LET’S GET PERSONAL: CHRONIC PAIN AND ILLNESS

Be YourselfI’ve been writing about my life with chronic pain for a very long time. It’s easy, after a few hundred articles or blogs, to slip into a state of assumption. This is when I assume you know what it’s like to awaken each day to this condition and lay awake each night with it. If you do know, then you possibly share it. For that I am truly sorry. I would like to apologize for all the quotes I’ve used this week but I can’t. There is not one I could live without, so there.

I often talk about physicians, healthcare and medications but only in the broadest sense since I’m a nurse/patient, not a doctor. I often talk about modalities to aid us like TENS units, canes, heating pads and many other helpful objects along the way. However, today, I would like to talk about all the personal complications that mold and bend our bodies and therefore our minds and eventually our entire lives. Every little corner is visited, corrupted and tainted by illness and pain. We become putty in the hands of fate until we achieve the realization we are still in charge. We can still vote on our own lives. We still can say “yea” or “nay.” We can choose our doctors most of the time; and yes, there is an enormous difference in them. Find the best. Ask, seek, inquire of others and you’ll find the best ones. Read evaluations online, etc. Don’t let anyone less than the best touch you. Don’t be afraid to ask questions. Sometimes we are intimidated by our physicians, and really shouldn’t be. We can also speak out about something we are experiencing. We still have freewill all wrapped up inside all of this pain and it is often the only part of that doesn’t hurt.

We are faced with the enormous challenge of striving to be “normal” in this life and none of us knows what that is. I think it means we want the pain or disease to go away and life to return to where it was. The chances are pretty good that isn’t going to happen. Some of us with hard heads take a few years to understand that and bang away at the block wall in front of us. That’s only giving you and I a headache you know but I don’t blame you for doing it. I did. We eventually come to the realization that life is change. Change can be dealt with. It requires acceptance and compromise. Those are both a much better use for all that energy than bumping into that block wall, don’t you think?

Since life has already thrust change upon you and me, why not go with it and be not just different but be the best that we can be? I can hear you. “Is she nuts? Here I am living with pain every friggin’ day and she tells me to be better than I’ve ever been?”

Yep. That’s it. You’re obviously on the road less traveled by according to the poem of Robert Frost, so why not make it your individual road. You may have a body that cries out often and at inappropriate times so go with it. Take that road that is yours and find out who you are. What did you want to be when you were a kid? What did you like to do besides some of the obvious wonderful things like chase girls, jump rope or play video games? So many answers lie within us if we seek them. They are already there, waiting to be found. You and I have to believe in the future. It can still be wonderful, not boundless, not without limitations but still good. Remember, none of us live on this earth forever so why not make the most of the time we have? Is it compromised? Yes. Is it miserable at times? Yes. Are we someone new each day? Yes, and that can be a good thing. Remember that famous quote of Henry David Thoreau?

“If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or far away.”

Be yourself. You are not required to look in the mirror and see a victim. Change can do that to us. We get the idea we are damaged when we’re really just used up. I lost a breast this year and it was a shock at first, but I still think of myself as a lovely older woman. I’m just used up. I used to have beautiful legs and get complements on them but now they are knobby with changing and misshaped ankles, swollen painful knees but I can walk on my own and that tells me they work. I have completely lost my rear end due to loss of weight and disease but it still holds my body to my legs and still sits however uncomfortable it is. You see? We must adapt to change or it will pull us under.

I’m not saying it is easy. The first time the nurse changed my dressing after my mastectomy this summer and my husband was in the room, I cried. I cried out of shame, fear and loss. The important thing is my husband didn’t cry. Sure, he’s also a nurse but it was his wife he was looking at not just some anonymous patient. He did cry when we got the first diagnosis of breast cancer and that was as it should be and I love him for it.

Coco Chanel, the famous designer said, “A girl should be two things: who and what she wants.” Thanks Coco for also saying, “In order to be irreplaceable, one must always be different.”

I want to be irreplaceable, don’t you?

I also love a quote by dear, often tortured Judy Garland who said, “Always be a first rate version of yourself and not a second rate version of someone else.”

I love the wisdom of other, fallible human beings who have traveled rocky roads of their own and come out the other end with bits of wisdom to share with all of us. Sometimes they made it with joy, sometimes they didn’t but it was still quite a ride.

Along with being true to yourself, you and I both know the effect of this ever widening circle. Chronic pain and illness affects those nearest to us.

400 years ago an insightful writer by the name of John Donne said in his meditation XVII words that hold true today although the language and definitely the punctuation may have modernized to a great extent, the sentiment is still full of wisdom. Let me quote, “No man is an Island, entire of itself; every man is a piece of the Continent, a part of the main; if a clod be washed away by the sea, Europe is the less, as well as if a promontory were, as well as if a manor of thy friends or of thine own were; any man’s death diminishes me, because I am involved in Mankind; And therefore never send to know for whom the bell tolls; it tolls for thee.”

This whole issue of the ripple effect is often painful for us to not only live with but to observe as others in our lives are hurt by our pain, touched by our illness and its symptoms and it can place an enormous strain on many relationships. Don’t grab onto the guilt that flows by as you see the effect on others. It is not yours to feel. Don’t you have enough to do? Simply find yourself, love those who mean the most to you and let the others tend for themselves.

One of my favorite quotes on individuality is from the science-fiction writer Ray Bradbury who said, “I have never listened to anyone who criticized my taste in space travel, sideshows or gorillas. When this occurs, I pack up my dinosaurs and leave the room.”

Therefore, the next time you are asked to compromise, put up with an inconsiderate lout or a self-centered one, be true to yourself and pack up your dinosaurs and leave the room.

Be yourself.

99 thoughts on “LET’S GET PERSONAL: CHRONIC PAIN AND ILLNESS

  1. I loved loved it
    It needs trumpets to herald the blog,it was so perfect and so great ,the meaningful quotes .and in the future future ..I’m sure you will be quoted too our sue!!
    Well we got back to the shed
    We cancelled the hosp appt for DH hearing test tomorrow ,as he wasn’t up to concentrating for that, so we thought as he is aching everywhere we will come to where it is all on one floor…so all roads lead here
    He is really weary and achy and tired and for him his rash is…on his ….arse …and down his legs between his bits!..and he says it is sore for what it looks like……blimmin shingles..I say he’s gone coastal!
    He started the antiviral meds yesterday takes 5a day.his blood test came back same day and they were ok,so it wasn’t the bp meds this time making him feel ill it must be the shingles
    My polyps are very small apparently ,saw dr this morning…so they may leave them there.have to see when I see specialist at hosp. But they found nowt else just the diver,so I was happy with that
    Well I’m sitting with the doors wide open and doing this ,looking at my favourite view,DH asleep
    DD coming up for the bank holiday at the w.end
    Tonie
    I thought the interview was in sept….hope it all went ok and you were not achy after the trip
    Jen
    How you doin.its some farce you got goin there
    Ok gonna do a few things
    Chris

    • WELL CHRIS….A LOT GOING ON WITH YOU TOO…..OH MY POOR DH, OF ALL THE PLACES THAT IS UP THERE WITH THE WORST, MY EX BROTHER-IN-LAW HAD THE SHINGLES THERE, HE NEVER EVER SWEARS, BUT BOY HEDID THEN, THE AIR WAS BLUE………….GLAD YOU ARE AT “LE SHED” HE WILL NEED PEACE AND QUIET, AND YOU TOO, SEEMS WE WILL BOTH BE WITH OUR KIDS AT THE WEEKEND, AREN’T WE LUCKY…….?? TAKE CARE OF YOURSELVES….LOVE JEN XX

    • Dear Chris, Pleased you got something from the blog. All those wise folks kind of spoke for me, huh? I love quotes as you can tell. I’m glad the polyps are small enough to be ignored but that darned diverticulitis, it sure can be a pain. For those of us who have IBS and that, it makes it kind of confusing, huh? Always trying to diagnose ourselves. I’ve been hugging the heating pad the last two days for similar reasons.
      Chris, your poor husband. I am loathe to imagine what he is going through. Having had shingles, it’s hard to imagine them down below for a guy. Tell him to try ice packs in his jockey shorts. Poor man. I had a friend who had them in her eye once and found that difficult to imagine. Hope he has pain pills and B complex vitamins which both help to make it bearable. Oh my..just the thought. So pleased you both have an escape now with the shed. Enjoy sweet lady. Times will get better for all of us. Love you lots, Sue

  2. Chronic pain seems to rob one of the ability to think straight. One of my sons has had two spinal fusions. The last fusion was in Feb of this year. He has heavy nerve damage. However, there is a newer and more powerful spinal cord stimulator to replace the one he currently has. He is hopeful. His wife was diagnosed with ankylosing spondylitis a few years ago. She also has other problems and will soon have an open lung biopsy. At least they have medications to help take the edge off. I just get lumps and cysts, and of course there is the arthritis. So far my bumpy parts have been benign. My biggest problem is that I am super sensitive to meds. That tends to put a damper on days of pain. Laughter and good friends and pets are the best medicine. Although visualization can help some. I believe this is called “mind over matter.” It doesn’t work as well as it could some days. So – hang in there. Medical science continually comes out with new things to improve all our days.

  3. I HAVE JUST PICKED UP MY DINOSAURS AND LEFT THE ROOM….ONLY KIDDING, WHAT A GREAT BLOG SUE, THERE IS A LOT TO THINK ABOUT WITH THIS ONE…………WELL THIS MANIC DAY IS NEARLY OVER, AND MY JOINTS AND MUSCLES ARE SCREAMING ….HELP!!! SO A HOT SOAK AND A “TENS” SESSION TO END THE DAY…….REALTOR BEEN, FRIENDS BEEN, LOGS CAME, DINNER COOKED, AND ALL THAT AFTER A FULL SCALE HOUSE CLEAN……DH TAKEN THE DOG OUT, SO I WAS ABLE TO READ THE BLOG IN PEACE….LOVED IT, THANK YOU SO MUCH.
    LOVE YOU….JEN X

    • Jennie, Wow, that is a full day. Hope the hot soak made it possible for you to get some rest. I miss taking a tub bath but it just got to risky so we both shower these days.
      Glad you had the energy which I know was hard to find to clean for the pictures. It’s such a lovely house so I will keep my fingers crossed. Since Sacha was banned, hope his nose is back in place, poor pup. George always pouts a bit, when he remembers, that is after the enthusiastic greetings when he’s kenneled.
      I need to go back to the last blog and get caught up. I was pretty lazy last night nursing a bad gut. Enjoy those dinosaurs. After all, they’re yours. Love you, Sue

    • HI folks…shingles THERE? OMG. I don’t even want to try to imagine. I”m still without pain meds, over 5 months now. This is getting old, especially with the wet summer we’re having.
      I wrote a lot on a blog a few weeks back but none of it showed up! That’s a first for me. Sue, I read your poem, and I cried. In fact, I was so emotional, I couldn’t write anything. I never took your cancer or treatment lightly, but that poem just hit me just how much suffering you had added to you. It was heart breaking.
      I got some terrible news yesterday. My uncle married a woman who’s family has the genetic mutation for cerebellum degeneration. She died a slow, undignified death. The doctors all told her to advise her daughters (3) not to have children. She refused, said that was a horrible thing to do. Her youngest child, died a few years ago with it. This girl had married a man from Kuwait and he took her back there to live. When she got really bad, he sent her home for a visit, but kept her passport and other documents. She stayed with my uncle and his wife a year or so when he came here to get her…his children had stopped speaking to him. She died over there, no one here even knows where her body was laid to rest. Their oldest daughter has had it a long time. Unfortunately, her case is acerbated by drug abuse. When my aunt first came down with this, there was no known treatment, she was given valium and antidepressants.

      Her brother died of it before she did, and his only child, a son, died at age 11 from this. Last time I saw him, he had to be tied to a wheel chair to even sit up. If they live long enough, the only movement they have any control of is their eyes. It’s been harder for the younger generations, for they have see the devastation to their elders, and what to dread and fear. The older ones had the comfort of ignorance. Yesterday the son of the oldest daughter messaged me on fb and told me he has been diagnosed with this. He said his neurologist says he has never heard of it. I did Google it and while a bit more is known now, the treatment is still only symptomatic. He is scared, and he’s moved away from most of his family. I encouraged him to move back, closer. he’s not able to work, and I think he moved away for a job. That’s a mote point now. He says he can’t live around his mom, he’s been off drugs over a year, and with her using, he can’t take it. I’m sure his grandad would take him in. I would if I had room. He’d have to sleep on the floor here and keep his clothes in a box. And that would be volunteering my son to take care of one more person.
      All I can do is love this kid and pray, both of which I have been doing a good long while. It makes me feel guilty for any self-pity I manage to find…. he’s barely 30 years old.
      I love all the quotes, too. I had to laugh, Ed has always said that he and I “meander” to a different drummer. I like that, for we don’t tend to follow any path. I find it more fun that way. I have absolutely no sense of direction. None. A long time ago, Ed would get infuriated at me, for I would get us lost going around the block. He’d ask me didn’t it upset me? Nope, I was never lost in my life, I just had a lot of new adventures and experiences. Over time he learned to enjoy it, too. We’d leave the house and I’d ask where we were going, and he’d say “on a Linda adventure”. They were always the most fun of anywhere we went!
      I hope everyone is feeling better. I love all of you. Thank you for letting me vent about Richard. He’s very special and has had a very hard life. All prayers are appreciated.
      Linda

      • Linda, always good to hear from you. Oh dear, you so stressed over Richard and his siblings and folks. How terrible when a whole family is struck like that. I can see why you are so upset. It’s a hideous story indeed. Some folks seem to just have such a difficult life and then others bring it on themselves so much you just want to shake them and say, “Hey, look at this family and all they are forced to go through.” These rare diseases can be so awful.
        I love your direction finding stories. Your husband sounds like such a patient and humorous guy. Hope you’re hanging in there okay dear friend. We don’t hear from you often but when we do it’s big. Sorry your other message got lost. We miss you when you go too long, so don’t, okay? Much love, Sue

    • Jen, I love that quote, too. I get a lot of teasing because I still love horror movies, so next time, I’ll just pick up my dinosaurs, too.
      Sounds like you had a very rough day…. hope you’re feeling better.

      • DEAR L INDA, SENDING PRAYERS FOR RICHARD AND ALL OF YOUR FAMILY.
        I TOO HAVE THAT PROBLEM OF GETTING LOST WHEN GOING AROUND THE BLOCK. LUCKY DUCK, YOUR HUSBAND FOUND THE HUMOUR IN IT AS MINE GOT UPSET WITH ME ALL THE TIME. NOW I REALLY DON’T CARE WHAT HE THINKS ABOUT IT. I USUALLY ASK MY DAUGHTER HOW TO GET PLACES, WHEN I NEED TO GO SOMEWHERE.
        LOVE YOU BIG.
        GOD BLESS
        XXX

      • Linda:
        Good to hear from you. So sorry for all of that poor families tragedies How come you are without pain meds ? This weather is something else huh ? We had a 90 degree day, then a thunderstorm tonight and a cool down to 60 tonight !! Take care and do write more often !
        Love
        Tonie

  4. I love it Sue. I’m always inspired by your life experience, your encouragement, and your unique blend of compassion, faith, understanding, humour, and tough love. You make me want to be the best me I can be, that “first rate version of myself, instead of a second rate version of somebody else.” (I definitely have that whole “different drummer” thing down. LoL.) Perfect timing to hear this today. You are such a blessing, sweet friend! ❤

    • Annie, Awe shucks. You can pretty inspiring too, you know. Hang in there right now with all you’ve got on your plate. I believe if poor Judy Garland could be the best version of herself after all the studios did to her in the early days of her career and life, then we can, also. Love you girl, Sue

  5. Dearest Sue,
    I always enjoy reading your thoughtful essays. You have helped so many of us through torturous days. Mine have dwindled to a constant ache that I can pretty much ignore. I almost don’t belong in this club since my pinched nerve has somewhat cured itself after I fell. Good news from a bad day! I have twinges that hint it may start in again, but I will take your advice and try not to get depressed. I will stay as active as I can, sing often, help others and read your blogs for support. Thank you very much! I also thank you for the many friends I have now from around the world. One as close as an hour away and one from Australia. Love, Kathy

    • Kathy my dear FB friend. It’s my privilege to write these and share my life with you all. Isn’t it great how we’ve all made friends through the original pain that brought us together? Let’s hope that latest twinge stay just that. Take care of yourself. So good to hear from you, well or not, it’s about sharing. Fondly, Sue

  6. Kathy, hello! I’d say pinched nerve qualifies for belonging to “the club”. Yes, they can recur so be on the lookout!

    Jennie, glad this day is winding down for you. And for Sacha 😉

    Chris, oh dear! My prayers for you and DH!

    Sue, well done. It always amazes me that people remember quotes. I’m not very good at that and end up looking them up when I need them. 😛 I must say I’m mentally fighting physical changes lately. Nothing as drastic as losing breast, but still new territory for me. Not fun. But, I’ll get there!

    Annie, so glad you had a great vacation! Take this latest one step – or box – at a time. 🙂

    • Lyn, I’m sorry to hear you’re facing another challenge. The body does have a mind of its own sometimes. Just remember as I’ve had to, you can adapt and beautiful is from the soul and spirit. It’s still hard at times to see these things happening. I haven’t worn a skirt or dress in years due to my poor ankles so the wardrobe is different.
      In the interest of full disclosure, I often look up quotations! Love you, Sue…hugs to Sadie dear.

  7. Howdy all !
    Sue , wonderful and uplifting. Encourages us to continue to be ME ! I love uplifting quotes, and a lot of them from YOU !
    Chris, that was just the talk with my lawyer yesterday, the hearing isn’t until the 19th of Sept. Still so tired, and full of fatique. Chris, your poor hubby ! All fo us have so many versatile problems , unique in every situation. All I can do is keep you all in my prayers. For there is only ONE who can help us with everything. Thru His healing, or thru the hands of others, it is all up to Him. I am gonna close now cause my eyes are also.
    Love to you all
    Tonie

    • THANK YOU TONIE, FOR KEEPING US IN YOUR PRAYERS, THAT IS BIG. HOPE YOU ARE NOT AS EXHAUSTED AS YOU WERE LAST WEEK. THE WEATHER AROUND HERE HAS BEEN STRANGE, RAINING ONE MINUTE AND COOL THEN THE NEXT SO HOT I CAN’T GO OUTSIDE. MY PUMPKINS ARE DOING WELL AS ARE MY CUKES.
      DH’S VEGGIES GARDEN IS DOING WELL ALSO. WITH ALL THE RAIN WE HAVEN’T HAD TO WATER THE GARDENS VERY MUCH. GOOD THING. HOW ARE THE CHICKS DOING. SERIOUSLY THINKING ABOUT GETTING SOME NEXT SUMMER.
      YOU TAKE GOOD CARE OF YOURSELF SWEET PEA.
      LOVE YOU IN BUNCHES,
      GOD BLESS XXX

  8. Well Tonie
    That all sounds good advice and he’s on your case ok, you can do this with this mind set he is giving you
    A good case for weeds huh!

    Jen
    That’s why we came back to the van all on one floor it’s so much better
    I can see us putting our house up for sale soon.i was looking at flats on the internet last night
    I don’t want all that place and garden to do,and I know you have a bigger place
    Hope your Pain is easing for the w.end.
    DH is in some pain still more rash appearing..hope the meds hold it all at bay a

    I’ve still got a swollen tum and trapped gas. It is so sore to bend and even when I pass water it drags on the pain.we each clean the shower out between us after!
    Ahhhh!
    That’s rite cleaning it ,not showering!
    So we are a couple of swells right now…but at least we are where we wanna be! We can get a great panarama of the sunset at nite…and I’m gonna drive to an icecream bar in a town nearby to get a caramel one …a big un!
    Sue
    Tried the ice it helped last night on the rash
    But more appearing. But this morning I asked how he was and he said he doesn’t know so that’s better than knowing he is rotten …..progress of sorts!
    Gotta get on Chris

    • HI CHRIS……GET ME A CARAMEL ONE TOO WILL YOU….MY FAVOURITE, WELL YOU TWO, WHAT ARE WE GOING TO DO WITH YOU BOTH? I THINK YOU WILL FIND THE RASH HAS NOT YET PEAKED, WHEN IT DOES YOUR DH WILL START TO GET BETTER, ITS A SLOW OLD JOB, BUT ANOTHER COUPLE OF WEEKS AND THINGS WILL LOOK A LOT DIFFERENT. I DO HOPE YOUR TUMMY START TO GET BETTER SOON, ITS AWFUL TO FEEL LIKE THAT EVERYDAY. WELL MORE TORMENT THIS AFTERNOON, THEN I GET A BREAK TILL NEXT THURSDAY……TAKE CARE MY FRIEND….LOVE AND HUGS…JEN XX

      • Jennie, you’re probably already turned in for the night but if so, I pray you’re resting well. So sitting up helped? Good. Have a wonderful weekend with your kids. I’ll be thinking about you and pray you’re up for it. Love, Sue

    • Chris, I’m so happy for you right now to be where you both want to be. It sounds lovely and thinking about moving permanently? Good for you. Life is so very short, actually and we deserve to be surrounded by what we find beautiful, right? I’m glad the ice helped DH. Indeed, Caladryl is an old but faithful treatment for the itchies and I think he’d also like the cortisone with aloe vera. It’s usually very inexpensive but I love it when I had shingles a few years back and could only wear my husband’s very large soft T shirts.
      The rash should start to be better about three weeks after the initial outbreak. Poor man. Your ice cream bar sounds decadent and delicious. I think with your current gut situation, diarrhea is a good thing try to expel all of the air and debris. Take care and I hope you feel better very soon. Enjoy your DD this weekend. Love you, Sue

      • HI CHRIS, HAPPY YOU ARE AT THE SHED. PRAYERS FOR DH, IT MUST BE TERRIBLE TO GET IT DOWN THERE.
        HOPE YOU ARE FEELING A LITTLE BETTER. HAPPY YOU WILL BE WITH YOUR KIDS THIS WEEKEND.
        LOVE YOU LOTS. DON’T FORGET TO PACE YOURSELF.
        XXX

  9. I HOPE EVERYONE HAS A BETTER DAY TODAY, LYN, ANNIE, SUZANNE TONIE , KATHY, JANET AND OF COURSE DEAR SUE, GOT YOU IN MY THOUGHTS TODAY, I WILL NEED TO DRAW STRENGTH FROM YOU ALL THIS AFTERNOON, I CAN HARDLY BEAR FACING “SLICK MICK”, I MUST SPEAK OUT AND NOT GET ON THAT BLOODY TABLE, OR I JUST WON’T GET UP AGAIN……I AM GOING TO GO ON TRANSLATION, AND TAKE A LETTER IN WITH ME IN FRENCH. MAYBE BECAUSE OF THE LANGUAGE PROBLEM HE IS MISSING WHAT I AM TRYING TO SAY……………………I’LL NEED GOOD LUCK WITH THAT HUH?? ………………LATER, ….JENNIE X. PS. SORRY ANNIE DIDN’T MEAN TO MISS YOU OUT.

  10. Well Jen
    Hope it went better today
    Think twice if it’s not working out again Jen .you could do without it and all the thinking about it
    Tum better a bit today but still got the runs tho
    Had my icecream a double scoop of caramel and coffee.lovely it was ..thort of you!
    Well got some calamine with glycerine ointment, seems helpful for DH
    Well gonna read the paper and get to my book
    Chris

    • HI CHRIS……YES THINGS WENT BETTER TODAY, I TOLD HIM THERE WAS NO WAY I WAS LYING DOWN, HE JUST SAID “FINE, I’LL TREAT YOU SITTING DOWN THEN” SO THAT WAS A LOT BETTER.
      OH YOUR ICECREAM SOUNDS YUMMY…..I LIKE THE COFFEE ONE WIT THE LITTLE BEANS IN IT DO YOU? NOT GOT TO GO BACK FOR MORE TREATMENT TILL NEXT THURSDAY, DUE TO THE KIDS BEING HERE, YIPEE!!!
      HOPE THE OINTMENT HELPS YOUR DH, PASS ON OUR REGARDS, AND GLAD TO HEAR YOUR TUM IS ON THE MEND……LOVE JEN XX

  11. OH SUE THIS BLOG WAS FOR ME. ( AND OTHERS I SEE) IT WAS VERY UPLIFTING AND YET LOTS TO THINK ABOUT, ESPECIALLY THE TOUGH LOVE. LOVE ALL THE QUOTES, THEY WERE FABULOUS.
    GOT MOLLY FROM THE VET THI S MORNING, SHE WAS THERE TO BE STERILIZED. SHE SEEMS TO BE DOING OKAY. HAVE TO KEEP HER QUITE FOR THE NEXT 14 DAYS. NOT ALLOWED TO LET HER RUN, SO HAVE TO KEEP HER ON HER LEASH. THAT WILL BE HARD FOR THIS GIRL, SHE IS ALWAYS RUNNING AND PLAYING.
    ABOUT TO GIVE AUNTY HER DAILY CALL. HOPE ALL IS GOING WELL FOR HER. I’M BEAT AS I CLEANED EVERYTHING ON THE MAIN F LOOR SO MOLLY WOULD COME HOME TO A CLEAN HOUSE. HAPPY I DID IT CAUSE IT MAKES ME HAPPY TO SEE EVERYTHING SHINING. OF COURSE THERE WAS A BIG PRICE TAG ATTACHED TO THAT.
    THANK YOU AGAIN SUE FOR A GREAT BLOG.
    LOVE YOU BIG
    XXX

    • Suzanne, thanks for your kind comments. Hope Molly will cooperate for at least half of that time. It’s hard, huh? Love that you cleaned house for her and you so you’d be free to watch her. Haven’t seen a shiny house around here for some time. Would be nice.
      Hope Aunty is doing a bit better and at least eating and staying safe. Poor lady. Try to rest now after your day. Love you too, Sue

      • WELL SUE, MOLLY IS DOING WELL UNDER MY CARE. MY SHINEY HOUSE IS NOT SO SHINEY ANYMORE. I WAS SO KNOCKED OUT FROM CLEANING I’VE BEEN LYING DOWN MOST OF THE DAY. REALLY ONLY MAKE THE SUPPER MEAL WITH THE HELP OF DH. I’M REALLY PAYING FOR ALL THE CLEANING I DID. LESSON LEARNED. WILL NOT BE CLEANING THE HOUSE LIKE THAT FOR , WELL I GUESS NEVER.
        SPOKE WITH AUNTY AGAIN TODAY SHE IS KEEPING ALL HER MEALS SHE GETS TO SHOW ME. TOLD HER SHE DIDN’T NEED TO DO THAT CAUSE THEY WILL GO MOLDY. COULDN’T TALK HER OUT OF IT. WILL CALL HER AGAIN TOMORROW AND SEE IF IT WILL WORK THIS TIME. SHE IS THINKING OF KEEPING MEALS ON WHEELS AS SHE REALIZED ONCE I SPOKE WITH HER, SHE CAN’T MAKE IT DOWNSTAIRS TO THE STORE. HER FOOT IS STILL BAD BUT NOT AS BAD SHE TOLD ME. NOT AS PUFFY, WERE HER WORDS. ASKED HER IF IT WAS STILL RED AND SHE TOLD ME SHE COULDN’T SEE.
        WELL SUE I HOPE YOU ARE DOING “WELL”. ENJOY THE WEEKEND MY SWEET FRIEND.
        LOVE YOU XXX

  12. Jennie, glad you got through to “Slick Mick”… Hope your treatment was better and will be helpful.
    Chris, poor tum- hope it liked the coffee and caramel ice cream- sounds fantastic. Hmmm, now I want some!
    Lyn, sorry you’re facing new challenges, as if the old ones aren’t enough.
    Suzanne, you are so kind to your auntie, and little Molly is one lucky pup to have such a great Mommy. Hope the price tag on your housecleaning wasn’t too high!
    Kathy, pinched nerves are a real bummer- hope its laying low for now.
    Tonie, glad you’ve got surgery and disability hearing scheduled – at least one bit of relief in sight.
    Linda- good to hear from you and prayers for your family
    Janet- thinking if you last two days as I’ve been sorting, tidying, and trying not to freak out about deadlines. Had a tearful meltdown/ stress explosion right before/ during my PT session at noon. I was just panicky/ melting down about the inspection stuff mostly. The one at my previous apt- they were really rude and mean to me and I guess I was afraid it would be like that. My therapist was so nice about it. Basically peeled me off the ceiling and worked mostly on my back/hips more like massage than mashing in trigger point. She’s a real sweetheart.
    The inspections are over, my apartment was not on the “lotto list”, so bullet dodged by the grace of God and I’m going to crash for the night soon (maybe after an ice cream run!) My back, shoulders and hips are super stiff and painful from the whirlwind cleaning/sorting spree and between the nerve irritation and stress I kicked over into complete urinary retention again and had to pull out the catheters. Oh well tomorrow is a new day and the frantic urgent deadline crap is past, so, it can only get better from here. Im learning to freak out less, (or at least to not stay there for so long?!) Thanks for all the prayers and kind thoughts. Best group of loving friends ever! All because our sweet Sue took a notion to start a blog… I m blessed. Love to all, Princess Crabby Pants 😜

    • Annie, so glad you were not picked in the inspection lotto. Just think of it as the housework you really wanted to get done over the next month but got done in a couple of days. I know about that soreness, as each of us do and we understand. Sorry to hear you freaked out but your PT sounds super supportive, bless her. We each deal with so much and our load is heavy then when something else is piled on we have to hit our knees as we go down. It’s a good position for praying but otherwise stinks. Take care of you..Love, Sue

    • Annie, I was thinking of you too. Every room in my house has boxes. Filled ones and empty ones to be filled. Some rooms are getting hard to get through. But cupboards, closets and drawers are getting emptied. The bookshelves are empty, all the pictures are down, cabinets of knick knacks are empty.

      I’m glad you are thinking positive. I am sending lots of positive energy and prayers for you. Love, Janet

    • Annie, I hope your weekend can be one of rest. You been doing too much gal. Do take care and give yourself a treat or two and some relaxation. Sometimes I get urinary retention when I get too tired and busy and forget to drink enough fluids. Hope your back, shoulder and hips all get some loving care this weekend dear girl. We each love you too you know. This has been a happy place for many of us during difficult times and changing bodies. Life is so rough at times and loving friends is the answer as well as our faithfilled hope. Hang on sweets. Love, Sue

  13. Linda, I must apologize. I didn’t see your entry when I was last on here. I am so sorry for young Richard and his family! That disease sounds as awful as ALS, which we’ve been hearing so much about lately with the ice bucket challenges. (Both SB and DD did the challenge.) It was so good hearing from you again!

    Friends, thank you for your comments on my latest challenges. Have no worries, they are mostly minor, just a blow to my vanity and mindset. I’m having more swelling of joints which reminds me where I ‘could’ end up. I still maintain I will not get to severe. Hm…. just realized my doc said I’m already there with OA in my thumbs. Ah, well, you know what I mean! The other blow to my ego/vanity is a ‘normal’ part of reaching a certain age – the old gaining of weight and not able to easily lose it. In full disclosure, as a teen I had a time of all but anorexia. I suppose some would label it so, but I have always looked on it as having dodged a bullet! But the mental view of yourself takes years to purge and often rears its ugly head off and on. I suppose one of the ways I’ve always identified myself is as the small, thin one. Because I was. Anyway, far too much time has already been spent on my own silly headgame. Suffice it to say I will overcome these unkind and unhappy thoughts and realizations in due time. I have supportive family, which is helpful. Now, those puffy and sore joints… Well, as we all know, it is often difficult to let go of what you used to be and accept the best of what you currently are. But then, that’s part of why we all band together here, right? Thanks for all your love and care! I’ll whine no more!

    Jennie, how are you feeling post “Slick Mick” appointment?

    Annie, big sigh of relief! So glad your PT could be there for you and help you through your melt down. Sometimes we just hit that saturation point, don’t we? I hesitate to ask if you are still thinking of adopting another furry purry. I know he/she would need to be a special one. 😉

    • Lyn, Please forgive me for being so late in my response. Had the grands tonight and also had a bad night with my gut therefore…loose ends.(Well, glad I proof read this…that’s not exactly what I meant about my end.) I think what’s you’re experiencing, well, I can identify with it. Changes in who and what we used to be is so difficult. Vanity is not a bad thing, although we often behave as if it were. We want to be attractive for our men,our families, ourselves. Change is always hard to take and takes time to soak in. Just don’t look too far down that road dear lady. It will be what it will be and usually, what we worry about doesn’t come about. Diseases come in all sizes and like us, all shapes. Don’t get discouraged dear because you’re always so brave so get down, face it and then climb out. You are loved and valued and that is the true gold in this life, right? Must rest now. Much love, Sue

      • Sue, dear lady, I do so hope you got good rest! You know, the funny thing about identifying with how I’ve looked is that I didn’t really choose it. It feels like others chose it for me and just kind of said “Here you go, this is you.” And as we all know, anorexia is more about control anyway, and perfectionism. Is that a word? 😉 Anyway, more importantly, how was your visit with the grands?!! I, and I’m sure many others, enjoy hearing stories of their visits. They are such little individuals and stories of their exploits and comments always seem make me smile. 🙂

        Speaking of making me smile… Sadie is having a high time with her puzzle ball this morning. I should have videoed her. I’m just happy to be able to put off a walk with her for the time being. I’m trying to recover from 2 days of more activity than my body can handle. And evening of baking – cake/cupcakes, oatmeal cookies, and apple pie for our church Chicken BBQ and Bake Sale (that was Thursday) and a day of readying for our family Deck Night which took place at our house, so technically a Patio Night. But I did make a yummy baked bean dish that I should type up the recipe for and send to Tonie. It was time consuming, but yummy. But now my downstairs is straightened up and clean 🙂 and I won’t have to make dinner tonight thanks to leftovers and the Chicken BBQ. For now, I’m off to the shower! I have to pick up said chicken dinners and take SB for a haircut with my beloved stylist. He wants something new and current and doesn’t think the gal he usually goes to can deliver like my gal can (he’s right!) I’ll probably have to spring for the cut, but time spent with my kiddoes is priceless!

    • Lyn:
      I think it is fair to say, we all suffer from that mirror syndrome. I did and have all my life. I was never that thin or small, but had a stage of life where I was very thin due to stress. Just know we are all here for you and you are ever in my prayers.
      God bless

  14. Hi folks
    Just a shorty incase I can’t get on.just lost a
    Long post earlier today.and this could be one As well
    And if this gets on I still mite not Again
    Anyway all have a good w.end
    Chris

  15. HI……SMEEEE!!! GOT TO TELL YOU THAT CHRIS CAN’T POST, ITS NOT HAPPENING AT THE MOMENT, BUT SHE IS NOT DOING TOO BAD, I WILL KEEP POSTING FOR HER AS AND WHEN SHE MAILS ME..THAT OK??

    SUE….HOPE THINGS ARE STILL MOVING IN THE RIGHT DIRECTION FOR YOU, AND YOU ARE MAKING GOD PROGRESS XXXX

    TONIE…YOU OK LOVE????? XXX

    LYN…YOU ARE NOT WHINING LOVE, JUST TELLING US HOW THINGS ARE….TAKE CARE…XXXXX

    LINDA….LIKE LYN, I DIDN’T SEE YOUR POST EITHER, PRAYERS FOR RICHARD AND FAMILY….XXXX

    JANET….SOUND LIKE YOU ARE GETTING THERE, LOOK AT HOW MUCH YOU HAVE DONE ALREADY, DON’T EXHAUST YOURSELF HUH?? XXXX

    ANNIE…FINISHED WITH SLICK MICK, SOUNDS LIKE YOU ARE HAVING SIMILAR TREATMENT TO ME, BUT I WANT WHAT YOU GAVE UP…FUNNY OLD WORLD INIT????? XXXX

    SUZANNE…I HOPE THAT MOLLY MAKES A GOOD RECOVERY, SHE WILL BE FINE, THEY SOON FORGET ABOUT IT AND GET BACK TO NORMAL…IS AUNTIE BEHAVING BLESS HER, I HOPE SHE ISN’T STACKING UP OLD FOOD AGAIN IN THE ICEBOX. YOUR HOME IS NOW GLEAMING LIKE A NEW PIN……SO!!!!!!! TAKE IT EASY, OK???…..XXXX

    WELL AS I SAID TO ANNIE, SLICK MICK WILL BE NO MORE FROM NOW ON, I HAVE AN APPOINTMENT ON THURSDAY, WHICH I WILL CANCEL, ALL HE DID THIS TIME WAS MASSAGE AND “TENS” WHILST SITTING UP, AS I REFUSED TO LIE DOWN, SO HE HAS PASSED ME ON TO HIS PARTNER, I GUESS HE THINKS I AM BEYOND HELP….BUT HIS PARTNER HAS THE SAME METHODS…SO HE CAN “DO ONE”, NOT GOING, I WILL GET A NEW PERSCRIPTION FROM MY DOCTOR, AND SEE AN OSTEOPATH.
    WELL THE SHOPPING IS DONE, TOMORROW, CLEANING THE HOUSE, AND BAKING A CHOCOLATE CAKE, THEN I AM NOT DOING ANOTHER THING TILL THE KIDS ARRIVE AT 2AM SUNDAY MORNING. MADE UP THEIR BED WITH CHOCOLATES ON THE PILLOW…YES I KNOW!! BUT I LOVE TO GIVE, AND ITS NOT MUCH….CHECKED THE WEATHER, AND OF COURSE ITS GOING TO RAIN THE WHOLE VISIT, AND THE SUN COMES OUT ON THE DAY THEY LEAVE…SODS LAW.
    OK HAVE A GOD WEEKEND, CATCH UP AGAIN LATER….LOVE YOU GUYS…..JENNIE XXXXXXXXXXXXXXXXXXXXX

    • Jennie, sorry to hear about the rain but glad the kids are still coming. Enjoy, eat and laugh, okay? Glad slick Mick is a thing of the past and has slid away. I will try to have a God weekend. Love you dear and you do the same, okay? Love, Sue

      • HA!!! THAT MADE ME LAUGH…..JUST CLEANED TEN ROOMS BY MYSELF AS DH HAS TO GET THE LOGS FROM THE DRIVE INTO THE CELLAR, AND ITS A THREE DAY JOB. OH MY!! COULD I DO WITH AN OSTEOPATH RIGHT NOW, OVERDONE IT AS USUAL…ANYWAY I MANAGED TO MAKE A CHOCOLATE CAKE, AND ALL IS NICE AND CLEAN…..GOT TO REST NOW SUE, OR I WILL BE NO GOOD TO MAN NOR BEAST. I HOPE ALL IS WELL WITH YOU MY DEAR FRIEND AND THAT YOU HAVE A NICE WEEKEND WITH DH AND THE POOCHES……LOVE YOU LOADS…..JENNIE XXX

  16. Suzanne, Well dear, glad to hear Molly is holding and maybe better. It hurts when they don’t feel well. Well, guess you’d better enjoy that clean house if that’s the cleanest it’s ever going to be. I can speak from experience that life doesn’t come tumbling down when you house is not quite up to par. Life first, stuff second…right?
    Aunty is sinking I’m afraid. Some of the conversations you’ve described are so sad and irrational, poor old dear. I am glad she thinks the gout is better. I just hope she’s eating some of those meals..the parts she isn’t saving for you. Be true to you dear and then you’ll have something to give to those who need you, otherwise, no deal. Have a good weekend and get a little time for you, okay? Love you, Sue

  17. THANK YOU SUE. I HAVE NO CHOICE NOW BUT TO REST AND MOLLY NEEDS TO REST ALSO , SO WE MAKE QUITE THE PAIR.
    I CALL AUNTY EVERY DAY ONLY TO HEAR STORIES THAT BREAK MY HEART. HOPE MY DD WILL BE ABLE TO BRING ME TO SEE HER SOON. I CAN’T STAND THE FACT I NEED SOMEONE TO DRIVE ME BUT THAT IS MY LIFE RIGHT NOW.
    HAPPY TO HEAR YOUR GRANDS WERE WITH YOU, THAT ALWAYS BRIGHTENS UP OUR LIVES. ENJOY MY FRIEND.

    LYN YOU ARE NOT WHINING, JUST LETTING US KNOW WHAT YOU ARE GOING THROUGH. THAT IS WHAT WE ALL DO. HAPPY YOU DIDN’T HAVE TO MAKE SUPPER. HOW DID THE HAIRCUT TURN OUT?

    JENNIE POO, CAN’T BELIEVE YOU CLEANED 10 ROOMS AND ALSO MADE A CHOCOLATE CAKE. HOPE THAT WASN’T TOO MUCH FOR YOU. ENJOY YOUR CHILDREN ALSO THIS WEEKEND.

    CHRIS, HOPE BOTH OF YOU ARE FEELING A BIT BETTER, I KNOW IT ALL TAKES TIME.

    JANET, YOU SOUNDS AS IF THINGS ARE MOVING ALONG. I UNDERSTAND HOW PAINFUL THIS MUST BE, BUT IT MUST BE. LOVE YOU DEAR SWEET LADY. YOU KEEP IT UP, YOU ARE SUCH A GREAT INSPIRATION FOR ALL OF US. THANK YOU FOR THAT.

    HEY PRINCESS, I WOULD HAVE HAD A MELTDOWN ALSO. HOPE TODAY IS A BETTER DAY FOR YOU SWEETHEART. SENDING YOU A CHOIR OF ANGELS DEAR LADY. DO TAKE GOOD CARE. THINKING ABOUT YOU OFTEN.

    TONIE, HAVEN’T HEARD FROM YOU OR I MISSED A POST. HOPE ALL IS WELL DOWN THERE. TRY TO REST WHEN YOU CAN I KNOW YOU ARE VERY BUSY BUT…… LOVE YOU SWEET PEA.

    HAVE A GREAT WEEKEND FILLED WITH LOVE AND JOY! THAT IS FOR EVERYONE ON THE BLOG OR WHO JUST READS IT.
    GOD BLESS.
    XXX

  18. Well here’s hoping I get on
    Suzanne .you are such a generous person in thought and words and deed …as are all here
    Jen
    Fingers crossed for the w.end
    Lyn
    Yea how’d the haircut go
    And yea I know how you feel with changes forced on us
    Tonie
    You back doing all your gardening? I hope you chose to rest ….but…
    Sue
    Hope you’re now able to enjoy the w.ends more
    Janet
    We will have to pack when we move…or chuck away. But I’m a hoarder of things family give me…
    You dun well
    Ok an email come in so gonna go Chris

      • GREAT TO HEAR THE HAIRCUT WENT WELL AND HE IS A HAPPY BOY. DON’T WE ALWAYS WANT OUR CHILDREN TO BE HAPPY.
        YES MOM PAYING FOR IT WAS THE CHERRY ON THE SUNDAE! GOOD FOR YOU LYN.
        ENJOY THE DAY MY FRIEND.
        GOD BLESS. LOVE YOU BIG.
        XXX

  19. Hey all:
    Busy on here of late:
    I am alive and tired ! Usual stuff. Was gonna just rest most of the day, but a neighbor (who I grew up with) that doesn’t have a car needed to go get medicine this am, so I took him up (he had gas $$$) and then to someone’s house who was giving away tomatoes. Then home, and made me some brunch. I did get to rest about 2 hours, then had to start making stuff for the picnic (church) tomorrow. I made Cornbread Casserole (it will be in the cookbook) and my mother’s banana pudding. All is ready and in the fridge for the early morning start. So , good to see you on here again Linda, I will be praying for this family for sure. Hope you all have a good restful weekend, and I will check back in later. Prayers for us all !
    Love
    Tonie

      • It was a very busy day. Early morning rise and off to the park to reserve the shelter. (first come first serve) then the picnic. I also took pics of a girl from church for her senior pics. After the picnic we went to my friends house to finish the pics with her horses. Now I have to edit them so she can get them printed. Such a sassy little girl, but as soon as we were with the horses, she was such a changed person. Calm and contained. No attitude at all. It amazes me how horses can do that to people. I read where they are using them in prisons now for the inmates to take care of. One of these horse is a beautiful little black Tennessee Walking Horse. He was much abused and in the last two years has come around a lot. At the end we brought him out on a lead rope and she really got to see how being gentle and loving to a horse can bring them around. It was fun teaching her about them and seeing how she changed. I am sure she will have lots of stories to tell her friends today.
        Resting this am but need to get out and clean out my shed. Not many days left to do this as I will have my surgery soon.
        Hope you all are having a great day
        love
        Tonie

  20. HI TONIE, YOU ARE PROBABLY OFF AND RUNNING BY THIS TIME. DID YOU GET ANY TOMATOES? MMMM THE CORNBREAD CASSEROLE SOUNDS LIKE IT WOULD BE GOOD. I’VE NEVER MADE ANYTHING LIKE THAT.
    ENJOY YOUR DAY SWEET PEA. LOVE YOU BIG.
    GOD BLESS.

  21. HI GUYS…..JUST A QUICK CATCH UP, THINGS NOT GOING GREAT WITH THE KIDS VISIT, BUT COULD BE WORSE, CLAIRE WASN’T TOO WELL, TIM HAS A FILTHY COLD, BY BACK IS STILL SCREAMING, AND MY DH’S KNEE IS KILLING HIM, APART FROM THAT, IT ALL GOOD.
    WE MANAGE TO GET TO ENGLISH TEA SHOP, AND A WALK ROUND THE TOWN, THEN TODAY WE ARE GOING TO A CANTONESE RESTAURANT FOR LUNCH, BUT THE WEATHER IS TERRIBLE, ITS RAINED NON STOP…….COOKED A NICE LAMB ROAST LAST NIGHT, AND EXPERIMENTED WITH CREPE SUZETTES, TURNED OUT REALLY WELL, SO ALL GOOD THERE.
    I HOPE EVERYONE IS OK AND THAT YOU ALL HAD A GOOD WEEKEND………GOING TO SEE THE DOCTOR ON WEDNESDAY TO GET WRITTEN OFF WITH “SLICK MICK” THEN I CAN GET ON WITH THE BUSINESS OF TREATMENT WITH A GOOD OSTEOPATH….CATCH UP WITH EVERYONE LATER, AND SENDING LOADS OF HUGS………LOVE JENNIE XX

    • Jennie, Sounds like the weekend is going by all too quickly for you with the visit. Sorry you’ve had constant rain. The food does sound fantastic though. Hope you’ve got in some good visiting in spite of colds and hope you and DH don’t catch what the kids have. Looking forward to your seeing the doc for some answers. Hope you get in soon.
      Sunny and bright here with a touch of warmth. I’m being a lazy slug…Love you, Sue

  22. Jen
    It doesn’t rain it…….
    Oh dear…hope all gets on the mend soon and you both don’t catch the colds

    Hi all. Raining here but we are warm inside.left DD and partner at shed..they are on way back and dropping in for a bit.we will go about mid week.have to see.DH has blood test me filling fell out!! Ugh
    Last day of DH anti virals glad really as have to take every 5 hrs and have alarm on at night for it
    He’s still in some pain and rash still there but not spreading as I write this…have to be careful not temp fate!
    Hope all had a good w.end
    Chris

    • HI CHRIS….ITS ALL SOUNDING MORE POSITIVE FOR YOU….GLAD ABOUT THAT. DH SEEMS TO BE GETTING A BIT BETTER, HOW IS OUR TUM? WE HAVE HAVE RAIN COMING DOWN LIKE STAIR RODS ALL DAY, BUT STILL MANAGED TO GET TO THE RESTAURANT, THINK THE KIDS ENJOYED IT, HOME TOMORROW, GONE SO QUICKLY……BAD LUCK ABOUT THE FILLING…UGH, YOU’LL BE GETTING THAT SORTED OUT A.S.A.P I PRESUME….CATCH YOU SOON….LOVE JEN X

    • Chris, so glad DH is slowly getting better. That’s the nature of shingles..just when you feel like it will go on forever those lesions start to dry and new ones do not appear. Bummer about losing a filling. I know you like to go to the dentist about as much as I do…NOT. Won’t it be nice when you live over at the coast full time? Good luck at the dentist dear girl. Love, Sue

  23. Tonie, Sounds like the church picnic was a success and the food, I can only imagine, was fabulous. Taking pics of a young woman at church for her, aren’t you nice? I know you enjoyed the time with the horse as much as she did. Hopefully, she caught some of your horse love fever. Someday dear, someday. Love you, Sue

  24. Morning all:
    Chris, I am glad your dh is getting better. I KNOW he is ! Time heals all things it is said, but, slowly I say. Yesterday was my usual busy Monday. I had to weedeat around the house. Which exhausted me. (where has my energy gone) stopping often to rest my shoulders (which didn’t like it at all !) In the afternoon I got around to doing a little on the shed. I figure I can do a little at a time and get it done. Then we had to all go to clean the church. We have a District Meeting on Sunday night, so had to spic and span it a bit. After that I was totally washed out. A shower and bed 🙂 Work today with Ms Alice. Her daughter, Alice is here so get to hear what they have been up to.
    I talked to Theresa again, she went to get her RX filled and couldn’t get it due to some new law passed that you cannot use refills but need a new RX from your Dr each time. I haven;’t heard anything about it so I am thinking it is just in her state. Poor thing was in a state. 4 days with no pain meds/ But her Dr got her in and gave her the Rx. Keep her in your prayers okay ??
    Gotta run.
    LOve
    TOnie

  25. Hey all, you need to find out from your Dr about this new RX law. It COULD affect us (in the States) The new rule is enacted by the Federal Drug Enforcement Agency- class or schedule IV- controlled substance. Effective Aug 19th 2014.
    I am going to look into it, and I see my RA Dr on Friday so I will find out from her. Just an FYI !!

  26. Tonie, First of all, Florida has more strict laws about controlled substances than most other states. They are all bending toward stricter control to prevent substance abuse. I don’t think it’s necessary for anyone to bother their physicians about this when we could just call the pharmacy we use and ask those questions. I have had to had a written request for scheduled drugs for some time. This simply means instead of calling it in the doctor has to give you the prescription or in my case, using a mail in service,they have to write the script and mail it, hard copy, to the pharmacy. It shouldn’t be that big a deal if one plans ahead for a few days or even with some pharmacies, like mine, when you can order two weeks ahead. Sue

    • Sue:
      True that ! 🙂 Mine sends them directly to the Pharm so no hard copy. I asked for one once, due to finances, and she really didn;t want to give it to me. I wondered why then. Hmm However, it is a Federal law not just state of Fla. Really stupid if you think that all the Dr’s have to do is send it direct to the Rx filler, whether mail order or what. Nope, they have to punish those of us who need it and don’t abuse it .

  27. WELL GETTING SORTED OUT BIT BY BIT….PAYING UP THE KINESI ON FRIDAY, AND CANCELLED MY THURSDAY APP. X-RAY ON MY NECK ON MONDAY FROM WHICH I AM SURE “SLICK MICK” WAS PARTLY RESPONSIBLE. THEN GOT TO TAKE MY RESULTS TO AN OSTEO, AND HOPEFULLY GET STARTED WITH SOME PROPER HELP. KIDS GONE HOME NOW, SO EMPTY NEST SYNDROME ONCE MORE, BUT GOT TO GET ON WITH IT, ITS THE SAME FOR US ALL WHEN FAMILY (ESPECIALLY YOUR KIDS) HAVE TO GO HOME AGAIN……..SENDING LOVE TO EVERYONE ON THIS MISERABLE RAINY DAY IN NORMANDY……………..JENNIE XX

    • Yes Jennie, It will be good to get another educated opinion and hopefully, some help. That’s the only downside about the kids coming to visit. They leave. Sorry you continue to be so soggy.. We’ve been a bit foggy but not rainy for more than an hour or two. Afternoons have been warm.
      I hope you’re not worse for the wear and tear of the visit. I spent yesterday at the dentist and am paying big time today for a new crown and a filling and I don’t mean money. Three more visits to go. Youngest GS has a birthday this weekend so that will be fun. He’s so excited, of course. Reminds me of the joys of childhood and all we used to look forward to. Have to find different joy as adults, hmmm.Love, Sue

  28. HI, IT’S BEEN VERY WARM AND HUMID IN THIS NECK OF THE WOODS. SUPPOSE TO COOL DOWN TOMORROW. I REALLY HOPE SO. I’M GETTING VERY SWOLLEN AND NOT SURE IF IT’S THE WEATHER OR MY PILLS. ONLY SEE MY DOC ON SEPT.27 SO I WILL PROBABLY KNOW BY THEN. VERY ANNOYING THAT I DONT HAVE ONE PAIR OF SHOES THAT FITS. ONLY ONE PAIR OF SANDLES. MOST OF MY CLOTHES IS TIGHT AND I’M WALKING MORE THAN I HAVE SINCE THE SPRING.
    THE SOCIAL WORKER CALLED ME TODAY TO LET ME KNOW THAT AUNTY WAS IN A VERY GOOD MOOD TODAY AND SAID YES TO GOING TO GET HER EYES CHECKED. THE SOCIAL WORKER WILL BRING HER. THE GOUT JUST IS NOT GETTING BETTER SO KATHLEEN (SOCIAL WORKER) PUT IN A REQUEST FOR A NURSE TO VISIT AUNTY. I WAS SO HAPPY WHEN SHE CALLED TO LET ME KNOW ALL THE INFO. THEN WHEN I CALLED AUNTY SHE TOLD ME SOME OF IT BUT WAS MIXED UP WITH OTHER PARTS KATHLEEN TOLD ME ABOUT. CAN’T WAIT TO GO SEE HER BUT MY DD HAS BEEN VERY BUSY. I JUST CAN’T EXPLAIN HOW SAD THIS MAKES ME.
    HAD A HARD DAY TODAY. IT HIT ME AGAIN THAT I WAS GOING TO BE THIS WAY FOR ALWAYS. YES I GOT OVER IT.
    THINK THAT DAY OF CLEANING JUST KNOCKED ME OUT SO MUCH, AND STILL DON’T FEEL AS GOOD AS BEFORE. HOPE THIS SOON PASSES AND I GET A BIT, JUST A BIT OF ENERGY BACK. I’M DONE WITH CLEANING LIKE THAT. SUE WAS RIGHT ABOUT CLEANING. SUE YOU ARE SO RIGHT ABOUT EVERYTHING. THANK GOD WE HAVE YOU MY FRIEND.

    JENNIE POO, HOPE THE SUN SHINES FOR YOU TOMORROW.

    TONIE MY GIRL, YOU HAVE TO LEARN TO REST MORE. I UNDERSTAND THINGS NEED TO GET DONE, BUT NOT AT THE EXPENSE OF YOUR BODY.
    LYN HAPPY THE HAIR CUT WORKED OUT. THINK I ALREADY SAID THAT ABOVE.

    JANET HOW ARE YOU DOING? SENDING ANGELS AND PRAYERS TO YOU EVERYDAY.

    CHRIS, HAPPY TO HEAR DH FEELING A LITTLE BETTER. GOOD LUCK WITH THE DENTIST. HOPE ALL GOES WELL.

    LOVE TO ANYONE I MISSED. TOOK MY PILLS AND HAVE TO GO TO BED NOW.

    SLEEP TIGHT EVERYONE. LOVE TO ALL
    GOD BLESS

    • HI SUZANNE LOVE…….I KNOW ITS HARD HAVING TO ACCEPT THAT THERE IS A LIMIT TO WHAT YOU CAN CHANGE, THIS IS SOMETHING THAT HAS BEEN DRIVEN HOME TO ME TOO OVER THE LAST FEW WEEKS, AND IS ALSO TESTING MY FAITH. HOWEVER, SOME THINGS THAT WE CANNOT CHANGE, HAVE TO BE DEALT WITH. TRY NOT TO WORRY TOO MUCH ABOUT YOUR AUNT, I KNOW YOU ARE SAD, I HAVE AN AUNT I LOVE DEARLY TOO, SHE IS NOW IN A CARE HOME WITH DEMENTIA, OWING TO SHOCK FROM LOSING HER ONLY CHILD……LIFE IS A BITCH AT TIMES.
      KEEP SMILING SWEET LADY……THINKING OF YOU….JENNIE POO XX
      SENDING LOVE TO EVERYONE, AND PRAYERS FOR ALL THE PROBLEMS WE ALL SHARE…..LOVE JENNIE XX

      • THANKS JENNIE POO. WAS HAVING A BAD DAY, TODAY IS MUCH BETTER AND THE WEATHER IS NOT SO WARM. NOT AS SWOLLEN THIS MORNING. HOPE IT STAYS THAT WAY.
        HOPE YOU ARE HAVING A LOW PAIN DAY AND YOUR DH ALSO.
        LOVE YOU BUNCHES SUNSHINE.
        GOD BLESS.
        XXX

    • Good hearing from you Suzanne 🙂 It has been warm and muggy here, too, lately. Yesterday was rather unpleasant. I’m hoping for a more comfortable day today – I haven’t been outside yet. The last 2 days I have had our pup out for a walk before this time due to the heat. Today even she is kind of laying around and frankly I’ve been to stiff and sore so far to head out. I guess I’ll try to hold her off until this evening now. I’ve been having swelling this summer, too, although I still have an assortment of wearable shoes. 🙂 And the clothing… well, I finally went out and hit the super sale rack and picked up a few things as I was having a hard time finding comfortable bottoms in particular. A lot of my pants/shorts were uncomfortable snug. 😦 I do have a tendency to gain a bit over the summer, just not this much. It will be interesting to see what happens come Fall. Yes, I’ve been coming face to face with some of those same issues. I am so happy to read your Aunt is having a good day(s) and was willing to get her eyes checked! Gout is nasty stuff. So glad the request has been made for a nurse visit. It sounds like that definitely needs to happen. Not an easy time for you, but this has to be a glimmer of light.

      Yes, SB does love his new ‘do and has begun his college classes. He likes most if not all his professors, which is a good thing. DD is going through a time of introspection and decision making. Prayers for her would be appreciated from anyone so inclined. I think she knows what would be best for her, but not sure if she has the confidence to follow through.

      I wish I could include a pic of our puppy Sadie right now. She is sacked out on the floor with her squeaky Tigger toy on one side, the cats’ catnip lemon (more a ball and too large for her to swallow) on the other. She was playing with both this morning. I suppose I should plan my day and get some ideas together for dinner. Just DD and me for dinner tonight.

      Cheers!

      • Lyn, I am getting such a charge out of all the enjoyment you’re getting from your pup, Sadie. That’s so great, makes me smile every time you post a pic of her on FB. She is a doll. I’m in the midst of trying to make a decision about George. Do I want him to go natural or start taking him to a groomer? Our groomer had to quit and we have few to choose from around here but to let his ears grow out he won’t look like a Yorkie. What to do, what to do. I can keep him trimmed but I don’t have the expertise of a groomer. It’s just such an effort even if I find a good one. I don’t mind spending the money, it’s not that.
        Hope DD works out some of her quandary of life. Life can be so confusing for the young sometimes. To take a chance and summon up so much courage but also fear. I hope she decides to go for it, whatever it is so she doesn’t live with regrets.
        Glad SB is enjoying his do and his classes. Gee but they’ve grown. Well, should get my lazy self up although I do feel the resistance in my bones. Love you, Sue

      • THANKS LYN FOR SHARING HOW YOU ARE FEELING. I FEEL AS IF I’M NOT ALONE IN THIS. HOPE THE SWELLING GOES DOWN FOR YOU ALSO.
        SADIE SEEMS TO BE A REAL HOOT. HAPPY YOU HAVE HER AND YOUR CATS.
        HOPE DD FIND HERSELF. IT’S ALWAYS SO DIFFICULT WHEN WE ARE YOUNG TO FIND THE RIGHT DIRECTION.
        HAPPY TO HEAR SB IS ENJOYING HIS CLASSES. GOOD FOR HIM.
        HAVE A GOOD DAY LYN, WILL LOW PAIN.
        LOVE YOU SWEET LADY.
        XXX

    • Suzanne dear, thanks for all the accolades but I am often wrong, just as my DH. My dear, I am very worried about all the edema, swelling, you are having. I think you should call the doctor if you can’t even get your shoes on. This could be very serious and you shouldn’t wait until the end of September. Hope you’ll call him.
      Sounds like Aunty is having a good spell. Hope she gets some help for that very painful gout. It can be miserable, that’s for sure. Glad it’s cooled off a bit for you today. Love you, Sue

  29. HI SUE, DOC IS ON HOLIDAYS NOW SO I CAN’T SEE HER. SWELLING IS SLOWLY GOING DOWN BUT STILL TROUBLE WITH THE SHOES. FINGERS NOT AS BAD AS TWO DAYS AGO BUT STILL SWOLLEN.
    SO HAPPY THE SOCIAL WORKER SAW HER FOOT AND NOTICED HOW MUCH TROUBLE SHE HAD WALKING AND DIDN’T HAVE A SHOE ON THAT FOOT. SHE TOLD ME IT’S PAINFUL BUT NOT SO PAINFUL SHE CAN’T STAND IT. I’M JUST NOT SURE ABOUT THAT. I’M JUST WORRIED NOW THAT IT COULD BE MORE THAN GOUT. HOPEFULLY DD AND I WILL GO SEE HER ON MONDAY NOW. I DID TELL DD HOW I FELT. AND HOW WE REALLY NEEDED TO SEE AUNTY FOR OURSELVES.
    THANKS SUE F OR THE INFO. WILL KEEP AN EYE ON THE EDEMA. I AM KEEPING A JOURNAL SO I WILL BE ABLE TO TELL HER EVERYTHING THAT HAS BEEN HAPPENING TO ME. KEEP WONDERING IF IT IS NOT THE PILLS I’M TAKING. THE SWELLING & THE FATIGUE. THEY ALL SEEM TO BE SIDE EFFECTS. TIME WILL TELL. OF COURSE IT’S NOT ALL BAD, I AM ABLE TO DO A FEW THINGS I COULDN’T BEFORE. SEEMS LIKE A CATCH 22.
    HOPE YOU ARE FEELING A BIT BETTER. TEETH MUST BE ALMOST DONE.
    LOVE YOU BIG SUE.
    GOD BLESS.
    XXX

    • Suzanne, you just said a mouthful. Most of our meds are a catch 22 and sometimes the side effects aren’t worth it. I know swelling and fatigue are a part of Lyrica for many as well as depression so do be careful.
      Has Aunty ever had the testing for gout? The lab work work should reveal all. You have a lot on your mind and life right now so hope you’re getting in some rays of joy here and there. Much love, Sue…Yes, three more dental appointments for me then back to the oncologist.

    • Suzanne dear, how right you are. Lyrica can cause the very problems you’re having. Just keep an eye on the edema and if you ever had any trouble with seepage or trouble breathing, be sure to get to the doctor, any doctor.
      Do you think your aunty might have other problems and it might not be gout? Poor lady with so many problems. Hope your swelling continues to get better. Is it cooler? Love, Sue

      • HI SUE, THE SWELLING HAS GONE DOWN QUITE A BIT. I CAN NOW PUT SHOES ON. YEAH!!! I NOW GET TO SEE M Y DOC ON SEPT 17TH. THAT’S A BIT BETTER, ISN’T IT. IT IS MUCH COOLER RIGHT NOW BUT THEY SAY ANOTHER HEAT WAVE IS COMING. I’LL HAVE TO WAIT AND SEE WHAT HAPPENS THEN.
        WELL AS FOR AUNTY, THE SOCIAL WORKER IS BRINGING HER FOR HER EYE TESTS AND WE WILL BE GOING TO SEE HER ON MONDAY. THEY ARE ALSO SENDING A NURSE TO CHECK HER FOOT. THANK YOU GOD! WE SHOULD FIND SOMETHING OUT. THINKING IF THE NURSE IS NOT HAPPY WITH WHAT SHE SEES , SHE WILL TAKE AUNTY TO THE HOSPITAL. IT IS JUST ACROSS THE STREET FROM WHERE SHE LIVES.
        AUNTY CALLED ME AND ASKED ME WHY I TOOK HER PILLS. TOLD HER I DIDN’T TAKE HER PILLS, SHE GOT PRETTY UPSET. TOOK ME A WHILE TO CALM HER DOWN. SHE WAS GOING TO LOOK AGAIN FOR THE PILLS. I TOLD HER THEY WERE ON HER KITCHEN TABLE BUT SHE COULDN’T SEE THEM. I WILL CALL HER AGAIN TOMORROW AND SEE IF SHE FOUND THEM. THIS IS GETTING VERY UPSETTING FOR ME, CAUSE SHE REALLY GETS MAD AND IS NOT VERY N ICE. THE TROUBLE IS, SHE KEEPS TELLING US SHE HAS NEVER BEEN SICK AND SHE IS NOT SICK AND THERE IS NOTHING WRONG WITH HER. EVER SINCE I GOT SICK, IT ALWAYS SEEMED TO BE A JOY FOR HER TO SHOW ME SHE COULD MOVE AROUND AND DANCE AND MOVE HER HANDS RIGHT IN FRONT OF MY FACE. THAT ALSO WAS HARD TO TAKE. I DO BELIEVE SHE IS LOSING IT.
        THAT IS ABOUT IT FROM HERE. VERY TIRED AND NEED TO GO TO BED.
        SUE I DON’T KNOW HOW YOU DO IT TO KEEP UP WITH ALL ON THE BLOG. HOPE YOU ARE GETTING A LITTLE BETTER EACH AND EVERY DAY.
        LOVE YOU MY FRIEND. THANK GOD I HAVE YOU IN MY LIFE TO HELP SORT THINGS OUT AND ALL THE REST HERE WHO HELP ME TOO. LOVE YA ALL TO THE MOON AND BACK.
        GOD BLESS.
        XXX

  30. Hi folks
    Couldn’t get on for a while again
    Had a few probs with elec at home,got that sorted and got to shed
    Then DH left something he wanted so went home and back!
    Then DH stopped meds on the Tuesday and last nite it started appearing again,and sore but today seems ok
    GS passed his driving test today…so he’s comming to see us on Monday ,his day off ,
    He will praps go out doing some photo work with DH
    Then they come to pressure clean the shed and thAt needed tidying after
    Nice to how nothing to do ..I mite achieve that tomorrow
    Ok Back tomorrow love to all.
    Chris

    • Dear Chris, oh yes, we remember those days when a child or grandchild got their drivers licenses. Big, big deal for them. Sort of a milestone.
      Sorry to hear about all the other problems with electricity, driving back and forth. Life can get so busy and frustrating, huh? Glad DH is on the better side of the shingles. What a miserable condition that is and it looks a lot better when looking back at it then in the midst of it. Glad it’s calming down for him. It’s so cool that DH and GS share photography. That will give them such a special connection, you know? Hope your dad is holding steady and that you are enjoying that little bit of do nothing time for yourself. We should all have some of that quiet time to renew. Love you..Sue

      • SO HAPPY DH IS FEELING BETTER CHRIS. WHAT A JOY FOR GS TO HAVE PASSED HIS DRIVER’S LICENSE. NICE TO HEAR THEY SHARE PHOTOGRAPHY. GOOD FOR THEM.
        YOU TAKE IT EASY MY DEAR. WILL DO YOU GOOD.
        LOVE YOU BIG.
        XXX

  31. HEy all:
    Been a bad couple of days. My jaw flared up with the TMJ and all night Wed and all day Thursday I did nothing but moan and groan and use ice and heat. Finally about 12 last night, I woke up to no pain ! Had to travel down to the Rheumy this am , she says, yes my FMS is in full flare. I need to “get more exercise”. Yeah right. Well, this week it would have been. I have to work tomorrow, make up for not working Thursday. Then next Tuesday on to the Orthopod for the knee workup.
    Suzanne, hang in there girl. Hopefully the swelling will go down as it cools down. But like Sue said, you need to check it out, it could be something else althogether.
    Please take care all, will write more later, I am pooped !
    Tonie

  32. SORRY I HAVEN’T BEEN AROUND FOR A COUPLE OF DAYS……IN A BIT OF A PICKLE, LAST SUNDAY (DON’T REMEMBER IF I WROTE ABOUT THIS) I WAS CARAMELISING APPLES FOR THE CREPES, I SAMPLE ONE TO SEE HOW IT WAS COMING ALONG, AND BURNED THE SOFT PALATE OF MY MOUTH, ITS NOT BEEN HEALING DESPITE TRYING VARIOUS REMEDIES. NOW THE BLISTER HAS BURST AND THE PAIN IS UNBELIEVABLE, I AM SCARED IT MIGHT BECOME INFECTED, HENCE ANOTHER TRIP TO THE DOC’S. I HAVEN’T EATEN FOR TWO DAYS, LIVING ON MILK AND WATER…….GOT TO GO NOW, WILL WRITE WHEN I GET THIS SORTED OUT, MEANWHILE BIG LOVE AND HUGS TO EVERYONE…………………..JENNIE XX

    • Oh Jennie, I am so sorry to hear that. Burns in the mouth can be so very painful. I hope by the time you read this you have been to see a doctor and he has given you something to help. Love and prayers from across the pond. Janet

      • OH JENNIE POO, SENDING ANGELS YOUR WAY MY SWEET FRIEND. WHAT A PAINFUL CONDITION YOU HAVE. HOPE YOU SEE THE DOC AND H E IS ABLE TO GIVE YOU SOMETHING FOR THE BURN.
        GOD BLESS
        LOVE YOU IN BUNCHES.
        XXX

    • Oh Jennie, That sounds so miserable. I am so glad the doctor was able to give you something to coat it. Never heard of it but it’s probably just a language thing. Ouch but that does sound awful. We all know about that sensation but not to that extent. That darn sugar can get so hot!! Hope you’re finding mild cold food to sustain you. How about cottage cheese, plain yogurt, ice cream, etc.? Hang in there and I’m so sorry. Love you, Sue

    • OHHH Jennie, that makes me hurt to think on it ! Hope you are feeling better. Try some yogurt. or butter milk. Sue’s solution, holding it in your mouth a bit before you swallow.
      Love ya
      Tonie

    • HI CHRIS………….FEEL DOWN IN THE MOUTH…..PARDON THE PUN. WENT TO THE DOC’S, HE GAVE ME DAKTARIN, SAID IT WILL DO THE TRICK, AND TO LEAVE THE APPLES ALONE NEXT TIME….HE HE!! WHEN THE BLISTER BURST, HE SAID HE COULD SEE HOW DEEP THE BURN HAD GONE, IT HAD TAKEN AWAY THE NATURAL MUCOSA, THIS STUFF IS TO REPAIR AND PUT IT BACK.
      HOW ARE THINGS WITH YOU PET, YOU STILL AT “LE SHED”? SUPPOSED TO BE GOOD WEATHER THIS COMING WEEK, SO YOU CAN GET OUT IN THE SUN, IT WILL DO YOUR DH’S SHINGLES GOOD TOO.
      RIGHT OFF FOR THE NEXT LOT OF MEDICINE, HAVE A GOOD WEEKEND……..LOVE TO YOU AND ALL OF YOU….JENNIE X

      • PS…..I MEANT MUCH LOE TO ALL MY FRIENDS ON THE BLOG…SUE, TONIE, LYN, JANET AND SUZANNE, AND EVERYONE, THINKING OF YOU ALL, AND CATCH UP VERY SOON…..JENNIE XXXXXXXXXXXXXXXXXXXXX

  33. Mornin Peeps
    It’s a beautiful day in the neighborhood ! We had a big rainstorm last night ( of course I mowed the yard, now it will grow 9 inches ) But the air is washed clean this am. Now I must get another cup of coffee and get on the road to Ms Alice;s. house. I am not going to know what day it is at this rate, and even next week 🙂 Not working on days I should. I have got to get that shed finished next week or I will not get it done. So long days on Wed and THurs.
    Chris, how is your dad doing ? Haven’t heard you say much of late. I know you are enjoying your seaside cottage ! I would love to go to the beach , I love waking up to the sound of the surf !
    Sue, hope you are resting up and feeling better. How much more time on the chemo ? How is little Jakie doing ?
    Love to all
    Tonie

  34. To All, Sorry there was not a new blog this week. We had some problems. There will be a new one on Monday. Thanks for hanging in there with us. Love to all, Sue

  35. Yea
    And another on the case too….worth the wait

    Busy this w.end
    DD stayed overnite and the day
    And GS came up with a mate for the day
    So resting tonite and tired but pleasantly so
    It was good weather, lucky as it gives rain all day tomorrow
    Hope all had a good w.end
    Chris

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