prayers for you my Sue and angels to guide you during this difficult week.
        love you big!
        XXX

  27. THANK YOU FOR ALL THE KIND COMMENTS REGARDING HARRY, I HAVE ALREADY PASSED THEM ON TO HIS PARENTS VIA MY SISTER…….STILL CHOKED UP, BUT LIFE GOES ON, AND HARRY IS AT PEACE NOW AND ITS TIME TO CELEBRATE HIS SHORT LIFE, HE WAS A HAPPY LITTLE SOUL AND WOULDN’T WANT ANYONE TO BE SAD.
    SUE GREAT TO SEE YOU ON HERE AGAIN, GOT A BUSY DAY SO WILL COME BACK LATER….LOVE TO ALL….JENNIE XX

  28. Linda, it has been a long time since I dealt with pressure sores, but would it be possible to spend some of your day lying on your side in bed? I am unable to sit for long periods so I spend much of my day not in bed, but dressed on top of it, with my laptop, books, and TV. If the skin is broken dry heat helps heal such as white light or I have even read that a warm hair dryer on the area can dry and promote healing.
    I have had very few side effects from the biologics and at this time I am experiencing proof at how well they work. I had injection site reactions with Embrel, and with remicade and humira, it we moved on looking for a greater response. Orencia was great until it stopped working this winter and I can now walk very little due to pain in my feet. I have recently had to get my wheelchair out again … it was either give in and use the wheelchair or stay at home! I have now started the wash out period for the Orencia, and I will have my first infusion of Actemra in May. I know the reactions to this drug can be more severe as I was able to have orencia at home but I must have Actemra at a clinic with a doctor available, but in the US it is available to be given at home by self injection … guess the dose is much smaller. I think this option will be available to me in the future s Canada is slower than many other countries at approving new drugs. What I have found out with my recent experience is that the Orencia was making a huge difference in my quality of life and I hope and pray we can find another drug that works so well for me. know now that without these drugs I will be bed ridden or in a wheelchair so it is definitely worth risking possible side effects to be able to walk once again. They also believe they stop or delay damage so it will be very interesting when that data s available!

    Tonie, how awesome to be great grandmother! I hope that I will be here to see my little grands grown, but our time with them is precious!

    Jennie, so sorry about the passing of little Harry. I can’t imagine the sorrow at losing a young child. Hope you will be feeling well for your upcoming trip to the UK.

    Suzanne, hope you hear from your doctor soon and are able to get some pain control in place.

    Chris, I often think of you, DH and your dad. I had many of the same issues with my dad so I know what a difficult time this can be and my in-laws will soon be moving close as they are having trouble managing on their own without family close by. Four out of five children live here in the city so the move makes sense, although my FIL is not happy about selling their home and moving into a condo.

    Laura, your trip this winter looked amazing, and both you and Lyn have had a long cold winter like we have had in Canada. Yesterday we still had two patches of snow in our yard and we may have more snow yet!

    Sue, I am at a loss for words. You know you are in my thoughts and prayers dear friend and I wish this journey that you are on was completed!
    Our dear little GS has been very ill this past week so his Papa has been baby sitting and I have been at home. The doctor thought he had strep throat so he is on an antibiotic, but he now has a very croupy cough so our family will not be all together for Easter. GS will soon be starting an autism program at the Children’s Hospital, and if his program begins before the end of June, DH will be driving him each day, and then again in the fall, so our days at the cottage will be limited this year. The program will be four full days a week for eighteen months and he will attend kindergarten on the fifth day.
    Take care everyone. Much love …… Pommum Brenda

    • Thanks Laura, Sue and P Barbara. Many years ago, in a nursing home, we used sugar mixed with Vaseline and a heat lamp on open sores. I am very careful about the skin shearing. I’ve tried the donuts and different pillows but they just make me sore where the edges put pressure on my skin. I’m looking for a gel pillow locally; I sent Keith for one but he brought something else back. I have some abd pads and some great local honey, so I’ll be trying that. Lying on my side is painful for a different reason. I have a leg length discrepancy due to the arthritis in my left leg contracting the muscle. This has cause a chronic bursitis over my right trochanter. So, I can’t lie on my right side at all and lying on the left pulls the right hip in an awkward position, causing pain. But, I have found ways to use pillows to prop me up and ease the pain.
      WE have 80 degree weather all week, now we have a freeze warning out. Forecast is for cold the rest of the week. I’m afraid all the beautiful spring blooms will be frozen and killed. We’ve had a cold rain most of today.
      love and prayers to all
      Linda

      • Linda, please don’t use sugar on your pressure sites. It tends to feed bacteria and can be really nasty if they get infected. The honey has natural antibacterial/ anti fungal properties (as does coconut oil) so is much better option.

  29. Linda, my DH is having a terrible time with psoriasis on his hands and he has found a local company that sells hone and wax mixed together for the skin and has found it the best he has tried so far but it is a local, family, business. It is so hard when it is difficult to find a comfortable condition. My hip replacements is on the left and my shoulder replacement on the right and find it uncomfortable on my back for long periods so I have pillows of all shapes and move around a lot!
    We had another snow storm tis afternoon and the temp is -10C with wind chill so the ground is once again white and it is to be colder tomorrow, GS is feeling better today so DH is keeping him home from school in the morning, but if he seems well enough he will take him to day care for the afternoon so he can have a rest…. and just maybe we can get the four little ones together on Sunday.
    Hope everyone has a good night. Love and hugs … PM Brenda

  30. Hello All:
    Well Sue, with my busy week last week, I was SURE you had your scans on Mon, so I have been praying for your recovery from all that 🙂 SO…I guess you would call it ADVANCE prayer ?? Hope you manage it well. Can you use glycerin swabs to help with the dryness a bit ??
    Saw the surgeon today. Very nice, handsome young German man. Went over the MRI with me and explained it all in detail. Waiting on his scheduler to call me and set up the date. He will also check on my clavicle for spurs because of pain on it. Should be fine he says.
    It is COLD and windy and was blowing snow earlier and while I was driving back today. I moved the little widdies up to the “big house” because of the cold so they could be indoors. I hope the big girls will play well with them and not be mean.
    Okay, gonna try to get to sleep. Love you all and have you all in my prayers
    Tonie

    • TONIE…..YOU JUST STOP GIVING THAT YOUNG DOCTOR THE GLAD EYE….YOU CHEEKY MONKEY…..IT WON’T BE LONG NOW LOVE WILL IT, YOU WILL FEEL SO MUCH BETTER WHEN YOUR SHOULDER IS FIXED UP, THINK OF ALL THE THINGS YOU CAN DO EASIER WHEN ITS HEALED. YOU NEED SOME SUNSHINE NOW AS WE ALL DO, ITS NICE HERE TODAY, BUT SET TO DIVE AGAIN JUST IN TIME FOR EASTER. I HOPE THE “LITTLE ONES” DON’T GET SASSED BY THE BIG MAMA AND PLAY NICE. MY SON HAS A NEST INBETWEEN THE MASTER BEDROOM AND THE LOFT (ATTIC) A MAMA HAS DECIDED TO MAKE HER NEST THERE, IT FULL OF YOUNG UNS, THEY START CHEEPING AT FOUR IN THE MORNING, THEY ARE NOT GETTING MUCH SLEEP RIGHT NOW, BUT HE AND CLAIRE FEEL PRIVILEGED TO HAVE THESE LITTLE LODGERS, AND THEY WILL SOON FLY THE NEST ANYWAY……WELL HOPE YOU HAVE A GOOD EASTER TONIE, I BET YOU WILL BE INVOLVED AT THE CHURCH HUH? LOVE YOU PETAL……….JENNIE POO XX

      • Hey Jennie Poo ! I am old but not dead ! 🙂 I can still read the menu ! THe 28th is when I get the surgery done. So next week will be filled with stuff that requires two hands and getting it done ! Today is the start of the warm up here and Easter is actually suppsed to be very nice ! However the frost has killed all the beautiful plants and trees that were blooming 😦 All my tomato plants that I got and put in the shed are dead, so now I must get more 😦 . Should’ve brought them in. THe little ones escaped the henhouse and I had to wrangle them in yesterday morning, so I just covered them up and let them stay in the dog pen where they are happy. I will leave them in there until they are large enough they can’t get out of the holes in the building 🙂
        Bird nests draw snakes so I hope they are not living anywhere that snakes are !
        I look at a little modular home yesterday that I pretty much fell in love with and will be affordable (when I get the disability money) just the size I need and is a HOUSE ! Very nice and roomy. Gotta get my wish list ready right ?
        You take care
        Love
        Tonie

    • No Robins here yet. Still cold and lots of snow. Starting to wonder if we will ever see Spring????
      Hey Tonie that house you saw certainly sound nice. Good for you.
      Love to all on the blog. silly, but i’m sitting here and missing you? Oh well enough said.
      XXX

  31. Hey to all !!
    Just a note to tell you I love you and think of you all so much. It is incredible what a part of my life you ALL are. Amazing how this site brings together people from all over, yet with a common interest. Nasty stuff that brought us together, yet glorious love that keeps us here !

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